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Worried About (Possible) Recent Diagnosis of PMR.
Around 3 months ago I became aware of increasing aches and pains in my arms and legs and an overwhelming exhaustion. I’m normally a fit and active 73 year old. My neck felt stiff but I put that down to wear and tear as I also have worn discs in my lower spine which I manage with Pilates. GP sent me
Around 3 months ago I became aware of increasing aches and pains in my arms and legs and an overwhelming exhaustion. I’m normally a fit and active 73 year old. My neck felt stiff but I put that down to wear and tear as I also have worn discs in my lower spine which I manage with Pilates. GP sent me
GlesgaGal
in
PMRGCAuk
5 months ago
Low cortisol/adrenal insufficiency
Hello, AI is a very new subject for me and looking to speak to people with similar issue. In May 23 I started to have bowel issues and in August 2023 I was diagnosed with Lymphatic colitis where I have been put on steroids for 12 weeks (budesonide 9mg to be exact) Since 2023 I have experience tiredness
Hello, AI is a very new subject for me and looking to speak to people with similar issue. In May 23 I started to have bowel issues and in August 2023 I was diagnosed with Lymphatic colitis where I have been put on steroids for 12 weeks (budesonide 9mg to be exact) Since 2023 I have experience tiredness
Kamsi86
in
Thyroid UK
5 months ago
Pneumonia and Pleurisy- pain
Hi. I'm new here. I haven't been well since before Christmas. Initially I had a bit of a sore throat which I thought then turned into a virus- cough and sinus symptoms, shivers etc. A fortnight ago I felt pain in my chest- centre and at left hand side along ribs and behind breastbone area. Also at
Hi. I'm new here. I haven't been well since before Christmas. Initially I had a bit of a sore throat which I thought then turned into a virus- cough and sinus symptoms, shivers etc. A fortnight ago I felt pain in my chest- centre and at left hand side along ribs and behind breastbone area. Also at
Poppy16
in
Lung Conditions Community Forum
5 months ago
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Fed up .
hi all It’s another I feel sorry for myself post . I’m in top dose methotrexate and just been out upto 6 tablets sulphasalazine a day well 5 this week and then onto 6 next week. Struggling still with stiffness for quite a lot hours during day and uncomfortable most of the time with flaring in hands
hi all It’s another I feel sorry for myself post . I’m in top dose methotrexate and just been out upto 6 tablets sulphasalazine a day well 5 this week and then onto 6 next week. Struggling still with stiffness for quite a lot hours during day and uncomfortable most of the time with flaring in hands
Teddyboy17
in
NRAS
5 months ago
Awful
Been on dupilimab for coming up to a year.I have had no steroids for a year. The duplimab is not as good as prednisilone at damping things down - I cough a lot and sneeze a lot - I usually need a blast of my inhaler because I struggle to breathe after a bout of sneezing. I have noticed since late November
Been on dupilimab for coming up to a year.I have had no steroids for a year. The duplimab is not as good as prednisilone at damping things down - I cough a lot and sneeze a lot - I usually need a blast of my inhaler because I struggle to breathe after a bout of sneezing. I have noticed since late November
Madbiker1
in
Asthma Community Forum
5 months ago
Had anyone tried LDN?
I've been clear of all medicine for the last couple of years. However, my latest MRI of my hands and wrists has shown lots of inflammation around the tendons and bones in my hand. My rheumatologist wants me to start taking steroids and then other immune suppressants further down the road. I have many
I've been clear of all medicine for the last couple of years. However, my latest MRI of my hands and wrists has shown lots of inflammation around the tendons and bones in my hand. My rheumatologist wants me to start taking steroids and then other immune suppressants further down the road. I have many
HealthCoachLupus
in
LUPUS UK
5 months ago
best way to reduce Prednisolone
I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to definitely come of Steroids. Fatigue is a massive problem for me. I am currently on 5mg of Pred daily but have just had opposite views from 2 Doctors
I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to definitely come of Steroids. Fatigue is a massive problem for me. I am currently on 5mg of Pred daily but have just had opposite views from 2 Doctors
Linnetbird
in
PMRGCAuk
5 months ago
Covid recovery and steroids
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
Yellow-dog
in
PMRGCAuk
5 months ago
Dexamethasone
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
Broseley
in
PMRGCAuk
5 months ago
chemical pregnancy after FET
hi, had a frozen embryo transfer 2/01/24. All went well and tested positive on day 15 & day 18. This was followed by brown spotting and some red blood (I just knew it was something bad) Today, I have tested and test coming back with the faintest line so it’s confirmed my doubts. I was on lubion as had
hi, had a frozen embryo transfer 2/01/24. All went well and tested positive on day 15 & day 18. This was followed by brown spotting and some red blood (I just knew it was something bad) Today, I have tested and test coming back with the faintest line so it’s confirmed my doubts. I was on lubion as had
BW14
in
Fertility Network UK
5 months ago
Steroid timing
Just a quick question as memory gone! I’m struggling in the mornings with really bad hip pain which is making walking quite unpleasant. I’ve been pushing through as I want to keep my steps up. So if I take my steroids at 2:30am should I take the complete dose of 10mg or split it with 5mg then and the
Just a quick question as memory gone! I’m struggling in the mornings with really bad hip pain which is making walking quite unpleasant. I’ve been pushing through as I want to keep my steps up. So if I take my steroids at 2:30am should I take the complete dose of 10mg or split it with 5mg then and the
Griggser
in
PMRGCAuk
5 months ago
Feature on Temporal Arteritis in 'Woman's Weekly' magazine.
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal Arteritis'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!! It covered pretty much all the key points from signs & symptoms
Just wanted to say that I've just read a health article in this weeks 'Woman's Weekly' magazine, headed 'Coping With Temporal Arteritis'. I was all prepared to be quite scathing about it's content, but perhaps our message is getting through!! It covered pretty much all the key points from signs & symptoms
Kendrew
in
PMRGCAuk
5 months ago
Not PMR? Not sure what to do next
Hi all, I’m looking for any thoughts as I’m not sure what to do next! About 3 months ago my husband (60) started getting joint and muscle pain in his shoulders, wrists, hands, knees, hips, pelvis. It pretty much came on overnight. Meaning he had trouble getting dressed and sometimes getting out of
Hi all, I’m looking for any thoughts as I’m not sure what to do next! About 3 months ago my husband (60) started getting joint and muscle pain in his shoulders, wrists, hands, knees, hips, pelvis. It pretty much came on overnight. Meaning he had trouble getting dressed and sometimes getting out of
Avdb
in
PMRGCAuk
5 months ago
Headaches
Morning ! Just asking if anyone else gets headaches / migraines with PMR ? Not on steroids at the moment. seems to always affect right side of head & eye . Maybe cluster headaches ?
Morning ! Just asking if anyone else gets headaches / migraines with PMR ? Not on steroids at the moment. seems to always affect right side of head & eye . Maybe cluster headaches ?
TedTheMaineCoon
in
PMRGCAuk
5 months ago
never heard of GCA
Hi,I’m a 72yr old ex nurse. On 23rd Dec 24 I phoned my optician with regards to much reduced vision in left eye. He said he had noticed start of cataract at check 6 mths ago and thought this had just accelerated. He made appt for Jan 2nd. I had left side pain in face, lost weight, tired but didn’t link
Hi,I’m a 72yr old ex nurse. On 23rd Dec 24 I phoned my optician with regards to much reduced vision in left eye. He said he had noticed start of cataract at check 6 mths ago and thought this had just accelerated. He made appt for Jan 2nd. I had left side pain in face, lost weight, tired but didn’t link
NinnyB
in
PMRGCAuk
5 months ago
Glaucoma and steroids
Recently I had an eye infection and the eye doctor prescription an antibiotic eye drops that contained a steroid for inflammation. Maxitrol. At the time I followed his instructions for treatment but now after I have excessive eye pressure and he diagnosed me with glaucoma in the eye he was treating.
Recently I had an eye infection and the eye doctor prescription an antibiotic eye drops that contained a steroid for inflammation. Maxitrol. At the time I followed his instructions for treatment but now after I have excessive eye pressure and he diagnosed me with glaucoma in the eye he was treating.
Eyak1971
in
Kidney Transplant
5 months ago
years of yo yo
well this is interesting, my sister who also has PMR as well as me , has just returned from her rheumatologist consultation in London. She mentioned to the consultant that her sister , me . Has been struggling to reduce her steroids below 5 mgs for many years . The consultant said that they have many
well this is interesting, my sister who also has PMR as well as me , has just returned from her rheumatologist consultation in London. She mentioned to the consultant that her sister , me . Has been struggling to reduce her steroids below 5 mgs for many years . The consultant said that they have many
Avadip12
in
PMRGCAuk
5 months ago
Oral Thrush
Hi Apert from intense oral hygiene, keto diet, no alcohol, using doctor prescribed oral mouth rinse for at least 10 days can anyone suggest anything that will work and get rid of this awful feeling in my mouth. . Was pre diabetic before steroids now awaiting next bloods so suspecting steroid induced
Hi Apert from intense oral hygiene, keto diet, no alcohol, using doctor prescribed oral mouth rinse for at least 10 days can anyone suggest anything that will work and get rid of this awful feeling in my mouth. . Was pre diabetic before steroids now awaiting next bloods so suspecting steroid induced
merle1010
in
PMRGCAuk
5 months ago
Evenity injections
Hi, to any one with Osteoporosis whose been advised to take the Evenity (romosozumab) injections for a year , go for it. I have just had my Dexa scan results after taking the monthly injections. I am no longer in the Osteoporosis category. I'm now Osteopenic. My spine has gone from - 3.8 to 2.2, hip
Hi, to any one with Osteoporosis whose been advised to take the Evenity (romosozumab) injections for a year , go for it. I have just had my Dexa scan results after taking the monthly injections. I am no longer in the Osteoporosis category. I'm now Osteopenic. My spine has gone from - 3.8 to 2.2, hip
youvegotmail
in
Bone Health and Osteoporosis UK
5 months ago
Well, I'm flabbergasted!
I have just got the results of my PET scan and nothing is showing up! Prof. Hughes concludes that the PMR had gone away!This is after nearly 12 years mostly on 11mgs Pred. His advice is to slowly reduce the Pred. and that the pain I have constantly is probably caused by the steroids. I am really hoping
I have just got the results of my PET scan and nothing is showing up! Prof. Hughes concludes that the PMR had gone away!This is after nearly 12 years mostly on 11mgs Pred. His advice is to slowly reduce the Pred. and that the pain I have constantly is probably caused by the steroids. I am really hoping
suzy1959
in
PMRGCAuk
5 months ago
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