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Acute steroid myopathy
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to steroids. Words cannot express my frustration to be still having this same conversion nearly two years since starting symptoms, particularly
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to steroids. Words cannot express my frustration to be still having this same conversion nearly two years since starting symptoms, particularly
Body_bonkers
in
PMRGCAuk
1 year ago
Is this overkill?
Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call the from the hospital the very next day, telling me that I urgently needed to up the steroids to 20mg, and also start taking 2 steroid sparing
Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call the from the hospital the very next day, telling me that I urgently needed to up the steroids to 20mg, and also start taking 2 steroid sparing
humlies
in
PMRGCAuk
1 year ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
10 months ago
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Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
1 year ago
hair loss - Adalimumab ?
hi, I’ve been taking Adalimumab for 2 months and feel OK and it seems to be managing my ulcerative colitis. However, recently I’ve noticed my hair falling out !! I’m not sure if it’s the meds or general life stress!! I hope it’s not the injections as they seem to be working (after several other
hi, I’ve been taking Adalimumab for 2 months and feel OK and it seems to be managing my ulcerative colitis. However, recently I’ve noticed my hair falling out !! I’m not sure if it’s the meds or general life stress!! I hope it’s not the injections as they seem to be working (after several other
Bucket13
in
Crohn's and Colitis Support
1 year ago
pulmonary edema
hi all Not sure if you remember I was in hospital a few weeks back with above and fluid on heart, after loads of diuretics etc I was discharged only to be re admitted on Saturday as fluid is still at same levels and still debilitating me with breathing, they have started me on steroids to see how I
hi all Not sure if you remember I was in hospital a few weeks back with above and fluid on heart, after loads of diuretics etc I was discharged only to be re admitted on Saturday as fluid is still at same levels and still debilitating me with breathing, they have started me on steroids to see how I
Numptybrain
in
Lung Conditions Community Forum
1 year ago
Constant lower Back/Left Bum cheek pain
Hi All,I have adenomyosis and I have been having constant and chronic lower back pain and pain on my left bum cheek for 9 months. Does anyone else with adenomyosis have this problem? I've had a laparoscopy and endo wasn't found but I wouldn't be surprised if I have it too. It's tormenting me and hugely
Hi All,I have adenomyosis and I have been having constant and chronic lower back pain and pain on my left bum cheek for 9 months. Does anyone else with adenomyosis have this problem? I've had a laparoscopy and endo wasn't found but I wouldn't be surprised if I have it too. It's tormenting me and hugely
ABFr23
in
Endometriosis UK
10 months ago
I'm trying....
I am sorry to come back and ask another question, I really am trying not to appear a nuisance but I am in the middle of my GP saying he can't do anything else and waiting for the Hospital appointment, stuck in a world that I don't understand from a cause that I have no idea what it is, with experiences
I am sorry to come back and ask another question, I really am trying not to appear a nuisance but I am in the middle of my GP saying he can't do anything else and waiting for the Hospital appointment, stuck in a world that I don't understand from a cause that I have no idea what it is, with experiences
hollyrain
in
Tinnitus UK
1 year ago
Adrenal Tumor and Troublesome Prednisone Tapering
I was diagnosed with GCA Feb.2018 My relationship with prednisone has been rocky and unpleasant-Like most of you. I am currently tapering again; 4.25/4.0 I have taken a month to get from 4.5 to 4.25 and now working on the DSNS to 4.0 I wonder if anyone else experiences transient head pains; a sharp
I was diagnosed with GCA Feb.2018 My relationship with prednisone has been rocky and unpleasant-Like most of you. I am currently tapering again; 4.25/4.0 I have taken a month to get from 4.5 to 4.25 and now working on the DSNS to 4.0 I wonder if anyone else experiences transient head pains; a sharp
Blurry62
in
PMRGCAuk
1 year ago
Hospitalisation and hepatitis
Hi hope you are all well and enjoying the bank holiday , brief update on my overall health and some recommendations would be greatly appreciated . About a month ago I was admitted to hospital with acute pain in my lower right quadrant radiating through my back up to my right shoulder blade , and my eyes
Hi hope you are all well and enjoying the bank holiday , brief update on my overall health and some recommendations would be greatly appreciated . About a month ago I was admitted to hospital with acute pain in my lower right quadrant radiating through my back up to my right shoulder blade , and my eyes
wp69
in
British Liver Trust
1 year ago
GCA head ache ?
Been tapering down to 5mg steroids with a bit of ups and down in the dose . This evening I’ve developed a sore scalp from top of my head to behind my ear and a head ache in that area. I have just taken 10 mg is that enough?
Been tapering down to 5mg steroids with a bit of ups and down in the dose . This evening I’ve developed a sore scalp from top of my head to behind my ear and a head ache in that area. I have just taken 10 mg is that enough?
Flrchrs
in
PMRGCAuk
1 year ago
Disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’
Please, does anyone have ‘ disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’ ?? I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and CKD
Please, does anyone have ‘ disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’ ?? I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and CKD
DollyDutchGirl_1946
in
Pain Concern
1 year ago
Lupus rash/spots spread to scalp.
Hi, I have Lupus and Sjogrens . This year has been difficult with increased photosensitivity. Skin rash has spread to my scalp. Red spots and flaky and itchy. Scalp can feel very sensitive at times. Just wondering if any one has had the same problem and what treatment was used? I am on 6 monthly
Hi, I have Lupus and Sjogrens . This year has been difficult with increased photosensitivity. Skin rash has spread to my scalp. Red spots and flaky and itchy. Scalp can feel very sensitive at times. Just wondering if any one has had the same problem and what treatment was used? I am on 6 monthly
Haired
in
LUPUS UK
1 year ago
Steroids and Beta Blockers
Not sure if anyone can help with this question but having had a recent heart attack I have been prescribed amongst other drugs a Beta Blocker called Bisoprolol. I am at present down to 6.5 mg Prednisolone and have been stable on that amount for the last couple of months. The information about the
Not sure if anyone can help with this question but having had a recent heart attack I have been prescribed amongst other drugs a Beta Blocker called Bisoprolol. I am at present down to 6.5 mg Prednisolone and have been stable on that amount for the last couple of months. The information about the
jaycee444
in
PMRGCAuk
1 year ago
Outdoor symptoms: daily patterns in ozone
I have posted here about 2 weeks back asking what others thought about the reason behind their variation of asthma symptoms throughout the day (morning vs evening), especially outdoors. Sorry for the long post, just had to get this off my chest. It's been hot and sunny here in Basel, CH, for the last
I have posted here about 2 weeks back asking what others thought about the reason behind their variation of asthma symptoms throughout the day (morning vs evening), especially outdoors. Sorry for the long post, just had to get this off my chest. It's been hot and sunny here in Basel, CH, for the last
runcyclexcski
in
Asthma Community Forum
1 year ago
Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
1 year ago
Lumbosacral plexopathy - Pain returning after steroid treatment
So further to my previous post on this subject, and I can't find much else on HU about this particular problem, but here's where I am now.....I've just finished a 4-week course of Prednisolone to calm down the inflammation. It really helped to be honest by heck I've had the munchies, knackered but wired
So further to my previous post on this subject, and I can't find much else on HU about this particular problem, but here's where I am now.....I've just finished a 4-week course of Prednisolone to calm down the inflammation. It really helped to be honest by heck I've had the munchies, knackered but wired
Viklou
in
Pain Concern
1 year ago
sensitive update
Hi ladies, I hope this post isn’t difficult to read. I’ve always found reading people’s updates helped me to stay positive and feel that’s it’s possible for me. My last transfer was successful and I’ve reached the three month stage. Obviously there is still a long way to go but I wanted to post my
Hi ladies, I hope this post isn’t difficult to read. I’ve always found reading people’s updates helped me to stay positive and feel that’s it’s possible for me. My last transfer was successful and I’ve reached the three month stage. Obviously there is still a long way to go but I wanted to post my
Bed12
in
Fertility Network UK
1 year ago
How painful can PMR get ?
Hi I’ve recently been tapered off steroids . As I was coming off them , the pain gradually returned . I haven’t had any steroids for 2 weeks & im in agony ! Shoulders , arms, hips , legs , knees & feet . I can’t lift my arms very high to brush hair . my Gp diagnosed PMR in April, rheumatologist doubts
Hi I’ve recently been tapered off steroids . As I was coming off them , the pain gradually returned . I haven’t had any steroids for 2 weeks & im in agony ! Shoulders , arms, hips , legs , knees & feet . I can’t lift my arms very high to brush hair . my Gp diagnosed PMR in April, rheumatologist doubts
TedTheMaineCoon
in
PMRGCAuk
1 year ago
do RA immunosuppressants stop the body showing a high temperature with infection ?
Hello I read somewhere that taking RA immunosuppressants and/or systemic steroids stop the body showing a high temperature with an infection ? I asked my RA consultant but he did not confirm, he sidetracked and said that they look at other symptoms also. so I could not get a definitive answer to the
Hello I read somewhere that taking RA immunosuppressants and/or systemic steroids stop the body showing a high temperature with an infection ? I asked my RA consultant but he did not confirm, he sidetracked and said that they look at other symptoms also. so I could not get a definitive answer to the
lindyloo2018
in
NRAS
1 year ago
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