AT LAST : i have finally got a kind of... - Restless Legs Syn...

Restless Legs Syndrome

21,900 members15,660 posts

AT LAST

Fingerandus profile image
3 Replies

i have finally got a kind of an answer. i went to docs and asked for an X ray

on my spine she sent me instead for a CT scan. there are several things

going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ]

which is touching a nerve, so i am going for a steroid injection into my spine

which she doesnt think will help , [ neither do i ]. i have now gotten down to 0.125 Sifrol

been on that two weeks going to cut it half next week then i will be off ..i am sat here with a flare up of RLs also had a flare up of Trigeminal Neuralgia this morning TN for short i am so tired tho i am going to bed now and i am going to take a panadeine forte goodnite dear people.....[ fingerandus the fairy hair mouse ] haha my grans name for me said i was into everything ......

Written by
Fingerandus profile image
Fingerandus
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Joolsg profile image
Joolsg

At least you now have a possible source of your RLS.Arthritis and any damage to the spine are known triggers for RLS.

Trigeminal Neuralgia is no fun! The only thing that works when I get it is my cannabis.

Hope you manage to get some sleep.

Nanpat profile image
Nanpat

hi, I also have serious back problems, with worn out fascia joints and bulging disc resting on a nerve. Also 2 fractures in last 12 months.

My steroid injection didn’t help but my neighbors did so be hopeful. My rls from my back is clearly different from my normal rls. My back wakes me after only 2 hrs sleep and this type is related to how I sleep and my back but my rls before bed presents itself differently.

Good luck, be curious how you get on

Fingerandus profile image
Fingerandus in reply to Nanpat

hi everyone i havent had my injection yet couldnt get it done until 29th i am now down to 1/2 of a 125mg sifrol pill. my fourth nite i am struggling to sleep paracetamol and codeine doc gave me only lasts a couple of hours then RLS breaks thru. ive had bad sessions in the day time too .the pill is 30 mg codeine and 500 mg paracetamol would it be safe to take another after two hours. my relation from uk brought some cocodamol with her which she bought over the counter in uk only 8mg of codeine tho.she left me a strip xxx i had a blood test today after doc upped my thyroxene pill i have to see her again on 31st i might be able to get another script for twenty codeine +++pills . i live in hope i am taking lyrica 75mg 3 times today love and safe keeping to you all thank you for being there xxx

Not what you're looking for?

You may also like...

Which treatment after dopamine agonist withdrawal?

I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was...

Anti-seizure medication

Hi i have severe RLS both day and night, which is also body wide. My doctor as prescribed an...

Anyone experience daytime RLS?

So as I start to wean off of the Ropinarole my biggest fear is that I will be unable to work. Once...

My experience with medically prescribed vaping for RLS

I have had RLS since my 20's and I am now 72. I have avoided taking dopamine agonists and other...

RLS Update

Hi RLS community I have been coming down from 200mg of Pregablin for a few months now. I’ve been...