pulmonary edema

[Numptybrain]

hi all

Not sure if you remember I was in hospital a few weeks back with above and fluid on heart, after loads of diuretics etc I was discharged only to be re admitted on Saturday as fluid is still at same levels and still debilitating me with breathing, they have started me on steroids to see how I go. I’m having an ultrasound soon as my tummy is also swollen and painful. Rheumatologist is supposed to be seeing me whilst I’m in here to see if he’s in agreement with 4 respiratory consultants that this is connective tissue disease, if not, it’s scratching heads again time. Wish me luck and hope you are all as well as you can be.

Take care

Wendy

[sassy59]

Wishing you lots of luck and hoping doctors can find out exactly what’s wrong. Let us know how things go. Xx

[Alberta56]

So sorry to hear they haven't fixed the problem. I hope the rheumatologist will come up with the answers. Best wishes and fingers crossed.🤞🤞🤞 xxx

[Ern007]

Sorry to here your problem has not been sorted. I have had pulmonary edema more than one but, the diuretics always managed to sort it.

Wishing you well and hope they find the cause soon.

[Boyval in reply to Ern007]

Hi ern007, may I know th cause of your fluid?

[peege]

Oh dear you poor thing, you must be so uncomfortable and worried. Thinking of you and hoping all will be well soon. You're in the best place Numptybrain. Best wishes and fingers crossed 🤞 🙏

[Numptybrain]

thank you so much for your kind words

Wendy

[Patk1]

Hope they get on top of it,for you.x

[Ascb]

I'm not a medic, and not trying to diagnose of course... But ask your doctors if they can rule out PVOD. Good luck to you.

[Bingo88]

I hope your latest admission finds some answers to your problem and you start feeling better soon. Brian

[Izb1]

Fingers crossed they get to the bottom of this and you get back home soon x

[Mooka]

I hope you get some answers to fix your problems soon. 🤗

[Souielouie]

I hope they can solve your problems out for you, bless you 🥰🤞

[jackdup]

Good luck and I hope they get to the bottom of your issues and the problem is easily treatable.

[MoyB]

Sending virtual hugs ((((( ❤️))))) and wishing for some answers for you!Xx Moy

[Germantara]

Hopefully they get it sorted and you feel better

[BronchyBronwen]

Thinking of you, and wishing you luck of course. Every hope that they'll come up with something helpful for you, and that you'll be feeling lots better very soon. xx

[Numptybrain in reply to BronchyBronwen]

Thanks

It’s so frustrating, I was told it’s connective tissue and more lupus sle then told no I didn’t tick all the boxes but when I was discharged yesterday was told my ANA test wasn’t back and could take another 19 days so the rheumatologist should’ve have told me that without that result. The fluid is now at the very bottom of my lungs so improvement and I can breathe without pain now so still on steroids but at least I’m home just hoping it doesn’t start again when I finish my course of steroids in 2 days

Thank you for all of your kind words to everyone who have replied.

[Ergendl in reply to Numptybrain]

Glad to hear the steroids have improved things. Hope you continue to see an improvement. Do let us know how you get on once the steroids have stopped.

[Boyval]

Hi, any update on what has been through your case? I hope everything is fine now, but would appreciate if you can update.Many thanks

[Numptybrain in reply to Boyval]

Hi yes, I finally got a diagnosis of Serositis and currently on prednisone which is removing fluid, I’m having a CT scan next month which should show hopefully better results. Up to now fingers crossed but it’s early days and respiratory consultant is working alongside rheumatologist, if CT shows decreased inflammation then I’m to start on immunotherapy. I don’t think they will know which autoimmune as normally sle lupus would be the case but I’m Ana negative, so unless rheumatologist is going to class it as that I don’t know.

Good luck but please feel free to check in.