I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2 weeks. The pain was also in my my bottom and groin. I thought my pelvis was fracturing!
I eventually got an appointment and saw the new registrar. He told me that you don't get RA in the hips and all my other very painful symptoms are just fibromyalgia. The pain in my hips is one of the worst of my joint pain. Because my bloods are ok and show that the jabs are controlling the inflammation, he just dismissed me. I have never particularly had swollen joints, just lots of pain and cramping which is, of course, invisible.
I have had steroid injections in the past just to help me through a difficult period. He said that I didn't need that as the inflammation is being controlled. They have really helped me in the past and I was very upset. I think he thought I wanted a steroid high as he told me that bodybuilders take steroids to make themselves feel good! Apart from the fact that they are Anabolic steroids, they take them to heal quickly so as to train harder.
I felt patronised and got the impression he was enjoying showing me how clever he is - not. I remember the day my hips gave way after years of painful burning and cramping . That was the day I went to the GP surgery and told them I wouldn't leave until I saw a doctor. That started my journey to RA diagnosis. I'm sick of being fobbed off.