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Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
5 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
5 months ago
I Still haven’t been diagnosed but feel really bad
hello After lots of back and forth at the Dr’s and various hospital departments. haematology found me to have a raised eosinophilia level and asked for me to be referred to the allergy clinic they referred me back to ENT with a suspected fungal lung disease, ENT found my frontal and ethmoid sinus
hello After lots of back and forth at the Dr’s and various hospital departments. haematology found me to have a raised eosinophilia level and asked for me to be referred to the allergy clinic they referred me back to ENT with a suspected fungal lung disease, ENT found my frontal and ethmoid sinus
Sara128
in
Aspergillosis and Rare Fungal Infection Support
5 months ago
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Anyone with behcet's taking rinvoq?
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
FrancisB
in
Behçet's UK
5 months ago
Severe SOB
Hi all, This is my first post. I have been reading a lot on here over the past 48 hours and can see a caring and helpful community. I am currently suffering with really severe SOB I can't breathe out. This is my 3rd attack in 6 months. I have had asthma since birth and been on reliever and preventer
Hi all, This is my first post. I have been reading a lot on here over the past 48 hours and can see a caring and helpful community. I am currently suffering with really severe SOB I can't breathe out. This is my 3rd attack in 6 months. I have had asthma since birth and been on reliever and preventer
wildblueboy
in
Lung Conditions Community Forum
5 months ago
Flare?
Hallo everyone. As some of you know I had a total knee replacement before Christmas and progress since has been well. I am due to see the surgeon again on Friday and hopefully he will clear me for driving. However, I have, over the last week or so, developed aches and pains in the shoulder, arms,
Hallo everyone. As some of you know I had a total knee replacement before Christmas and progress since has been well. I am due to see the surgeon again on Friday and hopefully he will clear me for driving. However, I have, over the last week or so, developed aches and pains in the shoulder, arms,
Miserere
in
PMRGCAuk
5 months ago
how long is a long time
hi everyone have been reading posts for a while and it seems to me that everyone's journey with PMR is different. so here is my story. I was diagnosed with PMR in march 2021 by my GP I have not got below 8mg of prednisolone every time I drop to 7.5mg much more discomfort. I have aches and a little
hi everyone have been reading posts for a while and it seems to me that everyone's journey with PMR is different. so here is my story. I was diagnosed with PMR in march 2021 by my GP I have not got below 8mg of prednisolone every time I drop to 7.5mg much more discomfort. I have aches and a little
bluenumbertwo
in
PMRGCAuk
5 months ago
help for cirrhosis
I’ve had high liver enzymes for a few years. No real answers as to why. I’ve now seen a new hematologist and he has me set up for a fibroscan and MRI. But he said I have cirrhosis from old notes. The new doc has put me on steroids for a few weeks for inflammation and another med. for inflammation
I’ve had high liver enzymes for a few years. No real answers as to why. I’ve now seen a new hematologist and he has me set up for a fibroscan and MRI. But he said I have cirrhosis from old notes. The new doc has put me on steroids for a few weeks for inflammation and another med. for inflammation
Addieann
in
Living with Fatty Liver and NASH
5 months ago
montelukast
A few years ago I took montelukast for a while and although it made a great difference to my asthma and skin I stopped taking it due to dreams that felt so real I wasn’t sure what had happened and what hadn’t. I was also having what I can only describe as very dark thoughts. Fast forward to recently
A few years ago I took montelukast for a while and although it made a great difference to my asthma and skin I stopped taking it due to dreams that felt so real I wasn’t sure what had happened and what hadn’t. I was also having what I can only describe as very dark thoughts. Fast forward to recently
Gymbearo
in
Asthma Community Forum
5 months ago
anyone with Churg Strauss come off all medication?
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
Katie18
in
Vasculitis UK
5 months ago
First visit to restpertery clinic
Hi hoping someone can help.was diagnosed with asthma after being in hospital after bad upper respiratory infection unable to breathe steroids and antibiotics didn't help was given allsorts of test and medication and oxygen told it was severe asthma attack so put on rescue inhaler and reliever inhaler
Hi hoping someone can help.was diagnosed with asthma after being in hospital after bad upper respiratory infection unable to breathe steroids and antibiotics didn't help was given allsorts of test and medication and oxygen told it was severe asthma attack so put on rescue inhaler and reliever inhaler
Gymnastics2
in
Lung Conditions Community Forum
5 months ago
Medication side effects
I'm starving 😫. I'm not actually starving but side effects of steroids. I'm starving 😫. I havn't over eaten today but I feel so hungry. It will pass 🙏🙏
I'm starving 😫. I'm not actually starving but side effects of steroids. I'm starving 😫. I havn't over eaten today but I feel so hungry. It will pass 🙏🙏
Ellamaye
in
Anxiety and Depression Support
5 months ago
Has anyone heard of Parsonage Turner Syndrome? Out of interest.
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Greensleeves
in
PMRGCAuk
5 months ago
it's back
After over 5 years with no symptoms, PMR and GCA have suddenly returned. Dr has put me back on steroids, so here we go again. Nobody seems to know why this suddenly happens.
After over 5 years with no symptoms, PMR and GCA have suddenly returned. Dr has put me back on steroids, so here we go again. Nobody seems to know why this suddenly happens.
Content1
in
PMRGCAuk
5 months ago
PMR flare and Pred advice please
Hi Everyone thanks again for all the wonderful info out there . It is now just over 2 years since I was diagnosed with PMR . When I initially started on pred the reduction of pain in my shoulders and hips was remarkable . I was on 15mg daily , after a while the symptoms cam back and I went up to 20
Hi Everyone thanks again for all the wonderful info out there . It is now just over 2 years since I was diagnosed with PMR . When I initially started on pred the reduction of pain in my shoulders and hips was remarkable . I was on 15mg daily , after a while the symptoms cam back and I went up to 20
Marek1
in
PMRGCAuk
5 months ago
4 courses of steroids for chest infection
hi all , I’m new to this forum so not sure how to present my problem but here goes. I’m 73 year old male with asthma and like many of you I suffer during winter months with chest infections. I’ve taken 4 courses of steroids since beginning of December In total this is 680 mg. My doctor has prescribed
hi all , I’m new to this forum so not sure how to present my problem but here goes. I’m 73 year old male with asthma and like many of you I suffer during winter months with chest infections. I’ve taken 4 courses of steroids since beginning of December In total this is 680 mg. My doctor has prescribed
Manforallseasons
in
Asthma Community Forum
5 months ago
asthma as chest tightness
is anyone's asthma (while on all the usual meds) presents as tightness in the chest? No wheeze no cough? Spirometry normal and mannitol test negative? Peak flow doesn't drop much when symptomatic unless severe like with chest infection? I'm just fed up with the severe asthma clinic I'm under : they
is anyone's asthma (while on all the usual meds) presents as tightness in the chest? No wheeze no cough? Spirometry normal and mannitol test negative? Peak flow doesn't drop much when symptomatic unless severe like with chest infection? I'm just fed up with the severe asthma clinic I'm under : they
sciencepotato
in
Lung Conditions Community Forum
5 months ago
Chest infection still! What next?
Hi, just wondering if anyone had any suggestions- I had flu I think, then bacterial chest infection, 1 week amoxicillin and 1 week clarithromycin and prednisolone (asthma had flared up - I’m on fostair and montelukast and had been well managed for 2 years) . Just as I’ve finished the last tablets of
Hi, just wondering if anyone had any suggestions- I had flu I think, then bacterial chest infection, 1 week amoxicillin and 1 week clarithromycin and prednisolone (asthma had flared up - I’m on fostair and montelukast and had been well managed for 2 years) . Just as I’ve finished the last tablets of
Ladypig8
in
Asthma Community Forum
5 months ago
GCA Neck pain
I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment every 2weeks. Many, many side effects from the steroids, too many to list but now my main ones are severe pain in neck & exhaustion. I feel quite
I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment every 2weeks. Many, many side effects from the steroids, too many to list but now my main ones are severe pain in neck & exhaustion. I feel quite
DHEH
in
PMRGCAuk
5 months ago
Recurring infections?
Hi. I have been on steroids since last April - currently 10mg daily - for suspected GCA (tests were inconclusive so going on initial symptoms and response to medication) . Have been reasonably well and side effects limited to some fatigue and weight gain. However in the month or so before Christmas my
Hi. I have been on steroids since last April - currently 10mg daily - for suspected GCA (tests were inconclusive so going on initial symptoms and response to medication) . Have been reasonably well and side effects limited to some fatigue and weight gain. However in the month or so before Christmas my
Menno1525
in
PMRGCAuk
5 months ago
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