The main characteristic of my major flares seems to be weakness and heaviness of my limbs, to the point that all my movements and walking pace slow down to the speed of a 90 year old (I'm 35). It's an effort to stay standing up or walk further than my kitchen.
Does anyone else get this?
I have UCTD plus some other autoimmune stuff. Rheumy is helpful and I'm on hydroxychloroquine, pregabalin, plus occasional steroid injections for these major flares (they do work), but I'm yet to understand what causes these or find anyone else that experiences this! It's such a strange symptom and really hard to explain to doctors, but it's actually the most disabling part of the disease as it means I struggle to leave the house
Thanks in advance!