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problems after ablation
my husband had his ablation on 12th June and has had problems every since. He didn’t have any episodes in the year leading up to it but was advised to have it as he can’t tolerate the medication. He has been getting episodes every day then 6 weeks post ablation developed a chronic cough and breathing
my husband had his ablation on 12th June and has had problems every since. He didn’t have any episodes in the year leading up to it but was advised to have it as he can’t tolerate the medication. He has been getting episodes every day then 6 weeks post ablation developed a chronic cough and breathing
Oak321
in
AF Association
11 months ago
Shingles - does anyone have any advice?
morning all It’s been quite a ride…my ear started bothering me a bit on Monday . Just a small uptick in tinnitus which I tried to ignore. By Tuesday I was a bit worried because I have had total hearing loss in the past due to auto immune attack which was only (partially) restored due to mega doses of
morning all It’s been quite a ride…my ear started bothering me a bit on Monday . Just a small uptick in tinnitus which I tried to ignore. By Tuesday I was a bit worried because I have had total hearing loss in the past due to auto immune attack which was only (partially) restored due to mega doses of
Bon1
in
NRAS
11 months ago
Can pred cause dementia-like symptoms?
Hi everyone, Something is very wrong with me. I feel like I have some kind of dementia. I work from home (mostly phone, emails and internet, nothing physical), but I can't seem to manage it anymore. My career is falling apart. Tasks that have always been easy for me now make me want to scream, and
Hi everyone, Something is very wrong with me. I feel like I have some kind of dementia. I work from home (mostly phone, emails and internet, nothing physical), but I can't seem to manage it anymore. My career is falling apart. Tasks that have always been easy for me now make me want to scream, and
sferios
in
PMRGCAuk
11 months ago
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no pred. before an ultrasound? And increasing dose of pred.
Next week I am having an ultrasound test on my hands and wrists which have become very painful after a flare in May. Should I not take any pred. on the day of the test? Also, I have recently increased my pred. dose from 3 to 5 mg because my hands are so painful and useless. I have been on 5 for 4 days
Next week I am having an ultrasound test on my hands and wrists which have become very painful after a flare in May. Should I not take any pred. on the day of the test? Also, I have recently increased my pred. dose from 3 to 5 mg because my hands are so painful and useless. I have been on 5 for 4 days
humlies
in
PMRGCAuk
11 months ago
Calcified tendonitis
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
FLS1
in
NRAS
6 months ago
Tezepelumab/Spirometry with Reversibility
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
LottieB36
in
Asthma Community Forum
11 months ago
Rash/swollen lips
Hi all me again, thought I would ask here as you've all been so helpful to me during all of my investigations.So update I'm currently on hydroxychloroquine finished a 6 week course of steroids a few weeks ago and I'm feeling up and down currently, last night however my lips became really painful but
Hi all me again, thought I would ask here as you've all been so helpful to me during all of my investigations.So update I'm currently on hydroxychloroquine finished a 6 week course of steroids a few weeks ago and I'm feeling up and down currently, last night however my lips became really painful but
Haylz2109
in
LUPUS UK
11 months ago
Does RA exist in the hips?
I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2
I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2
tazman3
in
NRAS
9 months ago
Declined lupus Centre help
Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to struggle once again. If you know my previous posts just before Christmas I'd had a steroid injection and was waiting to see professor D'cruz in London
Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to struggle once again. If you know my previous posts just before Christmas I'd had a steroid injection and was waiting to see professor D'cruz in London
Haylz2109
in
LUPUS UK
6 months ago
Updated Results and Endo Appt.
Following on from my post the other day, I've had my endo appt and also got the updated results. So on June 9th, my results were as follows:TSH 0.01 mIU/L (0.27 - 4.20) -6.6% Free T4 (fT4) 15.4 pmol/L (11.0 - 25.0) 31.4% Folate - Serum 4.1 ug/L (≥ 3.0) Vitamin B12 (Total) 2000 nmol/L (180 - 900) 252.8%
Following on from my post the other day, I've had my endo appt and also got the updated results. So on June 9th, my results were as follows:TSH 0.01 mIU/L (0.27 - 4.20) -6.6% Free T4 (fT4) 15.4 pmol/L (11.0 - 25.0) 31.4% Folate - Serum 4.1 ug/L (≥ 3.0) Vitamin B12 (Total) 2000 nmol/L (180 - 900) 252.8%
Horsecrazylady79
in
Thyroid UK
11 months ago
AT LAST
i have finally got a kind of an answer. i went to docs and asked for an X ray on my spine she sent me instead for a CT scan. there are several things going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ] which is touching a nerve, so i am going for a steroid injection
i have finally got a kind of an answer. i went to docs and asked for an X ray on my spine she sent me instead for a CT scan. there are several things going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ] which is touching a nerve, so i am going for a steroid injection
Fingerandus
in
Restless Legs Syndrome
6 months ago
Sanurita
I am 73 years old and suffer from chronic eczema I have had lots of steroids an mtx, last meds are acetretin, which combined with steroids but since weening off the steroids, itching has returned, so have to wait next appointment for next meds, has anyone else experienced similar??
I am 73 years old and suffer from chronic eczema I have had lots of steroids an mtx, last meds are acetretin, which combined with steroids but since weening off the steroids, itching has returned, so have to wait next appointment for next meds, has anyone else experienced similar??
Sanurita
in
NRAS
11 months ago
What I learned about steroids and blood sugar levels from wearing a continuous glucose monitor (CGM) on the ZOE program
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
tangocharlie
in
PMRGCAuk
11 months ago
Lespoz
Hi my father's 18months into his 14month prognosis bless him he's had chemo radiotherapy unfortunately his mobility has become very bad due to the numbness in his left hand side of his body so all treatments stopped except steroids he had a fall 10 weeks ago and l organised hospital equipment for home
Hi my father's 18months into his 14month prognosis bless him he's had chemo radiotherapy unfortunately his mobility has become very bad due to the numbness in his left hand side of his body so all treatments stopped except steroids he had a fall 10 weeks ago and l organised hospital equipment for home
Lezpopz
in
Glioblastoma Support
11 months ago
Is this a lupus rash?
Does anyone think that this is a lupus rash. It keeps flaring up. This year I’ve had 2 courses of steroids. I am also on hydroxychloroquine which I’ve been on for 10 years now. In June I started on methotrexate. I have a phone call tomorrow with the rheumatologist nurse. Is it worth asking to see
Does anyone think that this is a lupus rash. It keeps flaring up. This year I’ve had 2 courses of steroids. I am also on hydroxychloroquine which I’ve been on for 10 years now. In June I started on methotrexate. I have a phone call tomorrow with the rheumatologist nurse. Is it worth asking to see
elizabeth-57
in
LUPUS UK
11 months ago
How can I lower my thyroid antibodies
Hi everyone, I’m hoping someone can help me. I’ve had recurrent miscarriages and it has been suggested this is because of high thyroid antibodies - mine are 255, my TSH is 1.6. I have had one successful pregnancy but was on steroids and a small dose of Levothyroxine. Does anyone know if there are
Hi everyone, I’m hoping someone can help me. I’ve had recurrent miscarriages and it has been suggested this is because of high thyroid antibodies - mine are 255, my TSH is 1.6. I have had one successful pregnancy but was on steroids and a small dose of Levothyroxine. Does anyone know if there are
Char2383
in
Thyroid UK
11 months ago
I am off Pred since April, but do I still have PMR?
After 15 months on Pred. I managed to wean myself off them. I always had aches and tiredness, but as it was not unbearable and I rested a lot I thought this was better than remaining on steroids. I stopped the steroids beginning of April ‘23. I still feeel tired all the time, and I am slow and
After 15 months on Pred. I managed to wean myself off them. I always had aches and tiredness, but as it was not unbearable and I rested a lot I thought this was better than remaining on steroids. I stopped the steroids beginning of April ‘23. I still feeel tired all the time, and I am slow and
Fetlar73
in
PMRGCAuk
11 months ago
Advice please! re inhalers, steroids, personality, voice... and breathing balance.
Any advice? I have been diagnosed with asthma. I also have past sinus polyps and take pantoprazole for stomach acid. I feel like I have inflammation from my ears to my insides. I get quite wheezy but mostly in throat and upper chest - sometimes sounds like I have a little bird cheeping in my throat
Any advice? I have been diagnosed with asthma. I also have past sinus polyps and take pantoprazole for stomach acid. I feel like I have inflammation from my ears to my insides. I get quite wheezy but mostly in throat and upper chest - sometimes sounds like I have a little bird cheeping in my throat
Leith24
in
Asthma Community Forum
11 months ago
Some good news, yay!
After all my recent whining …some good news Doc gonna change me off Ozempic onto Monjauro (sp?) Queasiness so bad had to lie down in dinner host’s living room Sed rate 9…well into normal range Ac1..down from 8.4 to 7.2. Hope it improves as I reduce steroids. At 10 mgs methyl pred without
After all my recent whining …some good news Doc gonna change me off Ozempic onto Monjauro (sp?) Queasiness so bad had to lie down in dinner host’s living room Sed rate 9…well into normal range Ac1..down from 8.4 to 7.2. Hope it improves as I reduce steroids. At 10 mgs methyl pred without
Merryfield
in
PMRGCAuk
11 months ago
Itchy ear
I have really bad itchy in my ears . anyone recommend any ointment please. I can’t use drops because I have hole in my ear drum. dr gave me steroids ointment but didn’t work then they gave me tablets also no help. Now they said they can’t do anything 😢. My T also loud always change. ears painful. So
I have really bad itchy in my ears . anyone recommend any ointment please. I can’t use drops because I have hole in my ear drum. dr gave me steroids ointment but didn’t work then they gave me tablets also no help. Now they said they can’t do anything 😢. My T also loud always change. ears painful. So
sun_1234
in
Tinnitus UK
11 months ago
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