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Out of hospital Pt2
I've escaped again. At least this time I feel lots better. I'm on more steroids. Slowly reducing and Anakinra... daily biologic. It's an actual syringe job so it's as well I'm a vet and used to giving injections. It's worse injecting yourself but I'll get on with it. Fingers crossed I'll be a new woman
I've escaped again. At least this time I feel lots better. I'm on more steroids. Slowly reducing and Anakinra... daily biologic. It's an actual syringe job so it's as well I'm a vet and used to giving injections. It's worse injecting yourself but I'll get on with it. Fingers crossed I'll be a new woman
wilbertjellyfish
in
NRAS
7 months ago
Johnk
I have been suffering with PMR for over 4 years. Started steroids 15mg to 4 mg monthly twice, then 8mg to 4mg. After which I have been on 5mg for a further 2 months and advised to stay on this dosage.I'm also now taking 20mg Methotrexate once a week. Still experiencing stiffness and pain.
I have been suffering with PMR for over 4 years. Started steroids 15mg to 4 mg monthly twice, then 8mg to 4mg. After which I have been on 5mg for a further 2 months and advised to stay on this dosage.I'm also now taking 20mg Methotrexate once a week. Still experiencing stiffness and pain.
Porridgelove
in
PMRGCAuk
7 months ago
steroids and ivf
6 transfers all BFN Next FET I was wondering if worth testing for uterine NK, Emma, Alice and ERA is coming to £3500, with a 2 month wait. My consultant is happy to prescribe steroids, clexane and aspirin without the text which is so much cheaper. Wondered if anyone else has done this and got a
6 transfers all BFN Next FET I was wondering if worth testing for uterine NK, Emma, Alice and ERA is coming to £3500, with a 2 month wait. My consultant is happy to prescribe steroids, clexane and aspirin without the text which is so much cheaper. Wondered if anyone else has done this and got a
Pkm4321
in
Fertility Network UK
7 months ago
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Can’t reduce below 5mg
hello I’ve just joined this group in the hope that I can get some advice or at least some understanding of my situation! I was diagnosed with PMR nearly 2 years ago when I was 58. I’ve been on Prednisolone ever since, starting on 20mg which resulted in the usual miraculous sense of relief, and have managed
hello I’ve just joined this group in the hope that I can get some advice or at least some understanding of my situation! I was diagnosed with PMR nearly 2 years ago when I was 58. I’ve been on Prednisolone ever since, starting on 20mg which resulted in the usual miraculous sense of relief, and have managed
Apple6
in
PMRGCAuk
7 months ago
Shaking and 'nervy'
I've experienced shaking quite a lot since taking steroids for about eighteen months but now I seem to be in a constant nervous state, not "me" at all. I wake up by 5.00 every morning with my heart thumping and feeling shaky. I've tried the usual Rescue Remedy etc. ( but that just makes me cough) I've
I've experienced shaking quite a lot since taking steroids for about eighteen months but now I seem to be in a constant nervous state, not "me" at all. I wake up by 5.00 every morning with my heart thumping and feeling shaky. I've tried the usual Rescue Remedy etc. ( but that just makes me cough) I've
Countrykitten
in
PMRGCAuk
7 months ago
Rheumatology
Having read several times on here, it would seem that most people have had regular blood tests and rheumatology appointment. I have been on high dose steroids for PMR, for around 2 years. I am gradually cutting this right down to 3mg. I have never seen a rheumatologist, my doctor doesn't think it is
Having read several times on here, it would seem that most people have had regular blood tests and rheumatology appointment. I have been on high dose steroids for PMR, for around 2 years. I am gradually cutting this right down to 3mg. I have never seen a rheumatologist, my doctor doesn't think it is
Linbin1
in
PMRGCAuk
7 months ago
Prednisolone Update & Questions
Morning all! Thought I'd update on my Prednisolone journey...... Well, currently about to start day 3 of the treatment. Been asked to take 30mg for a week.....things have definitely improved for me. Pre the steroids on Monday morning, I think I had my worst day ever.....pure agony, arms like twigs,
Morning all! Thought I'd update on my Prednisolone journey...... Well, currently about to start day 3 of the treatment. Been asked to take 30mg for a week.....things have definitely improved for me. Pre the steroids on Monday morning, I think I had my worst day ever.....pure agony, arms like twigs,
Paulx222
in
PMRGCAuk
7 months ago
Negative again
I wish so much I could have posted a positive outcome. It’s 5:30am and I’m lying here , quite numb. No tears at all, just emptiness. I had a feeling it was negative but was still hopeful. Thinking surely this must be our time?! I find the hardest part now is telling my husband, breaking his heart too
I wish so much I could have posted a positive outcome. It’s 5:30am and I’m lying here , quite numb. No tears at all, just emptiness. I had a feeling it was negative but was still hopeful. Thinking surely this must be our time?! I find the hardest part now is telling my husband, breaking his heart too
Rol81
in
Fertility Network UK
7 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Trodelvy update
Having super good run with this drug going onto round 10 or 11 - CEA normal and CA15 down another 4% all other liver and general chemistry normal. I wanted to reiterate that the side effects get more manageable too. I believe that results from the San Antonio Conference last week will make this drug
Having super good run with this drug going onto round 10 or 11 - CEA normal and CA15 down another 4% all other liver and general chemistry normal. I wanted to reiterate that the side effects get more manageable too. I believe that results from the San Antonio Conference last week will make this drug
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
7 months ago
Update on Rheumy visit
Hi everyone just an update on my mums visit to the rheumatologist.She thought my mum was looking great but she wasnt happy that she was only going down to 12mg as she would have expected her to be at 8 by now going by her reduction plan. I explained we were following slow taper with approval of our
Hi everyone just an update on my mums visit to the rheumatologist.She thought my mum was looking great but she wasnt happy that she was only going down to 12mg as she would have expected her to be at 8 by now going by her reduction plan. I explained we were following slow taper with approval of our
Buchanan16
in
PMRGCAuk
7 months ago
How to relieve pain
What methods to people use to ease their pain. I’m day 5 of steroids and taking coco Damon plus heat pads. Movement in morning is most painful. Even during the day the smallest movement can hurt,
What methods to people use to ease their pain. I’m day 5 of steroids and taking coco Damon plus heat pads. Movement in morning is most painful. Even during the day the smallest movement can hurt,
lynda1955
in
PMRGCAuk
7 months ago
Eyesight improvement on Prednisolone
Hi there, my first post. So I thought my eyesight was going a little blurry and went for a test last week. It turns out that my mid range sight is actuality a lot better than it was 2 yrs ago. Down to +0.5 from +1.5. The optician said it was due to the steroids and can sometimes happen. I have to go
Hi there, my first post. So I thought my eyesight was going a little blurry and went for a test last week. It turns out that my mid range sight is actuality a lot better than it was 2 yrs ago. Down to +0.5 from +1.5. The optician said it was due to the steroids and can sometimes happen. I have to go
Sausage44
in
PMRGCAuk
7 months ago
Sort of flu
I think I’ve got something flu like. I feel achy and horrible, coughing and exhausted. I have been very slowly reducing steroids and am down to 0.5 mg. I’ve been getting shooting pains in one knee and have painful fingers, I’ve never had these particular symptoms before! I don’t know if pmr is flaring
I think I’ve got something flu like. I feel achy and horrible, coughing and exhausted. I have been very slowly reducing steroids and am down to 0.5 mg. I’ve been getting shooting pains in one knee and have painful fingers, I’ve never had these particular symptoms before! I don’t know if pmr is flaring
Yellow-dog
in
PMRGCAuk
7 months ago
costochondritis
is it possible to get this condition just be leaning sideways over a waist high fence? The pain I am in is terrible at night particularly exacerbated by covid. What can I do for this other than rub voltarol and take paracetomol? I’m on 2 steroids a day (for poly myalgia). Thank you
is it possible to get this condition just be leaning sideways over a waist high fence? The pain I am in is terrible at night particularly exacerbated by covid. What can I do for this other than rub voltarol and take paracetomol? I’m on 2 steroids a day (for poly myalgia). Thank you
Pongo13
in
PMRGCAuk
7 months ago
Trying to contact a GP
Well I’ve just tried to contact my surgery this morning. The online contact told me no more spaces available until tomorrow to even lodge my symptoms for someone to read. This was at 8:30am. I tried phoning the surgery, no luck there. A recorded message saying no more phone calls being taken! So I’ve
Well I’ve just tried to contact my surgery this morning. The online contact told me no more spaces available until tomorrow to even lodge my symptoms for someone to read. This was at 8:30am. I tried phoning the surgery, no luck there. A recorded message saying no more phone calls being taken! So I’ve
SuziElley
in
Asthma Community Forum
7 months ago
GPs treating patients differently ?
I have asthma and take Montelukast and use a Fostair inhaler I also have nasal polyps that come and go usually when I have a cold or virus. I have never been offered or had it suggested that I should have an emergency course of steroids in case I get a chest infection ( and I have had a couple of bad
I have asthma and take Montelukast and use a Fostair inhaler I also have nasal polyps that come and go usually when I have a cold or virus. I have never been offered or had it suggested that I should have an emergency course of steroids in case I get a chest infection ( and I have had a couple of bad
blackmememe
in
Asthma Community Forum
7 months ago
Week 3 done
I finished week 3! Very happy to have made it this far! Up to 3 minute runs. The routine is going well although it's becoming more challenging to get out into this freezing cold weather!! The week has once again progressed with even more health news. I had some abnormal blood tests that indicate I do
I finished week 3! Very happy to have made it this far! Up to 3 minute runs. The routine is going well although it's becoming more challenging to get out into this freezing cold weather!! The week has once again progressed with even more health news. I had some abnormal blood tests that indicate I do
Irishgirlrunning23
in
Couch to 5K
7 months ago
Prednisolone Advice. You could be stuck with me for a while!
So..... Rheumatology appointment two update. Can I just start by saying to everyone on the forum....thank you so much for your help, advice and support over the last month....it's pretty much kept me going.... Back to the update....so, I got all my screening results back and the only raised issues were
So..... Rheumatology appointment two update. Can I just start by saying to everyone on the forum....thank you so much for your help, advice and support over the last month....it's pretty much kept me going.... Back to the update....so, I got all my screening results back and the only raised issues were
Paulx222
in
PMRGCAuk
7 months ago
State of the NHS
I’m posting this just to highlight the difficulties the NHS is in at the moment, I’m a 75 year old asthmaric and have had a cold and chesty cough for nearly 3 weeks. I finally decided this wasn’t going to clear up by itself. There was no way I was going to get an appointment with my GP any time soon.
I’m posting this just to highlight the difficulties the NHS is in at the moment, I’m a 75 year old asthmaric and have had a cold and chesty cough for nearly 3 weeks. I finally decided this wasn’t going to clear up by itself. There was no way I was going to get an appointment with my GP any time soon.
TwoPuffsAl
in
Asthma Community Forum
7 months ago
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