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Tattoo /steroids
My rheumatologist mentioned I might need steroid injections into my feet/toes specifically (guided by ultrasound). I have a large foot tattoo (well, I have fairly small feet but tattoo is across a fairly large proportion). She said they'd inject just beside it. I'm quite anxious about damaging my tattoo
My rheumatologist mentioned I might need steroid injections into my feet/toes specifically (guided by ultrasound). I have a large foot tattoo (well, I have fairly small feet but tattoo is across a fairly large proportion). She said they'd inject just beside it. I'm quite anxious about damaging my tattoo
Flowersaregreat
in
NRAS
1 year ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
1 year ago
Wound healing thoughts?
I fell over 20 days ago. A younger/healthier person might have gotten away with a nasty bruise, but with my steroid-thinned skin and poor circulation, I ended up with a very bloody gash on my shin. 7 stitches were put in and removed after 14 days. The wound shows no signs of healing and I'm set for
I fell over 20 days ago. A younger/healthier person might have gotten away with a nasty bruise, but with my steroid-thinned skin and poor circulation, I ended up with a very bloody gash on my shin. 7 stitches were put in and removed after 14 days. The wound shows no signs of healing and I'm set for
whisperit
in
LUPUS UK
1 year ago
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Pjsmart
I have a bone condition called Avascular Necrosis. It was caused because I attempted suicide in 1983 and the pills aspirated into my lungs so they had to give me massive doses of steroids to save my life and get me breathing again. This caused the blood supply to not get to the joints, so I have had
I have a bone condition called Avascular Necrosis. It was caused because I attempted suicide in 1983 and the pills aspirated into my lungs so they had to give me massive doses of steroids to save my life and get me breathing again. This caused the blood supply to not get to the joints, so I have had
pjsmart
in
Major Depressive Disorder (MDD) Support
1 year ago
overlapping symptoms
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
TheRedOnes
in
LUPUS UK
10 months ago
Polymyositis with visible swelling
My friend is still struggling to get a diagnosis. Can i ask if anyone have Polymyositis with visible swelling. She has had a ton on MRIs( showing Inflamation in muscles and around them), blood tests (all negative included auto immune panles), negative EMG. Been on high level of Steroids for 9 months
My friend is still struggling to get a diagnosis. Can i ask if anyone have Polymyositis with visible swelling. She has had a ton on MRIs( showing Inflamation in muscles and around them), blood tests (all negative included auto immune panles), negative EMG. Been on high level of Steroids for 9 months
Angebuck
in
Myositis UK
1 year ago
GCA now TIA, irregular heartbeat
Early August I was diagnosed with a ‘left front ischaemic stroke secondary to new atrial fibrillation…heartbeat irregularly irregular’. It was quite scary as I lost language and ability to order numbers for a short time. Hot foot to A & E, cue ECG, bloods, MRI. Cholesterol 8.0. Prescribed Edoxaban,
Early August I was diagnosed with a ‘left front ischaemic stroke secondary to new atrial fibrillation…heartbeat irregularly irregular’. It was quite scary as I lost language and ability to order numbers for a short time. Hot foot to A & E, cue ECG, bloods, MRI. Cholesterol 8.0. Prescribed Edoxaban,
Bluey-1
in
PMRGCAuk
1 year ago
Possible allergy to b12
Good morning! I developed a rash a week ago that covered my body and made my lips swell. The doctor suggested stopping b12 and cofactors. He felt it was an allergy to meds and wanted to try these before my heart meds as they would have to be eliminated at the hospital Anyway! I have had the course of
Good morning! I developed a rash a week ago that covered my body and made my lips swell. The doctor suggested stopping b12 and cofactors. He felt it was an allergy to meds and wanted to try these before my heart meds as they would have to be eliminated at the hospital Anyway! I have had the course of
brenanddave
in
Pernicious Anaemia Society
1 year ago
GP insisting on using CRP & ESR as inflammatory markers...and managing to get a creatine kinase blood test ordered...legs are still an issue
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Wendy39
in
LUPUS UK
1 year ago
Starting therapy 5 yrs post CAR-T with another immunotherapy trial, now epcoritamab
Making my exercise "rounds" at the hospital
It was a nice long run and far exceeded the average duration of response to CAR-T in CLL, but as we all have grown to accept, essentially all therapies in CLL are palliative. If you live long enough, most but not all of us will eventually relapse.
Making my exercise "rounds" at the hospital
It was a nice long run and far exceeded the average duration of response to CAR-T in CLL, but as we all have grown to accept, essentially all therapies in CLL are palliative. If you live long enough, most but not all of us will eventually relapse.
bkoffman
CLL CURE Hero
in
CLL Support
1 year ago
Any advice apprecaited
My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started to taper down the steroids to 1 mg but he was sleeping 21 hours a day. His repeat scan showed increased swelling with a midline shift. His steroids
My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started to taper down the steroids to 1 mg but he was sleeping 21 hours a day. His repeat scan showed increased swelling with a midline shift. His steroids
Buffalolove
in
Glioblastoma Support
1 year ago
Prednisolone and Surgery
Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for extra doses when undergoing surgery. Is this correct and if so what are the likely consequences of extra not given.Your expert knowledge would be
Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for extra doses when undergoing surgery. Is this correct and if so what are the likely consequences of extra not given.Your expert knowledge would be
maxxgarry
in
PMRGCAuk
1 year ago
Methotrexate
I was wondering what others experience has been using Methotrexate. I’m currently on 20mg which I self administer by injection. I’ve been using it for about 8 months and still suffer from moderately painful headaches that start within a few hours of the injection but subside after 24hrs. It’s been reasonably
I was wondering what others experience has been using Methotrexate. I’m currently on 20mg which I self administer by injection. I’ve been using it for about 8 months and still suffer from moderately painful headaches that start within a few hours of the injection but subside after 24hrs. It’s been reasonably
Medical61
in
NRAS
1 year ago
GCA relapse?
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
Jsaoughs
in
PMRGCAuk
1 year ago
Stress
Hi everyone Not posted for a while but my life recently has been interesting to say the least. I've had a house move back to my home town alone I might add been involved in a car crash and receiving physio for back shoulder injuries my niece died in a separate car accident I've had police involved when
Hi everyone Not posted for a while but my life recently has been interesting to say the least. I've had a house move back to my home town alone I might add been involved in a car crash and receiving physio for back shoulder injuries my niece died in a separate car accident I've had police involved when
soulboy118
in
COPD Friends
1 year ago
advice on sulfasalazine and the sun
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
Fish1230
in
NRAS
1 year ago
Update on steroid guided injection
Hi just a wee update I have to get my guided steroid injection on the 15th of December!!! Its not coming quick enough ad this piriformis pain escalated starting to affect my right side too. 🤞🤞🤞🤞 it works for me
Hi just a wee update I have to get my guided steroid injection on the 15th of December!!! Its not coming quick enough ad this piriformis pain escalated starting to affect my right side too. 🤞🤞🤞🤞 it works for me
Betsy50
in
Pain Concern
10 months ago
Staying on 5mg indefinitely.....
Forgive me if I've brought this up before but after my rheumatologist advised me that there are little or no side effects when on 7.5mg prednisolone providing one takes the right precautions - Calcium, Vit D supplements and healthy eating habits e.g. low or no sugar, low or no carbs, etc. I thought I
Forgive me if I've brought this up before but after my rheumatologist advised me that there are little or no side effects when on 7.5mg prednisolone providing one takes the right precautions - Calcium, Vit D supplements and healthy eating habits e.g. low or no sugar, low or no carbs, etc. I thought I
Pr0jection
in
PMRGCAuk
1 year ago
GCA symptoms normal CRP
I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg in early 2020 when I was diagnosed with GCA. It’s taken me a long time to reduce due to recurrent symptoms when reducing. It’s been a slow process but I’ve been helped my members of this community and my consultant. I have
I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg in early 2020 when I was diagnosed with GCA. It’s taken me a long time to reduce due to recurrent symptoms when reducing. It’s been a slow process but I’ve been helped my members of this community and my consultant. I have
Phoenix51
in
PMRGCAuk
1 year ago
problems after ablation
my husband had his ablation on 12th June and has had problems every since. He didn’t have any episodes in the year leading up to it but was advised to have it as he can’t tolerate the medication. He has been getting episodes every day then 6 weeks post ablation developed a chronic cough and breathing
my husband had his ablation on 12th June and has had problems every since. He didn’t have any episodes in the year leading up to it but was advised to have it as he can’t tolerate the medication. He has been getting episodes every day then 6 weeks post ablation developed a chronic cough and breathing
Oak321
in
AF Association
1 year ago
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