Search
Search
About
Log in
Join
Experiences with
Topical steroids
Posts
Communities
16,833 public posts
Filter results
advice on sulfasalazine and the sun
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
Fish1230
in
NRAS
9 months ago
call from doctor to increase steroids
I last saw rheumi in January, was supposed to have appointment in May which did not receive, when I called rheumi secretary had appointment made for August which was cancelled 3 weeks ago. I received a call last Thursday to say they had a cancellation so I went in and was seen by Junior Doctor who advised
I last saw rheumi in January, was supposed to have appointment in May which did not receive, when I called rheumi secretary had appointment made for August which was cancelled 3 weeks ago. I received a call last Thursday to say they had a cancellation so I went in and was seen by Junior Doctor who advised
Lynlea
in
PMRGCAuk
11 months ago
Brain fog, weakness meds or tumour?
New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting radiotherapy. I take steroids in the morning and Keppra at night and experience a constant brain fog and weakness to limbs which I am unsure as to
New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting radiotherapy. I take steroids in the morning and Keppra at night and experience a constant brain fog and weakness to limbs which I am unsure as to
Lin32
in
Glioblastoma Support
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Steroids after 6 weeks
My Dr just called as he called the ENT and he said he will prescribe steroids whilst I'm waiting months for an appointment for acoustic shock/traum 6 weeks 2 days ago 60 my high dose at first then qill be reduced The Dr said a bit late but worth a try Is it worth it? I really don't like medication
My Dr just called as he called the ENT and he said he will prescribe steroids whilst I'm waiting months for an appointment for acoustic shock/traum 6 weeks 2 days ago 60 my high dose at first then qill be reduced The Dr said a bit late but worth a try Is it worth it? I really don't like medication
Laura878787
in
Tinnitus UK
11 months ago
Waking from sleep with upper abdominal pain for hours at a time
Does anyone have experience of this? Any advice very welcome. I wake from sleep with a slight discomfort, it builds and builds until I have to stand up very straight just to get a tiny bit of relief. Crouching and slow shuffling around also helps very slightly but sitting or lying down is excruciating
Does anyone have experience of this? Any advice very welcome. I wake from sleep with a slight discomfort, it builds and builds until I have to stand up very straight just to get a tiny bit of relief. Crouching and slow shuffling around also helps very slightly but sitting or lying down is excruciating
Jeromekjerome
in
Acid Reflux Support
11 months ago
The Plot Thickens…
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
MsWhistledown
in
Thyroid UK
6 months ago
Mental Health
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
BaronFrankenstein
in
British Heart Foundation
6 months ago
Lilydunn
Tapering Issues.I am having problems when I taper below 3mgs. Dropped from 3 mgs to 2.5 over a 3 month taper.( This is 2nd attempt) Thought I was winning but caught a nasty cold virus and kept going thinking I could cope. Also had bereavement of best friend which hit hard. Have now crashed with aching
Tapering Issues.I am having problems when I taper below 3mgs. Dropped from 3 mgs to 2.5 over a 3 month taper.( This is 2nd attempt) Thought I was winning but caught a nasty cold virus and kept going thinking I could cope. Also had bereavement of best friend which hit hard. Have now crashed with aching
lilydunn
in
PMRGCAuk
11 months ago
Atorvastatin
Ive found that taken at night my dose causes morning headaches which are not alchol related!! Taken in the morning with other meds causes no adverse effects, well at least nothing noticable. I also take steroids & inhaler for copd and Amlodipine for raised BP along with Omeprazole for gut protection
Ive found that taken at night my dose causes morning headaches which are not alchol related!! Taken in the morning with other meds causes no adverse effects, well at least nothing noticable. I also take steroids & inhaler for copd and Amlodipine for raised BP along with Omeprazole for gut protection
Icom705
in
Cholesterol Support
11 months ago
Another round of departments
I've joined several boards on here: initially PMR because that's what was diagnosed first, then the Lung board because after I saw the rheumatologist in January this year for the first time he said he'd like to try me on methotrexate but wanted a clear chest x-ray first - and that's when the fun really
I've joined several boards on here: initially PMR because that's what was diagnosed first, then the Lung board because after I saw the rheumatologist in January this year for the first time he said he'd like to try me on methotrexate but wanted a clear chest x-ray first - and that's when the fun really
ladygigger
in
PMRGCAuk
11 months ago
Synacthen Test Results
Hi everyone, just looking for some clarification on a Synacthen test I've had. Bit of background, 36M, pretty healthy in terms of diet, exercise, sleep etc. No medications. I've been suffering for a few months with fatigue, heart palpitations. Seems to get a lot worse after exercise. Checked cortisol
Hi everyone, just looking for some clarification on a Synacthen test I've had. Bit of background, 36M, pretty healthy in terms of diet, exercise, sleep etc. No medications. I've been suffering for a few months with fatigue, heart palpitations. Seems to get a lot worse after exercise. Checked cortisol
Lalalala5
in
Thyroid UK
11 months ago
Periods delayed after steroid injections
Hi,Has anyone had the experience of their periods being delayed after having steroid injections. If so, for how long? I'm a week late. They haven't been this late in a long while. I have an IVF consultation next month so I'm worried they won't return Thanks
Hi,Has anyone had the experience of their periods being delayed after having steroid injections. If so, for how long? I'm a week late. They haven't been this late in a long while. I have an IVF consultation next month so I'm worried they won't return Thanks
ABFr23
in
NRAS
6 months ago
COVID round 2
After getting COVID at the very beginning, but undiagnosed, and already having a lung condition, (aspergillus, attended Wythenshawe for years) GP said take antibiotics and steroids x 2. Never really recovered until 2 months ago my desaturation was getting so bad i was sent to the oxygen nurse. She said
After getting COVID at the very beginning, but undiagnosed, and already having a lung condition, (aspergillus, attended Wythenshawe for years) GP said take antibiotics and steroids x 2. Never really recovered until 2 months ago my desaturation was getting so bad i was sent to the oxygen nurse. She said
Annieosb
in
Lung Conditions Community Forum
11 months ago
Pain management Team
I have been waiting for 4 years to see someone in the pain management clinic at our local hospital. What a complete joke. When are the doctors and so called specialists going to help a patient who is in considerable pain and saying to him I want to cut my foot off. He was a complete waste of time, why
I have been waiting for 4 years to see someone in the pain management clinic at our local hospital. What a complete joke. When are the doctors and so called specialists going to help a patient who is in considerable pain and saying to him I want to cut my foot off. He was a complete waste of time, why
Imagine1
in
Pain Concern
6 months ago
Asthma flare up any advice?
First time poster! Just looking for any experiences from other members. I had asthma as a child, seemed to resolve. Seemed to possibly develop again in 2018 following a chest infection and diagnosed in 2020 triggered by mould in a property I was living in! I currently take clenil 100 mcg twice a day
First time poster! Just looking for any experiences from other members. I had asthma as a child, seemed to resolve. Seemed to possibly develop again in 2018 following a chest infection and diagnosed in 2020 triggered by mould in a property I was living in! I currently take clenil 100 mcg twice a day
Nattycake
in
Asthma Community Forum
11 months ago
Return of the Living Dead
Four months after finishing pred and despite TCZ, I can now hardly move. Pain can only be expressed with the rudest possible words, as you all know, and sleep is difficult, . I've never got rid of the deathly fatigue. GP is writing to consultant to try to bring forward the next appointment and has given
Four months after finishing pred and despite TCZ, I can now hardly move. Pain can only be expressed with the rudest possible words, as you all know, and sleep is difficult, . I've never got rid of the deathly fatigue. GP is writing to consultant to try to bring forward the next appointment and has given
Sharitone
in
PMRGCAuk
11 months ago
Alternative strategies for dealing with PMR
Are there any examples out there of PMR sufferers who’ve managed the condition without steroids? …and if so, what were they, and how long did it take! And information would be welcomed, be they successful or otherwise.
Are there any examples out there of PMR sufferers who’ve managed the condition without steroids? …and if so, what were they, and how long did it take! And information would be welcomed, be they successful or otherwise.
MerryMiller
in
PMRGCAuk
11 months ago
Question re adrenal saliva test and asthma steroids
Hello, I plan to buy an adrenal cortisol saliva test from Regenerus ( Hidden think you're right and I need to know where I'm at). I use a steroid inhaler for asthma and see that Regenerus suggests not taking it 5 days in advance - not possible unless they would be happy with the drool from a
Hello, I plan to buy an adrenal cortisol saliva test from Regenerus ( Hidden think you're right and I need to know where I'm at). I use a steroid inhaler for asthma and see that Regenerus suggests not taking it 5 days in advance - not possible unless they would be happy with the drool from a
Sneedle
in
Thyroid UK
11 months ago
Confused about acquired adrenal insufficiecy
Just had a confusing telelphone call with endocrinologist. I had my second short synacthen test a few weeks ago. It showed adrenals not working. I am on 5mg of pred. The test was organised by rheumy when I got down to 5mg. Todays endocrinologist said 5mg was too much and adrenals would not wake up on
Just had a confusing telelphone call with endocrinologist. I had my second short synacthen test a few weeks ago. It showed adrenals not working. I am on 5mg of pred. The test was organised by rheumy when I got down to 5mg. Todays endocrinologist said 5mg was too much and adrenals would not wake up on
Cally55
in
PMRGCAuk
11 months ago
I think my mum might have PMR how can we get it diagnosed?
Hi, my mum started getting pain in her upper arm which then went upto her shoulder, she could barely raise her arm and it was extremely painful, she now has this in both upper arms and shoulders and has done since early/mid October. She has completely lost her appetite, has lost over a stone and is
Hi, my mum started getting pain in her upper arm which then went upto her shoulder, she could barely raise her arm and it was extremely painful, she now has this in both upper arms and shoulders and has done since early/mid October. She has completely lost her appetite, has lost over a stone and is
Nmbchelsea
in
PMRGCAuk
7 months ago
1
...
55
56
57
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
3612 results
Asthma Community Forum
2360 results
NRAS
2330 results
View top 10 communities
Sort by
Most Relevant
Newest