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Takayasu arteritis
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Looking for People With Palindrome Arthritis
Hi, I'm new here. I have a complex lot of health issues, and unfortunately, a dreadful GP, who referred me finally (I've been suffering "officially" since I was 6 yrs old, and I'm now 47), they sent me to an equally dreadfully Rheumatologist who discharge me in just 6 minutes without further examination
Hi, I'm new here. I have a complex lot of health issues, and unfortunately, a dreadful GP, who referred me finally (I've been suffering "officially" since I was 6 yrs old, and I'm now 47), they sent me to an equally dreadfully Rheumatologist who discharge me in just 6 minutes without further examination
ImSonia
in
NRAS
2 years ago
orthotics for big toe arthritis
Hi, I have recently developed big toe arthritis (hallux limitus). I have tried standard insoles but they only provide limited relief and don't stop my big toes from bending so the pain continues when I walk. I've seen loads of orthotics for sale but am unsure which would help specifically with big toe
Hi, I have recently developed big toe arthritis (hallux limitus). I have tried standard insoles but they only provide limited relief and don't stop my big toes from bending so the pain continues when I walk. I've seen loads of orthotics for sale but am unsure which would help specifically with big toe
sijohn911
in
Arthritis Action
2 years ago
tocilizumab after relapse
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Devoid
in
PMRGCAuk
2 years ago
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arthritis in big toe
h Hi I have arthritis in my big toe and have had the steroid injections but they didn’t help, I have now been referred to the hospital for possible surgery, has anyone had the operation and could you tell me how you are after , can you bend your toe to walk normally are there any after effects, Thank
h Hi I have arthritis in my big toe and have had the steroid injections but they didn’t help, I have now been referred to the hospital for possible surgery, has anyone had the operation and could you tell me how you are after , can you bend your toe to walk normally are there any after effects, Thank
Dazbazbez
in
Arthritis Action
2 years ago
Adalimumab?
I’ve been reading posts about Adalimumab and I’m a bit confused. It seems to be called a few different names and also seems to be used alongside Methotrexate or something else. I will only be taking it on its own as I can’t take Methotrexate. Is anyone else using it on its own?
I’ve been reading posts about Adalimumab and I’m a bit confused. It seems to be called a few different names and also seems to be used alongside Methotrexate or something else. I will only be taking it on its own as I can’t take Methotrexate. Is anyone else using it on its own?
barbieg
in
NRAS
2 years ago
Bruising on arms and legs
Can anyone give me advice on bruising on my legs and arms for no apparent reason. I have rheumatoid arthritis and currently attending hospital for it. Also I’ve just developed sausage toe in my big toe. Badly swollen and all bruised. Many Thanks.
Can anyone give me advice on bruising on my legs and arms for no apparent reason. I have rheumatoid arthritis and currently attending hospital for it. Also I’ve just developed sausage toe in my big toe. Badly swollen and all bruised. Many Thanks.
Catr12
in
Pain Concern
2 years ago
GCA, now PMR & Rheumatoid Arthritis as well
Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in addition to GCA which I’ve had since July last year. I am currently on 12mg of Pred and have been trying to reduce to 11 which has been difficult
Hello everyone, I would be very grateful for your experiences and advice. I saw my rheumatologist last week and she has diagnosed PMR & Rheumatoid arthritis in addition to GCA which I’ve had since July last year. I am currently on 12mg of Pred and have been trying to reduce to 11 which has been difficult
Hidden
in
PMRGCAuk
2 years ago
Request - Real time experience Reco for the best haematologists in Portugal please
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Iwillwin123
in
PMRGCAuk
2 years ago
Not happy!!!
Hello everyone I have arthritis in many of my joints… my left wrist being the worst. I have been told for nearly 5 years that I do not have arthritis and that the pain I am suffering with is due to my fibromyalgia!! I wasn’t convinced. I asked for a second opinion (this hasn’t been a quick procedure
Hello everyone I have arthritis in many of my joints… my left wrist being the worst. I have been told for nearly 5 years that I do not have arthritis and that the pain I am suffering with is due to my fibromyalgia!! I wasn’t convinced. I asked for a second opinion (this hasn’t been a quick procedure
Dazakella2010
in
Arthritis Action
2 years ago
Rheumatoid Arthritis Mela
Join us on 13 October from 9:30am-4:00pm at Leicester Racecourse for our Rheumatoid Arthritis Mela event. The event is open to anyone who has RA, as well as their family members, friends or carers. You’ll have an opportunity to talk to others with the condition, hear from our guest speakers and Heath
Join us on 13 October from 9:30am-4:00pm at Leicester Racecourse for our Rheumatoid Arthritis Mela event. The event is open to anyone who has RA, as well as their family members, friends or carers. You’ll have an opportunity to talk to others with the condition, hear from our guest speakers and Heath
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Which Artritis
😔one of my fingers really swelled up after painting a long fence it was so sore. Then a year later it started in the joint in the top of my thumb near my wrist. UK doctor said arthritis and test was negative for RA. Went abroad just before lockdown and doctor said RA without the R factor? He
😔one of my fingers really swelled up after painting a long fence it was so sore. Then a year later it started in the joint in the top of my thumb near my wrist. UK doctor said arthritis and test was negative for RA. Went abroad just before lockdown and doctor said RA without the R factor? He
SunnyWorld
in
Arthritis Action
2 years ago
PMR becomes RA
I suffered from polymyalgia for two years and with no improvement and continuing high inflammation levels the diagnosis changed to rehumatoid arthritis. I wondered if anyone else had exeprienced this? The rheumatologist is now going through the process of trying to find the right treatment and am currently
I suffered from polymyalgia for two years and with no improvement and continuing high inflammation levels the diagnosis changed to rehumatoid arthritis. I wondered if anyone else had exeprienced this? The rheumatologist is now going through the process of trying to find the right treatment and am currently
jennyjournalist
in
PMRGCAuk
2 years ago
Pain - where my pain comes from!
My initial visit to the GP was as a result of Pain, this was the first thing I noticed. From the moment I got out of bed in my mid 40's I could not stand on my feet, the nearest experience I had faced previously in my life was glandular fever in my teens. (I have spoken with other fibro individuals
My initial visit to the GP was as a result of Pain, this was the first thing I noticed. From the moment I got out of bed in my mid 40's I could not stand on my feet, the nearest experience I had faced previously in my life was glandular fever in my teens. (I have spoken with other fibro individuals
does-the-NHS-work
in
Fibromyalgia Action UK
2 years ago
Amazon smile....
When i buy from Amazon I use amazon smile. I can't do a lot for charites, but i can do this. xxxx Dear Mrs sylvia Reynolds, This is your quarterly AmazonSmile donation notification. Your chosen charity, The National Rheumatoid Arthritis Society, recently received a quarterly donation of £562.56
When i buy from Amazon I use amazon smile. I can't do a lot for charites, but i can do this. xxxx Dear Mrs sylvia Reynolds, This is your quarterly AmazonSmile donation notification. Your chosen charity, The National Rheumatoid Arthritis Society, recently received a quarterly donation of £562.56
sylvi
in
NRAS
2 years ago
Low ESR and CRP levems
Hi all, I'm wondering if anyone can explain to me why some people get high ESR and CRP readings and some don't?! I'm one of the don'ts! I have been in such awful amount of pain and had my bloods done in advance of my rheumatologist appt next week. My ESR came in at 41 and CRP at 33, both essentially
Hi all, I'm wondering if anyone can explain to me why some people get high ESR and CRP readings and some don't?! I'm one of the don'ts! I have been in such awful amount of pain and had my bloods done in advance of my rheumatologist appt next week. My ESR came in at 41 and CRP at 33, both essentially
watercolours
in
PMRGCAuk
2 years ago
Latent arthritis or PMR
I have had PMR for five years, with classic shoulder and hip symptoms, initially and during flares. Never been able to get lower than 8.5mg Pred until this year. Now down to 6mg. Always slow taper - max 0.5 per month. Over the last month or so I have had increasing arthritis in hands. It is quite
I have had PMR for five years, with classic shoulder and hip symptoms, initially and during flares. Never been able to get lower than 8.5mg Pred until this year. Now down to 6mg. Always slow taper - max 0.5 per month. Over the last month or so I have had increasing arthritis in hands. It is quite
dmart7
in
PMRGCAuk
2 years ago
Steroid injection in knee - worth it?
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
Hello. I have inflammatory arthritis and have had knee pain for a few years, and a baker's cyst in my left knee. Scans also showed osteoarthritis and some mild effusion a year ago. Sometimes the pain is quite bad, especially on stairs. Sometimes it's only aggravated by activity. Sometimes there's barely
rmros
in
NRAS
2 years ago
F2F with rheumatologist
Had a f2f with rheumatologist last week . Really thorough appt. Gave me a steroid injection to get me through my dads funeral. Both agreed things continue to be very active . He said he wanted to go over my history and get back in touch after another blood test. Letter received this morning. New diagnosis
Had a f2f with rheumatologist last week . Really thorough appt. Gave me a steroid injection to get me through my dads funeral. Both agreed things continue to be very active . He said he wanted to go over my history and get back in touch after another blood test. Letter received this morning. New diagnosis
Hidden
in
NRAS
2 years ago
just getting started
hi im ,new to this as suffering from arthritis and bipolar it's been a little tough mentally and physically fir me . I know there are people worse off then me and are suffering more but I'm here to learn and for the help . Thankyou for reading this and fir patience too.
hi im ,new to this as suffering from arthritis and bipolar it's been a little tough mentally and physically fir me . I know there are people worse off then me and are suffering more but I'm here to learn and for the help . Thankyou for reading this and fir patience too.
Leotheloin
in
Couch to 5K
2 years ago
Motivate RA research study
The Motivate RA research study conducted by Liverpool John Moores University are currently looking for new participants. The study seeks to identify effective methods to help people with rheumatoid arthritis increase and maintain physical activity levels to benefit their physical and mental health. This
The Motivate RA research study conducted by Liverpool John Moores University are currently looking for new participants. The study seeks to identify effective methods to help people with rheumatoid arthritis increase and maintain physical activity levels to benefit their physical and mental health. This
Aribah-NRAS
NRAS
in
NRAS
2 years ago
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