So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good.
Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr.
Temperature Sunday or I would have been let out. But I stayed naively thinking Monday the rheumatology team would come and see me and talk to the medics and work out what was wrong.
They saw some changes on my lungs when doing CT of my kidneys and decided this is were the infection was.
Unfortunately Monday brought a different medicine consultant. He pranced in all how did you sleep...crap, did you eat breakfast..a little. You've just got an infection have a few more days antibiotics at home.
He wasn't prepared for the fact that I have three brain cells and questions.
Like what is actually wrong? Why am I still feeling crap? Why did I have a temperature yesterday? What is the long term plan? Etc etc
He claimed to have read my notes but after leaving the room came back to ask when I'd had a temperature on the Sunday!!! It's all recorded.
Several other discussions and a period of feeling worse I came home on the basis I wasn't getting much better in there and needed a night's sleep.
I was especially infuriated by the pharmacist who took ages then produced a hand written schedule of the dates I am supposed to cut my steroids down on. I've spent six years cutting them down and there is no way my body will cope with 1mg reduction every five days.
Feel great this morning after a sleep although I'm still in my comfy bed.
RA is crap.
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wilbertjellyfish
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I’m glad your home and just praying your going to feel better soon. I was told with steroids it’s a very slow reduction and it took me months. It is a shock to find doctors don’t read notes especially in a hospital. Next step is do they use Dr Google ?? I suspect some actually do. Xxx
Very pleased you are back home wjf. Why does no one in the medical profession seem interested in getting to the underlying cause anymore - just patch up and ship out?! Hope you are feeling better very soon. X
So sorry you’ve had such an awful time. I know what you mean though. My hubby who doesn’t have RA has developed pneumonia again he’s usually fit and healthy but has gone downhill for the last month. Three trips to the GP and they just wanted him out of the door even though he alerted them to his pneumonia last year. Long story short he ended up in A&E on Saturday night and the docs there did a chest X-ray told him it was a lower chest infection did some bloods but not a CRP to check for infection but did send him home with some antibiotics. It’s only that he alerted the pneumonia nurses that they checked his X-ray and confirmed it is pneumonia so have put him on a virtual ward at home and check him twice a day (they are fantastic). Hope you get your answers soon.
Apparently the pharmacy delay is due to not getting the prescription till later from the doctor, who is busy prior to sorting prescriptions. Well this is what I gleaned.
Don't you feel sorry for the doctor? Thinking - here's an easy one, oh, cripes, no it's someone who knows more than I do! I know I have reduced junior doctors to a quivering wreck within seconds....and caused one to rip the page he had been writing on as he scored through all the entry he had made (which was incorrect and dangerous because of possible drug effects with what I'm already on).
I’ve been there too I was prescribed an antibiotic which causes anaphylaxis and had to get them to remove it from notes. I always ask what I’m taking and don’t take the risk. Luckily I know what I can and can’t have.
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