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Takayasu arteritis
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Which is it?
My symptoms seem to match psoriatic arthritis - the way my spine pain presents, low grade fever during flare-ups and other stuff that indicates an autoimmune condition (and I have psoriasis) - but my x-ray results show osteoarthritis according to my GP. The blood tests apparently also don't indicate
My symptoms seem to match psoriatic arthritis - the way my spine pain presents, low grade fever during flare-ups and other stuff that indicates an autoimmune condition (and I have psoriasis) - but my x-ray results show osteoarthritis according to my GP. The blood tests apparently also don't indicate
SecondAngel
in
Beyond Psoriasis
2 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
LemonZest11
in
PMRGCAuk
2 years ago
4th vaccination?
I have had an appointment sent to me for a 4th vaccination. I have already had the booster in October. I am taking Tacrolimus and steroids for seronegative inflammatory arthritis. Just wondered if anyone else has heard about their 4th injection? I live in North Wales.
I have had an appointment sent to me for a 4th vaccination. I have already had the booster in October. I am taking Tacrolimus and steroids for seronegative inflammatory arthritis. Just wondered if anyone else has heard about their 4th injection? I live in North Wales.
Seashoreshanty
in
NRAS
2 years ago
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Chronic severe arthritis pain
I have suffered with chronic pain for about 20 years. It's getting intolerable. Morphine is no longer working. Any ideas?
I have suffered with chronic pain for about 20 years. It's getting intolerable. Morphine is no longer working. Any ideas?
Boxingmom
in
Pain Concern
2 years ago
Is this possibly GCA again?
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
pamela4215
in
PMRGCAuk
2 years ago
Pred sick day rules.
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
PastelsinArt
in
PMRGCAuk
2 years ago
"It's all in your head"
When I hear this expression I am so angry. It has never actually been said to me personally but.....! When I think about it I "wonder" - could it be (at least a little)? When I read, listen to the radio, am on my laptop, me mind is 'occupied' and the pain is less - even not there?!? The PMR is 'sleeping
When I hear this expression I am so angry. It has never actually been said to me personally but.....! When I think about it I "wonder" - could it be (at least a little)? When I read, listen to the radio, am on my laptop, me mind is 'occupied' and the pain is less - even not there?!? The PMR is 'sleeping
Constance13
in
PMRGCAuk
2 years ago
Rheumatologist doesn't want me to stay on pred
My Dr has me taking plaquenil 6 days a week and only use prednisone when I have much pain. I also gave inflammatory arthritis. There us a distinct difference between pmr pain and the inflammatory arthritis pain . She would have me take methotrexate before daily pred.
My Dr has me taking plaquenil 6 days a week and only use prednisone when I have much pain. I also gave inflammatory arthritis. There us a distinct difference between pmr pain and the inflammatory arthritis pain . She would have me take methotrexate before daily pred.
Goldengirlz2
in
PMRGCAuk
2 years ago
Just wondering……..
I’ve had an under active thyroid for many years; inflammatory arthritis came along 9-10 years ago; followed by fibro about 5 years ago. Recent addition is high cholesterol 🤦♀️🤦♀️. I don’t want statins so am trying dietary & lifestyle changes; I have cut out biscuits, cakes, etc. I’ve started to slowly
I’ve had an under active thyroid for many years; inflammatory arthritis came along 9-10 years ago; followed by fibro about 5 years ago. Recent addition is high cholesterol 🤦♀️🤦♀️. I don’t want statins so am trying dietary & lifestyle changes; I have cut out biscuits, cakes, etc. I’ve started to slowly
NannyNooNoo
in
Fibromyalgia Action UK
2 years ago
Liver enzymes elevated
Hi everyone! I was diagnosed in 2019 and have been on mtx since then. Remicade was added in 2020 and I’m doing great on both of these meds. My most recent ALT was 129. Up from 44 which was a few months ago. Prior to starting meds my enzymes were in the teens or below. I have messaged my doctor and am
Hi everyone! I was diagnosed in 2019 and have been on mtx since then. Remicade was added in 2020 and I’m doing great on both of these meds. My most recent ALT was 129. Up from 44 which was a few months ago. Prior to starting meds my enzymes were in the teens or below. I have messaged my doctor and am
rue04
in
NRAS
2 years ago
Bursitis /Arthritis hip area - any advice?
Well I couldn't be lower than a snake's belly (as the saying goes!). Following 4 weeks of a stubborn, debilitating cold virus (not covid), I had the onset of pain on outer edge of hip that has got so bad I couldn't sleep. I've had to take prescribed painkillers which are helping me through the night
Well I couldn't be lower than a snake's belly (as the saying goes!). Following 4 weeks of a stubborn, debilitating cold virus (not covid), I had the onset of pain on outer edge of hip that has got so bad I couldn't sleep. I've had to take prescribed painkillers which are helping me through the night
Raisemeup
Graduate
in
Couch to 5K
2 years ago
JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
Suzita76
in
PMRGCAuk
2 years ago
rheumatoid arthritis interstitial granulomatous dermatitis
Does anyone suffer this and if so did you get rid of it?
Does anyone suffer this and if so did you get rid of it?
Hidden
in
NRAS
2 years ago
Sleepyhead
I am 81 yrs old and been waiting to see rheumatologist for four months to have psoriatic arthritis diagnosed. I have X-rays on hands and hops which show this and pain all over body at different times. I also cannot wake up in the morning and takes me till early afternoon to be able to keep eyes open.
I am 81 yrs old and been waiting to see rheumatologist for four months to have psoriatic arthritis diagnosed. I have X-rays on hands and hops which show this and pain all over body at different times. I also cannot wake up in the morning and takes me till early afternoon to be able to keep eyes open.
RosemaryTwo
in
Beyond Psoriasis
2 years ago
B2 vitamin
I have recently come across having low B2 causing low mode, fatigue, skin problems, hair falling out etc. I have had some of the symptoms of low B2 I know my b12 is in the right range. A B2 test needs you to do a pee test. I’ve not ever been tested for low B2 and I’m wondering may be this is getting
I have recently come across having low B2 causing low mode, fatigue, skin problems, hair falling out etc. I have had some of the symptoms of low B2 I know my b12 is in the right range. A B2 test needs you to do a pee test. I’ve not ever been tested for low B2 and I’m wondering may be this is getting
LittleA
in
Pernicious Anaemia Society
2 years ago
Bath time
Hi all, Those of you with hip arthritis , are you able to get in and out of the bath. After not being able to life my leg to get in the bath for some time, I am now looking for a bath lift. I would like one with a swivel and slide seat and very sturdy. Could you tell me your experience and any suggestions
Hi all, Those of you with hip arthritis , are you able to get in and out of the bath. After not being able to life my leg to get in the bath for some time, I am now looking for a bath lift. I would like one with a swivel and slide seat and very sturdy. Could you tell me your experience and any suggestions
cmjoyce
in
Arthritis Action
3 years ago
What can expect
Hi everyone I had PMR for 5 year and didn’t fully recover a year ago I was diagnosed with psoriatic arthritis. I now take 17.5mg of methotrexate Via injection weekly. However although this has reduced the swelling in my knee and I am marginally better, I am still stiff and feel constantly exhausted!
Hi everyone I had PMR for 5 year and didn’t fully recover a year ago I was diagnosed with psoriatic arthritis. I now take 17.5mg of methotrexate Via injection weekly. However although this has reduced the swelling in my knee and I am marginally better, I am still stiff and feel constantly exhausted!
JulieR2
in
Beyond Psoriasis
2 years ago
Lower legs and arms
Scleraderma Do you have very tight lower legs snd arms … including wrist wrinkled and ankles. Knees also very tight and also have Inflammatory Rheumatoid Arthritis so maybe that is in knee joints. Do cream it but so tight to clench thinned muscles . Feels like I have very tight elastic around limbs.
Scleraderma Do you have very tight lower legs snd arms … including wrist wrinkled and ankles. Knees also very tight and also have Inflammatory Rheumatoid Arthritis so maybe that is in knee joints. Do cream it but so tight to clench thinned muscles . Feels like I have very tight elastic around limbs.
Bruffingtons2
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Psoriatic arthritis?
Update…Jan. 2022. Have seen a dermatologist for my scalp finally after nearly 3 years of suffering, and I do indeed have scalp psoriasis. Everything prescribed has not worked. I have been told by my GP when I asked to be referred to a Rheumatologist , as I have had osteoarthritis for years, to see
Update…Jan. 2022. Have seen a dermatologist for my scalp finally after nearly 3 years of suffering, and I do indeed have scalp psoriasis. Everything prescribed has not worked. I have been told by my GP when I asked to be referred to a Rheumatologist , as I have had osteoarthritis for years, to see
flakingscalp
in
Beyond Psoriasis
2 years ago
Pain relief
Hhi there. I'm currently taking MST for pain relief and I've been told in passing from a GP that I may be better on subutex. I was wondering if anyone can h help me.. Will it be a straight forward transition to subutex or will I have to have a break from the morphine before starting subutex
Hhi there. I'm currently taking MST for pain relief and I've been told in passing from a GP that I may be better on subutex. I was wondering if anyone can h help me.. Will it be a straight forward transition to subutex or will I have to have a break from the morphine before starting subutex
Peggysue12345
in
Pain Concern
2 years ago
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