Glioblastoma Support | HealthUnlocked

Hi all My Dad was diagnosed with GMB stage 4 in his frontal lobe in mid September this year. It has been a scary, stressful, traumatic rollercoaster since...

2 weeks ago my dad was diagnosed with a grade 4 glioblastoma and given a few months to live, with the option of chemo to possibly give him a little longer. He...

My partner was diagnosed with a grade 4 GB in mid July and sadly passed away on 4th September. We’re just so shocked and struggling to come to terms with how...

My husband was diagnosed with a GBM grade 4 in an inoperable position in March this year. He has had radiotherapy and chemo tablets. Also taking a low dose...

Anybody else out there living alone with this condition?Got good network of friends family but living alone Any tips suggestions..Just took early retirement....

Hello EveryoneNew to group and not sure what to expect but just thought l.would hop on and send a friendly hello. Just getting over an operation to remove a...

Researchers in Oxford are in the early stages of a planning a new clinical trial called Recurrent-GB for patients diagnosed with a Glioblastoma and would...

Good morning to all, 3 AM here currently, have a quick question. Has anybody on here had any type of focused ultrasound used as part of their GBM treatments?...

Hello Everyone, My husband has been diagnosed with GBM grade 4. It’s unmethylated and I know the standard treatment may not be as favorable as hoped . He...

hi community. we live in the UK, my husband has stage 4 GBM-methylated, and are fighting our insurance company (not sure if I can name, but they begin with a...

I would like to hear your insights on my huge dilemma. My 63 year old mom was diagnosed with glioblastoma grade 4, had a successful surgery with 99.99% taken...

Our son was diagnosed with glioblastoma in 2022. After intensive treatment all cleared up but is now back. Tumor was on left side; he can't use his right arm...

Hi,This is my first post. My brother has recently been diagnosed with a Glioblastoma grade 4. It's been alot to take in as I'm sure you can all understand. He...

I would like to share some good news. On Wednesday I had my review with my Oncologist for my annual MRI scan. The result of the scan was that my brain was...

my husband diagnosed with GBM last November and did RT and TMZ . Now he is on his 5th cycle of TMZ. He is doing well except that he cannot read and write very...

Hi everyone, we have been made aware of a survey run by Macmillan Cancer Support to better understand patient experiences of treatment-guiding biomarker tests...

Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays...

Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated...

My Mum has stage 4 inoperable glioblastoma and in the last few days has started suffering from painful thigh muscles and teeth. Is this normal. She’s been...

I have a Brian tumour had the surgery now going to treatment radio chemo etc… Been told exercise is good Any advice on how much? Or little? any tips on...

Dear all - It’s been the hardest journey I’ve been on in my life. My partner and love of my life was diagnosed with GBM4 on November 30, 2023. We live in...

Hello everyone. I’m wondering if anyone has any advice please? My Dad is now 75 and was diagnosed with a GBM nearly three years ago. He’s has done amazingly...

Since the start of my involvement in the co-creation of The Brain Tumour Charity’s (TBTC) new strategy. I have spent a lot of time pondering this question...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In...

My brother was diagnosed with GBM in May of last year. He had a vigil craniotomy in May 2023. He then had chemotherapy and radiation therapy together. He was...

My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if any of you know about the Keto Diet and how effective it might be in treating...

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

I’m looking for emotional support and chat. I live in California. My whole world has crashed in a second. What do I do?

My oldest, my 18 year son was complaining about headaches for a week. We took him to doctor on Saturday and by the evening we had an MRI of large brain lesions...