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Advice required
Hello, This is my first post but i have been an avid reader every day and have learned so much. I was diagnosed having PMR in September 2023 by my GP who recommended I take 15 mg of Prednisolone daily to see if his diagnosis was correct. To my surprise and amazement, I became pain free which was a miracle
Hello, This is my first post but i have been an avid reader every day and have learned so much. I was diagnosed having PMR in September 2023 by my GP who recommended I take 15 mg of Prednisolone daily to see if his diagnosis was correct. To my surprise and amazement, I became pain free which was a miracle
Cooper02
in
PMRGCAuk
5 months ago
which steroids and what dosage.
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Leader4077
in
Advanced Prostate Cancer
5 months ago
Advice Required
hello I’m looking after my elderly uncle. His wife passed on and shortly after that event he was diagnosed with PMR. He’s had it 3 & half years now. He’s struggling and no other family to help as all live in Canada. so. Should he see a specialist and if so what sort of specialist should he see?
hello I’m looking after my elderly uncle. His wife passed on and shortly after that event he was diagnosed with PMR. He’s had it 3 & half years now. He’s struggling and no other family to help as all live in Canada. so. Should he see a specialist and if so what sort of specialist should he see?
Daisypeta1
in
PMRGCAuk
6 months ago
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Really struggling - Tocilzumab/Pred
Hello again, I’m in real pain around the clock and struggling to see past it at the moment. I’m due my second Toci injection tomorrow but the pain has gone worse since I had the first one last week. I posted that it hadn’t helped at all and was reassured when many of you said it took several weeks
Hello again, I’m in real pain around the clock and struggling to see past it at the moment. I’m due my second Toci injection tomorrow but the pain has gone worse since I had the first one last week. I posted that it hadn’t helped at all and was reassured when many of you said it took several weeks
Inanotherlife
in
NRAS
6 months ago
Who uses steroids?
Hello everyone! I hope everyone had a nice holiday. I have a question about steroids. I recently had whole brain radiation for a bunch of tiny Mets . Before this I was on Trodelvy. My biggest side effect forever has been nausea. Many of the meds for nausea don’t work for me. The only
Hello everyone! I hope everyone had a nice holiday. I have a question about steroids. I recently had whole brain radiation for a bunch of tiny Mets . Before this I was on Trodelvy. My biggest side effect forever has been nausea. Many of the meds for nausea don’t work for me. The only
Ticket123
in
SHARE Metastatic Breast Cancer
6 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
6 months ago
Predisolone and cataracts
I have been told that i have the start of cataracts and the optician feels it could be the constant use and now everyday dose of steroids that has cobrributed to it .Has anyone else had this or similar .Thankyou
I have been told that i have the start of cataracts and the optician feels it could be the constant use and now everyday dose of steroids that has cobrributed to it .Has anyone else had this or similar .Thankyou
Nanto4
in
Asthma Community Forum
6 months ago
Urgent dental appointment for pain may need molar extraction should I increase steroids
I have reduced to 1mg prednisolone since October did take extra 1mg for a number of days over Christmas period as had to deal with a stressful situation and do a lot of driving was fine until now tooth has really started to play up , interesting started just before Christmas. Sought advice from neighbour
I have reduced to 1mg prednisolone since October did take extra 1mg for a number of days over Christmas period as had to deal with a stressful situation and do a lot of driving was fine until now tooth has really started to play up , interesting started just before Christmas. Sought advice from neighbour
carport
in
PMRGCAuk
6 months ago
scalp tenderness
I reduced my pred from 4mg to 3mg on 26th December. I am suffering from scalp tenderness and slight pain at the bottom of my skull. It does seem to ease slightly after taking 10mg amitriptyline. I have not received my next appointment with rheumatologist. Just wondering if I need to speak to my GP
I reduced my pred from 4mg to 3mg on 26th December. I am suffering from scalp tenderness and slight pain at the bottom of my skull. It does seem to ease slightly after taking 10mg amitriptyline. I have not received my next appointment with rheumatologist. Just wondering if I need to speak to my GP
Lynlea
in
PMRGCAuk
6 months ago
Cough
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
54chelle
in
Asthma Community Forum
6 months ago
Doctor,do they care
My sister now been told she has PMR, that was her Rheumatologist she has been seeing for her arthritis. Gave her steroids, one week 20mg week 2, 15mg week 3, 10 mg until they were finished, then all her pain came back and GP was loathed to give her any more, thy know at health centre she has it, but
My sister now been told she has PMR, that was her Rheumatologist she has been seeing for her arthritis. Gave her steroids, one week 20mg week 2, 15mg week 3, 10 mg until they were finished, then all her pain came back and GP was loathed to give her any more, thy know at health centre she has it, but
Harrywogan
in
PMRGCAuk
6 months ago
GCA & polymyalgia rheumatica
I was diagnosed with GCA 8 years ago. All medical attention has been focussed on steroids & methotrexate etc. throughout. Now, at the age of 75 I am finding that the severe limiting effects of the polymyalgia is even more life limiting than GCA. Has anyone else found this? Is there any real help
I was diagnosed with GCA 8 years ago. All medical attention has been focussed on steroids & methotrexate etc. throughout. Now, at the age of 75 I am finding that the severe limiting effects of the polymyalgia is even more life limiting than GCA. Has anyone else found this? Is there any real help
Saintmalo
in
PMRGCAuk
6 months ago
Covid recovery
Hi, I tested positive on 15th December and was positive for 14 days. It attacked my lungs this time and was bad. From day 1 I was prescribed steroids and a 2 week course of Docyciclyne to take alongside my nebuliser. I’m now on my third course of steroids and my peak flow is still only about 310. Heart
Hi, I tested positive on 15th December and was positive for 14 days. It attacked my lungs this time and was bad. From day 1 I was prescribed steroids and a 2 week course of Docyciclyne to take alongside my nebuliser. I’m now on my third course of steroids and my peak flow is still only about 310. Heart
Dham
in
Lung Conditions Community Forum
6 months ago
renal crisis
just wondering if anyone can advise me. I’ve been coming down my steroids and I’m now on 8 mg been doing half a mil every two weeks . I’ve been having sickness and dihorea all week of and on with stomach aches and feeling rough. It’s probably a bug but a friend who is a nurse told me to be careful as
just wondering if anyone can advise me. I’ve been coming down my steroids and I’m now on 8 mg been doing half a mil every two weeks . I’ve been having sickness and dihorea all week of and on with stomach aches and feeling rough. It’s probably a bug but a friend who is a nurse told me to be careful as
Shaza123
in
PMRGCAuk
6 months ago
Lupus sle treatment
Hey everyone I was diagnosis in may lasy year I'm on hydroxychlorquine 200mg twice a day steroids 15mg azathioprine 100 which has been incresed to 125 for 4 weeks and the 150 after that and 3 times a week I'm on Mepacrine for 3 months then that will become daily anyone else on mepacrine? Anyone found
Hey everyone I was diagnosis in may lasy year I'm on hydroxychlorquine 200mg twice a day steroids 15mg azathioprine 100 which has been incresed to 125 for 4 weeks and the 150 after that and 3 times a week I'm on Mepacrine for 3 months then that will become daily anyone else on mepacrine? Anyone found
Emz04
in
LUPUS UK
6 months ago
COPD & thyroid problems
After having what I thought was an elongated COPD exacerbation lasting over 8 weeks which has resulted in me taking 4 lots of antibiotics and 2 lots of steroids, it’s now been suggested that I may have a thyroid problem. I always felt the problem was in my throat region, with lots of throat clearing,
After having what I thought was an elongated COPD exacerbation lasting over 8 weeks which has resulted in me taking 4 lots of antibiotics and 2 lots of steroids, it’s now been suggested that I may have a thyroid problem. I always felt the problem was in my throat region, with lots of throat clearing,
Polly-PV
in
Lung Conditions Community Forum
6 months ago
bursitis
Happy and healthy New Year everyone. I am down to 1mg of pred and have developed, what my osteopath says, is bursitis . Also arthritis has flared up in my feet. I saw a nurse practitioner who said take painkillers to manage it and that because of the reduction in steroids this has all flared up and
Happy and healthy New Year everyone. I am down to 1mg of pred and have developed, what my osteopath says, is bursitis . Also arthritis has flared up in my feet. I saw a nurse practitioner who said take painkillers to manage it and that because of the reduction in steroids this has all flared up and
Bubble56
in
PMRGCAuk
6 months ago
Why does my rheumatologist want me to go onto Methotrexate when I am on a low does of Prednisolone and am getting good symptom relief?
I am now down to 2mg of Prednisolone a day. From a few weeks in my rheumatologist has wanted me to go onto Methotrexate. I have never achieved total symptom relief and recently I've probably been slightly stiffer than before, certainly in the mornings. My last blood tests showed that my CRP had gone
I am now down to 2mg of Prednisolone a day. From a few weeks in my rheumatologist has wanted me to go onto Methotrexate. I have never achieved total symptom relief and recently I've probably been slightly stiffer than before, certainly in the mornings. My last blood tests showed that my CRP had gone
Siena62
in
PMRGCAuk
6 months ago
Thanks to all here - split dose over 24 hrs evenly?
Anyone tried splitting dose of Pred over 24hrs to help taper - is it worth a try ? Thanks to everyone here such a supportive, knowledgeable group.I was recently diagnosed with pmr - (details on my profile) Starting tapering now at 12.5 Pred . I was thinking - would splitting the dose through 24 hrs
Anyone tried splitting dose of Pred over 24hrs to help taper - is it worth a try ? Thanks to everyone here such a supportive, knowledgeable group.I was recently diagnosed with pmr - (details on my profile) Starting tapering now at 12.5 Pred . I was thinking - would splitting the dose through 24 hrs
Digory
in
PMRGCAuk
6 months ago
Melon Udrigle
To Tangocharlie. I would just like to say that my first appointment was a telephone appointment, my GP immediately from the symptoms diagnosed PMR, she prescribed Prednisolone (20mgs) initially, I went overnight from being unable to move to virtually back to normal. The most helpful part of the consultation
To Tangocharlie. I would just like to say that my first appointment was a telephone appointment, my GP immediately from the symptoms diagnosed PMR, she prescribed Prednisolone (20mgs) initially, I went overnight from being unable to move to virtually back to normal. The most helpful part of the consultation
mellonudrigle
in
PMRGCAuk
6 months ago
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