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Pain management Team
I have been waiting for 4 years to see someone in the pain management clinic at our local hospital. What a complete joke. When are the doctors and so called specialists going to help a patient who is in considerable pain and saying to him I want to cut my foot off. He was a complete waste of time, why
I have been waiting for 4 years to see someone in the pain management clinic at our local hospital. What a complete joke. When are the doctors and so called specialists going to help a patient who is in considerable pain and saying to him I want to cut my foot off. He was a complete waste of time, why
Imagine1
in
Pain Concern
9 months ago
prednisolone
Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood test results come back . Receptionists said blood results normal . Gp hasn’t contacted me yet . So I was wondering if it’ll be okay to start
Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood test results come back . Receptionists said blood results normal . Gp hasn’t contacted me yet . So I was wondering if it’ll be okay to start
TedTheMaineCoon
in
PMRGCAuk
1 year ago
Interview with Sarah L. Mackie, MD on Tocilizumab, steroids and the future of GCA treatment.
https://www.healio.com/news/rheumatology/20230831/bubbling-with-new-ideas-tocilizumab-steroids-and-the-future-of-gca-treatment
https://www.healio.com/news/rheumatology/20230831/bubbling-with-new-ideas-tocilizumab-steroids-and-the-future-of-gca-treatment
perceptual63
in
PMRGCAuk
1 year ago
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I think my mum might have PMR how can we get it diagnosed?
Hi, my mum started getting pain in her upper arm which then went upto her shoulder, she could barely raise her arm and it was extremely painful, she now has this in both upper arms and shoulders and has done since early/mid October. She has completely lost her appetite, has lost over a stone and is
Hi, my mum started getting pain in her upper arm which then went upto her shoulder, she could barely raise her arm and it was extremely painful, she now has this in both upper arms and shoulders and has done since early/mid October. She has completely lost her appetite, has lost over a stone and is
Nmbchelsea
in
PMRGCAuk
9 months ago
MrFacts
Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and where does if form I know steroids settles inflammation But long term, is the systemic impact on us better or worse After two courses of
Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and where does if form I know steroids settles inflammation But long term, is the systemic impact on us better or worse After two courses of
mrfacts
in
Vasculitis UK
1 year ago
Good news about steroids!
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
oldtimer2
in
NRAS
1 year ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
1 year ago
Severe Degenerative Arthritis and Osteoporosis
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
Bluebell999
in
Arthritis Action
1 year ago
steroid cream
I have read that steroids react with carbimazole, does anyone know if I’m able to use a steroid cream called fucibet whilst on them please?
I have read that steroids react with carbimazole, does anyone know if I’m able to use a steroid cream called fucibet whilst on them please?
Thyroidsucksgrr
in
Thyroid UK
1 year ago
Nervous changing from Prednisolone to Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
Suffolklady
in
PMRGCAuk
1 year ago
steroids
Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it ?
Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it ?
TedTheMaineCoon
in
PMRGCAuk
1 year ago
Does RA exist in the hips?
I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2
I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2
tazman3
in
NRAS
1 year ago
re:- White blood cell count on steroids
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
gillsky8
in
PMRGCAuk
1 year ago
Weaning off times for Levothyroxine and steroids for BFP - please share? Thank you
Hi Ladies My clinic want to wean me off steroids and levothyroxine (only took as levels elevated by IVF drugs) can you please advise me on the timelines that your clinic used, or times you would recommend based on your personal experience? It’s a bit scary as these drugs helped to get the BFP. Thank
Hi Ladies My clinic want to wean me off steroids and levothyroxine (only took as levels elevated by IVF drugs) can you please advise me on the timelines that your clinic used, or times you would recommend based on your personal experience? It’s a bit scary as these drugs helped to get the BFP. Thank
Eggfreezer2015
in
Fertility Network UK - Pregnancy Support
1 year ago
feeling sick
Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .
Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .
TedTheMaineCoon
in
PMRGCAuk
1 year ago
Infusion
Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on steroids and a fracture I should have an infusion. Anyone had this,
Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on steroids and a fracture I should have an infusion. Anyone had this,
456again
in
PMRGCAuk
1 year ago
Isolated
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
Ellamaye
in
Vasculitis UK
1 year ago
I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
1 year ago
Second Rituximab infusion.
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Jacksc06
in
CLL Support
1 year ago
Heart Medicine Increased inhaled steroid absorption.
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
Karenjaninaz
in
PMRGCAuk
1 year ago
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