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Multiple short courses of steroids for cough
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Ollie1976
in
Asthma Community Forum
7 months ago
urinary urgency after SBRT
my husband finished SBRT last week. He has been having urinary urgency mostly at night with slow flow and dribbling. His radiologist had him to take steroids for 5 days, but no improvement. His urologist told him to double his alfuzison. He started that a couple days ago and no improvement. His ruination
my husband finished SBRT last week. He has been having urinary urgency mostly at night with slow flow and dribbling. His radiologist had him to take steroids for 5 days, but no improvement. His urologist told him to double his alfuzison. He started that a couple days ago and no improvement. His ruination
Jewelrylady
in
Advanced Prostate Cancer
7 months ago
New GCA treatment
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
DogAgilityObsessed
in
PMRGCAuk
7 months ago
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eosinophilia and nasty chest cold
everything has been good for a year now. I have been prescribed another bio - Tezzy which has been life savingly wonderful. I have reduced steroids and consultant is hopeful of elimination soon. Energy levels have really improved too. So, in the last two days I have nosedived. I put this down to cold
everything has been good for a year now. I have been prescribed another bio - Tezzy which has been life savingly wonderful. I have reduced steroids and consultant is hopeful of elimination soon. Energy levels have really improved too. So, in the last two days I have nosedived. I put this down to cold
Villager2
in
Asthma Community Forum
7 months ago
Brain dead
I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational part of me says it will eventually improve but I had unresolved brain fog prior before to steroids and so it could be further decline caused by
I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational part of me says it will eventually improve but I had unresolved brain fog prior before to steroids and so it could be further decline caused by
Body_bonkers
in
PMRGCAuk
7 months ago
Losing my hair
Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same journey as me who 'Get it' When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some
Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same journey as me who 'Get it' When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some
bookbear68
in
PMRGCAuk
7 months ago
Transfer day ….
My two eggs survived to day 3…. One was 8 cell and the other 10 cell. I’ve got steroids this time so I’m really hoping it helps with NK cells. Had lap surgery a few months ago too so I’m hoping for a better environment for them will help also. So any tips now…foods to eat, things to avoid. I’ve taken
My two eggs survived to day 3…. One was 8 cell and the other 10 cell. I’ve got steroids this time so I’m really hoping it helps with NK cells. Had lap surgery a few months ago too so I’m hoping for a better environment for them will help also. So any tips now…foods to eat, things to avoid. I’ve taken
Rol81
in
Fertility Network UK
7 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
7 months ago
gp recommends her advice for every flare up
I spoke to my gp today after starting steroids two weeks ago for PMR. We discussed what to do if I have a flare up, especially when I’m tapering. She said I should contact her with any flare up, as I may need a blood test. I’ve read on the forum how you tend to manage your own dosages with flare ups.
I spoke to my gp today after starting steroids two weeks ago for PMR. We discussed what to do if I have a flare up, especially when I’m tapering. She said I should contact her with any flare up, as I may need a blood test. I’ve read on the forum how you tend to manage your own dosages with flare ups.
Freshairfiend
in
PMRGCAuk
7 months ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
7 months ago
steroids
I’m at end stage emphysema have just come off a dose of prednisone. Felt halfway human and motivated to do small jobs around the house. It felt so good just to make us both a cup of tea What is the reason why GPS are against giving a small does daily just to be able to have some quality of life. Thankyou
I’m at end stage emphysema have just come off a dose of prednisone. Felt halfway human and motivated to do small jobs around the house. It felt so good just to make us both a cup of tea What is the reason why GPS are against giving a small does daily just to be able to have some quality of life. Thankyou
Samjeff
in
Lung Conditions Community Forum
7 months ago
despair
After 3 years of not being happy with my Rheumatology department , wonderful PALS listened to me and were so supportive! I was given a new consultant. I had been on Adilumamab and another. I wanted these injections to work but I had repeated UTI’s after each one. 2 years of no medication or face to
After 3 years of not being happy with my Rheumatology department , wonderful PALS listened to me and were so supportive! I was given a new consultant. I had been on Adilumamab and another. I wanted these injections to work but I had repeated UTI’s after each one. 2 years of no medication or face to
Luludean
in
NRAS
7 months ago
Trouble getting diagnosed with Fibromyalgia
Please can anyone tell me how to get this properly diagnosed? Over a year ago GP said I had Polymyalgia. Took steroids for six months which helped at first but then stopped working. Was referred to Rheumy who then said I have osteoarthritis but my pain is incredible all over and I am worried I may have
Please can anyone tell me how to get this properly diagnosed? Over a year ago GP said I had Polymyalgia. Took steroids for six months which helped at first but then stopped working. Was referred to Rheumy who then said I have osteoarthritis but my pain is incredible all over and I am worried I may have
Jools1402
in
My Fibro Community
7 months ago
learning to live with GCA/PMR
Hi everyone I've never joined an online forum before but the PMRGCAuk helpline said this was a good one so here goes. I was diagnosed with GCA and PMR in late August this year and am just about starting to feel more like myself now that the symptoms are being controlled with steroids. So I'm starting
Hi everyone I've never joined an online forum before but the PMRGCAuk helpline said this was a good one so here goes. I was diagnosed with GCA and PMR in late August this year and am just about starting to feel more like myself now that the symptoms are being controlled with steroids. So I'm starting
bookbear68
in
PMRGCAuk
7 months ago
PMR weight loss
My first PMR symptoms, (which were severe and immediately diagnosed and addressed by 15 mg Prednisolone) occurred 7 and half years ago. Prior to that I had suffered inexplicable significant weight loss over 12 months ( from 12.5 to 11.5 stones-I’m 6’1”) My diet hadn’t changed and I suffered no other
My first PMR symptoms, (which were severe and immediately diagnosed and addressed by 15 mg Prednisolone) occurred 7 and half years ago. Prior to that I had suffered inexplicable significant weight loss over 12 months ( from 12.5 to 11.5 stones-I’m 6’1”) My diet hadn’t changed and I suffered no other
Cycleman
in
PMRGCAuk
7 months ago
Update.. My Dad is in John Radcliffe hospitol Oxford
Hello thank you for your replies, it helps to know there are others who have experience of encephalitis.Dad was admitted last Thursday 23rd November. His symptoms deteriorated since the Monday. He was moved to a neurology ward on Friday. He has had ct scans to check for a brain bleed... They are clear
Hello thank you for your replies, it helps to know there are others who have experience of encephalitis.Dad was admitted last Thursday 23rd November. His symptoms deteriorated since the Monday. He was moved to a neurology ward on Friday. He has had ct scans to check for a brain bleed... They are clear
Mouseling
in
Encephalitis International
7 months ago
PMR & GCA: A Survival Guide
Book arrived yesterday afternoon - thank you to all who referenced it in your posts to me - it's read and about to be re-read! It's the first engaging piece of literature that I've been able to concentrate on for months! (for some reason I can't access the website www.polywotsit.com - does it still exist
Book arrived yesterday afternoon - thank you to all who referenced it in your posts to me - it's read and about to be re-read! It's the first engaging piece of literature that I've been able to concentrate on for months! (for some reason I can't access the website www.polywotsit.com - does it still exist
Hopeful66
in
PMRGCAuk
7 months ago
Rheumatologist Visit after 9 months
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no more incidents. She is looking well and has even lost a bit of weight which she is delighted with. Our concern at moment is she is still feeling
Buchanan16
in
PMRGCAuk
7 months ago
Avatrombopag or should I try living with a low count? Does anybody have experience of either please?
Hi everyone I am a woman in her early 60s. I was diagnosed with ITP 12 years ago and have had no active bleeding symptoms during this time. I only bruise and get oral blood blisters when my count is very low (usually under 10). Steroids have been working well for me and usually a short course of a
Hi everyone I am a woman in her early 60s. I was diagnosed with ITP 12 years ago and have had no active bleeding symptoms during this time. I only bruise and get oral blood blisters when my count is very low (usually under 10). Steroids have been working well for me and usually a short course of a
janran
in
ITP Support Association
7 months ago
truly scrumptious
My surgery are doing Blood tests to check for for diabetes, possibly because l am elderly, at 87. My results showed that l did not have diabetes but that l was pre-diabetic. I was rather surprised because l have never been overweight and have a reasonably healthy diet. However l was curious to see if
My surgery are doing Blood tests to check for for diabetes, possibly because l am elderly, at 87. My results showed that l did not have diabetes but that l was pre-diabetic. I was rather surprised because l have never been overweight and have a reasonably healthy diet. However l was curious to see if
Trulyscrumpious
in
PMRGCAuk
7 months ago
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