Lower legs and arms

[Bruffingtons2]

Scleraderma

Do you have very tight lower legs snd arms … including wrist wrinkled and ankles.

Knees also very tight and also have Inflammatory Rheumatoid Arthritis so maybe that is in knee joints.

Do cream it but so tight to clench thinned muscles .

Feels like I have very tight elastic around limbs. Had it for months.

Hope all as well as can be.

Thank you

Bruffingtons

[Kittyanto]

Hi Bruffingtons,

Yes I have tight, swollen and shiny skin around wrists and and both hands and face.

Is now affecting my skin on my face.

My fingers, elbow, shoulders and neck hurt constantly.

Thank God I will see the doctor soon and hope to have some medication to stop my skin getting tighter.

Hope you will get better too.

[positivedaybyday]

Hi,

So sorry to hear of your problems. It's one of the progressive symptoms of Systemic Sclerosis I'm afraid.

I can truly understand how you're feeling as I've been there & it's terrible. Is your skin shinny & itchy too?

I presume you are under a good Rheumatoligist?

If so contact them by phone straight away to see if any different medication can help you.

Good luck, keep fighting!

Xxx

[Bkart in reply to positivedaybyday]

Hi Positive, so nice to hear from you, I’ve been looking for your posts and was a little worried you might be ill (silly me you are ill but you know what I mean!)

Hope you had a nice Christmas, didn’t get any snow here did we, just rain! ☹️ Not keen on snow now, for obvious reasons 😬🥶 but does add to the festive feel for a day or so.

Really looking forward to meeting you on the 6th but please if you have to change your plans or your not happy to meet because of COVID I’ll understand.

Happy New Year to you and everyone.

[positivedaybyday in reply to Bkart]

Yes I'm really good thanks. See you as planned on the 6th. Xxc

[Bkart]

Hi, my skin tightening started in my feet, I’m still awaiting diagnosis but after seeing a specialist Rheumy last May it has escalated up my legs, now in my hands, arms, back and face. Obviously I’m not sure if my diagnosis will be SSc but also have other tell tale symptoms so will not be surprised if it is.

My heart goes out to all of you who have this dreadful illness and also my admiration in the way you battle and deal with it over the months and years.

So comforting to know there are so many kind people willing to help those of us at the beginning of this unwanted journey, still being positive and still able to find the funny side of life. Thank you to you all.

Keep safe in your own journey too.

[Misty2552017 in reply to Bkart]

I was diagnosed with Systemic Sclerosis/Scleroderma and secondary Raynaud’s six years ago. My feet,ankles and lower legs feel like they’re wrapped in cling film!. I have anaemia and feel tired a lot also been treated for GAVE (watermelon stomach). Can you tell me what the maximum dose of mycophenolate is? I take two 500 tablets twice a day. Is that the maximum?

I do have more energy than I had when first diagnosed and I thought this disease usually plateaued after five years. Has anyone experienced this?

[Sophiebun11]

Hi Bruffingtons2,

Yes, I have it in my feet and hands the worst, but also knees.

I think like the others that if you aren't on any meds for it you should try getting in to see your Rheumy or at least call.

Happy New Year!!

Sclero