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How painful can PMR get ?
Hi I’ve recently been tapered off steroids . As I was coming off them , the pain gradually returned . I haven’t had any steroids for 2 weeks & im in agony ! Shoulders , arms, hips , legs , knees & feet . I can’t lift my arms very high to brush hair . my Gp diagnosed PMR in April, rheumatologist doubts
Hi I’ve recently been tapered off steroids . As I was coming off them , the pain gradually returned . I haven’t had any steroids for 2 weeks & im in agony ! Shoulders , arms, hips , legs , knees & feet . I can’t lift my arms very high to brush hair . my Gp diagnosed PMR in April, rheumatologist doubts
TedTheMaineCoon
in
PMRGCAuk
10 months ago
do RA immunosuppressants stop the body showing a high temperature with infection ?
Hello I read somewhere that taking RA immunosuppressants and/or systemic steroids stop the body showing a high temperature with an infection ? I asked my RA consultant but he did not confirm, he sidetracked and said that they look at other symptoms also. so I could not get a definitive answer to the
Hello I read somewhere that taking RA immunosuppressants and/or systemic steroids stop the body showing a high temperature with an infection ? I asked my RA consultant but he did not confirm, he sidetracked and said that they look at other symptoms also. so I could not get a definitive answer to the
lindyloo2018
in
NRAS
10 months ago
stiffness
Hi I have read that people experience lot of stiffness with PMR , especially in the mornings . However , I never do , maybe slightly for a few mins. GPS say I do have pmr. My inflammation levels were 39 in the spring . I was given 40mg steroids per day , as suspected GCA . Then saw a rheumy who
Hi I have read that people experience lot of stiffness with PMR , especially in the mornings . However , I never do , maybe slightly for a few mins. GPS say I do have pmr. My inflammation levels were 39 in the spring . I was given 40mg steroids per day , as suspected GCA . Then saw a rheumy who
TedTheMaineCoon
in
PMRGCAuk
8 months ago
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What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
10 months ago
Wound healing thoughts?
I fell over 20 days ago. A younger/healthier person might have gotten away with a nasty bruise, but with my steroid-thinned skin and poor circulation, I ended up with a very bloody gash on my shin. 7 stitches were put in and removed after 14 days. The wound shows no signs of healing and I'm set for
I fell over 20 days ago. A younger/healthier person might have gotten away with a nasty bruise, but with my steroid-thinned skin and poor circulation, I ended up with a very bloody gash on my shin. 7 stitches were put in and removed after 14 days. The wound shows no signs of healing and I'm set for
whisperit
in
LUPUS UK
10 months ago
steroid injections
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
Linny3
in
PMRGCAuk
5 months ago
Pjsmart
I have a bone condition called Avascular Necrosis. It was caused because I attempted suicide in 1983 and the pills aspirated into my lungs so they had to give me massive doses of steroids to save my life and get me breathing again. This caused the blood supply to not get to the joints, so I have had
I have a bone condition called Avascular Necrosis. It was caused because I attempted suicide in 1983 and the pills aspirated into my lungs so they had to give me massive doses of steroids to save my life and get me breathing again. This caused the blood supply to not get to the joints, so I have had
pjsmart
in
Major Depressive Disorder (MDD) Support
10 months ago
Need advice on Etoricoxib, can anyone help please !
I went to AE and was prescibeEtorcoxib , the main problem l have is in my knee, lve had pain with flares before, but nothing like this , it seems to lock mornings are bad getting out of bed , l have no pain when sitting down, lm having a flare at , no meds for 2 months waiting to go new meds., steroid
I went to AE and was prescibeEtorcoxib , the main problem l have is in my knee, lve had pain with flares before, but nothing like this , it seems to lock mornings are bad getting out of bed , l have no pain when sitting down, lm having a flare at , no meds for 2 months waiting to go new meds., steroid
Kate2628
in
NRAS
5 months ago
Polymyositis with visible swelling
My friend is still struggling to get a diagnosis. Can i ask if anyone have Polymyositis with visible swelling. She has had a ton on MRIs( showing Inflamation in muscles and around them), blood tests (all negative included auto immune panles), negative EMG. Been on high level of Steroids for 9 months
My friend is still struggling to get a diagnosis. Can i ask if anyone have Polymyositis with visible swelling. She has had a ton on MRIs( showing Inflamation in muscles and around them), blood tests (all negative included auto immune panles), negative EMG. Been on high level of Steroids for 9 months
Angebuck
in
Myositis UK
10 months ago
GCA now TIA, irregular heartbeat
Early August I was diagnosed with a ‘left front ischaemic stroke secondary to new atrial fibrillation…heartbeat irregularly irregular’. It was quite scary as I lost language and ability to order numbers for a short time. Hot foot to A & E, cue ECG, bloods, MRI. Cholesterol 8.0. Prescribed Edoxaban,
Early August I was diagnosed with a ‘left front ischaemic stroke secondary to new atrial fibrillation…heartbeat irregularly irregular’. It was quite scary as I lost language and ability to order numbers for a short time. Hot foot to A & E, cue ECG, bloods, MRI. Cholesterol 8.0. Prescribed Edoxaban,
Bluey-1
in
PMRGCAuk
10 months ago
Possible allergy to b12
Good morning! I developed a rash a week ago that covered my body and made my lips swell. The doctor suggested stopping b12 and cofactors. He felt it was an allergy to meds and wanted to try these before my heart meds as they would have to be eliminated at the hospital Anyway! I have had the course of
Good morning! I developed a rash a week ago that covered my body and made my lips swell. The doctor suggested stopping b12 and cofactors. He felt it was an allergy to meds and wanted to try these before my heart meds as they would have to be eliminated at the hospital Anyway! I have had the course of
brenanddave
in
Pernicious Anaemia Society
10 months ago
Starting therapy 5 yrs post CAR-T with another immunotherapy trial, now epcoritamab
Making my exercise "rounds" at the hospital
It was a nice long run and far exceeded the average duration of response to CAR-T in CLL, but as we all have grown to accept, essentially all therapies in CLL are palliative. If you live long enough, most but not all of us will eventually relapse.
Making my exercise "rounds" at the hospital
It was a nice long run and far exceeded the average duration of response to CAR-T in CLL, but as we all have grown to accept, essentially all therapies in CLL are palliative. If you live long enough, most but not all of us will eventually relapse.
bkoffman
CLL CURE Hero
in
CLL Support
10 months ago
Any advice apprecaited
My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started to taper down the steroids to 1 mg but he was sleeping 21 hours a day. His repeat scan showed increased swelling with a midline shift. His steroids
My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started to taper down the steroids to 1 mg but he was sleeping 21 hours a day. His repeat scan showed increased swelling with a midline shift. His steroids
Buffalolove
in
Glioblastoma Support
10 months ago
Prednisolone and Surgery
Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for extra doses when undergoing surgery. Is this correct and if so what are the likely consequences of extra not given.Your expert knowledge would be
Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for extra doses when undergoing surgery. Is this correct and if so what are the likely consequences of extra not given.Your expert knowledge would be
maxxgarry
in
PMRGCAuk
10 months ago
Methotrexate
I was wondering what others experience has been using Methotrexate. I’m currently on 20mg which I self administer by injection. I’ve been using it for about 8 months and still suffer from moderately painful headaches that start within a few hours of the injection but subside after 24hrs. It’s been reasonably
I was wondering what others experience has been using Methotrexate. I’m currently on 20mg which I self administer by injection. I’ve been using it for about 8 months and still suffer from moderately painful headaches that start within a few hours of the injection but subside after 24hrs. It’s been reasonably
Medical61
in
NRAS
10 months ago
GCA relapse?
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
Jsaoughs
in
PMRGCAuk
10 months ago
Stress
Hi everyone Not posted for a while but my life recently has been interesting to say the least. I've had a house move back to my home town alone I might add been involved in a car crash and receiving physio for back shoulder injuries my niece died in a separate car accident I've had police involved when
Hi everyone Not posted for a while but my life recently has been interesting to say the least. I've had a house move back to my home town alone I might add been involved in a car crash and receiving physio for back shoulder injuries my niece died in a separate car accident I've had police involved when
soulboy118
in
COPD Friends
10 months ago
Rituximab
Hi all, well after 6 months on hyrimoz and no improvement they want to start me on Rituximab. Does anyone know how long you have to wait before you can start, ie this wash out period were you have nothing?? The steroid injections have worn off again, inflammation crp up again tiredness back and the
Hi all, well after 6 months on hyrimoz and no improvement they want to start me on Rituximab. Does anyone know how long you have to wait before you can start, ie this wash out period were you have nothing?? The steroid injections have worn off again, inflammation crp up again tiredness back and the
Akaka
in
NRAS
5 months ago
Staying on 5mg indefinitely.....
Forgive me if I've brought this up before but after my rheumatologist advised me that there are little or no side effects when on 7.5mg prednisolone providing one takes the right precautions - Calcium, Vit D supplements and healthy eating habits e.g. low or no sugar, low or no carbs, etc. I thought I
Forgive me if I've brought this up before but after my rheumatologist advised me that there are little or no side effects when on 7.5mg prednisolone providing one takes the right precautions - Calcium, Vit D supplements and healthy eating habits e.g. low or no sugar, low or no carbs, etc. I thought I
Pr0jection
in
PMRGCAuk
10 months ago
GCA symptoms normal CRP
I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg in early 2020 when I was diagnosed with GCA. It’s taken me a long time to reduce due to recurrent symptoms when reducing. It’s been a slow process but I’ve been helped my members of this community and my consultant. I have
I have arrived at a place I never thought I would - 1mg Pred reduced from 60mg in early 2020 when I was diagnosed with GCA. It’s taken me a long time to reduce due to recurrent symptoms when reducing. It’s been a slow process but I’ve been helped my members of this community and my consultant. I have
Phoenix51
in
PMRGCAuk
10 months ago
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