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Week 3 done
I finished week 3! Very happy to have made it this far! Up to 3 minute runs. The routine is going well although it's becoming more challenging to get out into this freezing cold weather!! The week has once again progressed with even more health news. I had some abnormal blood tests that indicate I do
I finished week 3! Very happy to have made it this far! Up to 3 minute runs. The routine is going well although it's becoming more challenging to get out into this freezing cold weather!! The week has once again progressed with even more health news. I had some abnormal blood tests that indicate I do
Irishgirlrunning23
in
Couch to 5K
7 months ago
Prednisolone Advice. You could be stuck with me for a while!
So..... Rheumatology appointment two update. Can I just start by saying to everyone on the forum....thank you so much for your help, advice and support over the last month....it's pretty much kept me going.... Back to the update....so, I got all my screening results back and the only raised issues were
So..... Rheumatology appointment two update. Can I just start by saying to everyone on the forum....thank you so much for your help, advice and support over the last month....it's pretty much kept me going.... Back to the update....so, I got all my screening results back and the only raised issues were
Paulx222
in
PMRGCAuk
7 months ago
State of the NHS
I’m posting this just to highlight the difficulties the NHS is in at the moment, I’m a 75 year old asthmaric and have had a cold and chesty cough for nearly 3 weeks. I finally decided this wasn’t going to clear up by itself. There was no way I was going to get an appointment with my GP any time soon.
I’m posting this just to highlight the difficulties the NHS is in at the moment, I’m a 75 year old asthmaric and have had a cold and chesty cough for nearly 3 weeks. I finally decided this wasn’t going to clear up by itself. There was no way I was going to get an appointment with my GP any time soon.
TwoPuffsAl
in
Asthma Community Forum
7 months ago
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Plan for next FET
Hello, Just looking to sense check my plan for my next medicated FET with anyone who might have done something similar please! Background: One 5BB FET failed in Jan of this year, one fresh transfer (no priming just progesterone) of a frozen day 3 grade 2 embryo resulted in early miscarriage at
Hello, Just looking to sense check my plan for my next medicated FET with anyone who might have done something similar please! Background: One 5BB FET failed in Jan of this year, one fresh transfer (no priming just progesterone) of a frozen day 3 grade 2 embryo resulted in early miscarriage at
CreateIVF
in
Fertility Network UK
7 months ago
Methotrexate or Prednisone which is more damaging?(also update on eyes)
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
potterylady
in
PMRGCAuk
7 months ago
Stopping Actemra
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
phebamom
in
PMRGCAuk
7 months ago
Post Operative Steroids
I am now home after having a new knee fitted. They kept me in an extra night due to being in surgery much longer than anticipated and low sodium levels, so saline drip overnight. I am guessing I was given more anaesthesia than planned, I am finding that I am more tired than I've ever felt. I can
I am now home after having a new knee fitted. They kept me in an extra night due to being in surgery much longer than anticipated and low sodium levels, so saline drip overnight. I am guessing I was given more anaesthesia than planned, I am finding that I am more tired than I've ever felt. I can
Miserere
in
PMRGCAuk
7 months ago
Has anyone had IVIG as well as intralipids - within the same cycle?
Is this overkill? I have high NK cells and very high cytokines as well as a need for a blood thinner. My clinic's plan involves both IVIG and intralipids (as well as steroids and clexane) a few days before transfer. I've not often seen this being done (intralipids as well as IVIG) so I thought I would
Is this overkill? I have high NK cells and very high cytokines as well as a need for a blood thinner. My clinic's plan involves both IVIG and intralipids (as well as steroids and clexane) a few days before transfer. I've not often seen this being done (intralipids as well as IVIG) so I thought I would
Skittles11
in
Fertility Network UK
7 months ago
max inhaler dose?
Hi everyone. I saw the hospital respiratory team about a month ago, who said that it is ok to take 5 puffs rather than the suggested max 4 puffs Fostair 200/6, as a kind of last resort before prednisolone. I’ve taken a lot of steroids this year and am trying to reduce the number of courses. However,
Hi everyone. I saw the hospital respiratory team about a month ago, who said that it is ok to take 5 puffs rather than the suggested max 4 puffs Fostair 200/6, as a kind of last resort before prednisolone. I’ve taken a lot of steroids this year and am trying to reduce the number of courses. However,
Gymbearo
in
Asthma Community Forum
7 months ago
Actemra and aches and pains!
I was put on Actemra about 3 months ago and have dropped as prescribed i.e. 1mg per month. I have had GCA for 14 years and was stuck on 14mgs of prednisolone for some time. It has been a struggle at times but a few weeks ago I noted I was beginning to ache in my muscles and joints similar to fourteen
I was put on Actemra about 3 months ago and have dropped as prescribed i.e. 1mg per month. I have had GCA for 14 years and was stuck on 14mgs of prednisolone for some time. It has been a struggle at times but a few weeks ago I noted I was beginning to ache in my muscles and joints similar to fourteen
Stkeyna
in
PMRGCAuk
7 months ago
'Headspin'
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
Vindicatrix
in
CLL Support
7 months ago
Prostap and Tibolone
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Shellbell2023
in
Endometriosis UK
7 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
7 months ago
Azathioprine v Mycophenolate
I have recently been diagnosed with ILD and put on steroids.I now have to make a decision as to which other form of medication to take along side or replace steroids.Has any of you lovely people out there had bad reactions to these drugs.Reading the side effects as with any drugs looks so scary.Which
I have recently been diagnosed with ILD and put on steroids.I now have to make a decision as to which other form of medication to take along side or replace steroids.Has any of you lovely people out there had bad reactions to these drugs.Reading the side effects as with any drugs looks so scary.Which
Hodgey58
in
COPD Friends
7 months ago
Flare Up
I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having symptoms again. The consultant rheumatologist has confirmed that my GCA is active. I have had to start taking steroids all over again and was given
I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having symptoms again. The consultant rheumatologist has confirmed that my GCA is active. I have had to start taking steroids all over again and was given
Jampad
in
PMRGCAuk
7 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
7 months ago
Escaped Hospital
So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good. Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr. Temperature Sunday or I would have been
So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good. Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr. Temperature Sunday or I would have been
wilbertjellyfish
in
NRAS
7 months ago
Red Marks caused by taking Steroids
Can any one give me advice please on what I can use to put on my skin to help reduce these red marks caused by taking Steroids, my arms itch and even without scratching the marks appear, these are just a few of them.
Can any one give me advice please on what I can use to put on my skin to help reduce these red marks caused by taking Steroids, my arms itch and even without scratching the marks appear, these are just a few of them.
Phed
in
PMRGCAuk
7 months ago
GCA and Vision update
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
Lenore58
in
PMRGCAuk
7 months ago
Multiple short courses of steroids for cough
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Ollie1976
in
Asthma Community Forum
7 months ago
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