Search
Search
About
Log in
Join
Experiences with
Stem cell and bone marrow transplants
Posts
Communities
3,811 public posts
Filter results
3RD COVID VACCINE SHOT TO BE APPROVED WITHIN DAYS
My post on getting a third shot on my own, without approval from the government, has had very wide readership on this site. It should be so, because it is perhaps one of the bigger concerns we all should have right now. Now the good news is that the government here in the US is about to approve a third
My post on getting a third shot on my own, without approval from the government, has had very wide readership on this site. It should be so, because it is perhaps one of the bigger concerns we all should have right now. Now the good news is that the government here in the US is about to approve a third
wizzard166
in
CLL Support
3 years ago
Decompensated cirrhosis and kidney failure
Mom (age 72) was diagnosed with decompensated cirrhosis with refractory ascites and HE. Soon after creatinine jumped to 7 and her kidney failed. Afterwards, she was on CAPD + rosavel, rifagut & weekly albumin. Also salt intake. Survived 28 months and left us due to heart attack and infection. Doctor
Mom (age 72) was diagnosed with decompensated cirrhosis with refractory ascites and HE. Soon after creatinine jumped to 7 and her kidney failed. Afterwards, she was on CAPD + rosavel, rifagut & weekly albumin. Also salt intake. Survived 28 months and left us due to heart attack and infection. Doctor
Saduser1
in
British Liver Trust
3 years ago
Reducing organ transplant side-effects
A new research project aims to use personalised anti-rejection medication to reduce the health risks that organ transplant patients experience following surgery. Third-year PhD student Sarah Dart, from The University of Western Australia’s Medical School, said her research aimed to optimise immunosuppressant
A new research project aims to use personalised anti-rejection medication to reduce the health risks that organ transplant patients experience following surgery. Third-year PhD student Sarah Dart, from The University of Western Australia’s Medical School, said her research aimed to optimise immunosuppressant
2greys
in
Lung Conditions Community Forum
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Removing native kidneys ?
Son had kidney transplant done 4/5 no rejection but Transplant kidney not turning on, it seems native kidney are still working. Dr's want to remove native kidneys any thoughts.
Son had kidney transplant done 4/5 no rejection but Transplant kidney not turning on, it seems native kidney are still working. Dr's want to remove native kidneys any thoughts.
Vicsmom
in
Kidney Transplant
3 years ago
THIRD SHOT BEING RECOMMENDED BY CDC FOR IMMUNOCOMPROMISED
As a follow up to my post last week about getting a third shot, news stories caught my eye yesterday that I thought I'd pass on. As a precursor to some who missed my first post, I took it on my own to get a third shot without authorization. Now it appears that the government in the US is likely to
As a follow up to my post last week about getting a third shot, news stories caught my eye yesterday that I thought I'd pass on. As a precursor to some who missed my first post, I took it on my own to get a third shot without authorization. Now it appears that the government in the US is likely to
wizzard166
in
CLL Support
3 years ago
Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
My journey of CKD 5
Hello everyone. I'm glad to join this group. Last year 9th March, 2020. I went to my family physician due to my swelling on my whole body, vomiting and nausea. Doctor suggest me labs after my labs. I diagnosed with creatinine up to 9.7. And very next day i got admitted in hospital. I spend 15 days in
Hello everyone. I'm glad to join this group. Last year 9th March, 2020. I went to my family physician due to my swelling on my whole body, vomiting and nausea. Doctor suggest me labs after my labs. I diagnosed with creatinine up to 9.7. And very next day i got admitted in hospital. I spend 15 days in
Waqar5000
in
Kidney Disease
3 years ago
Pimples on face
Hello. I got my kidney transplant a month ago. There are lots of pimples coming on my face after transplant. I think it because of heavy doses of post transplant medicines. Kindly suggest me the solution for this. Thank you
Hello. I got my kidney transplant a month ago. There are lots of pimples coming on my face after transplant. I think it because of heavy doses of post transplant medicines. Kindly suggest me the solution for this. Thank you
Waqar5000
in
Kidney Transplant
3 years ago
Quality of life on immunosuppressants
The side effects of the immunosuppressants have significantly decreased my quality of life. I felt better in kidney failure before dialysis started than I do now at five months post kidney transplant. I am 49, and I have a healthy diet and I have been pushing myself to get 30-40 minutes of cardiovascular
The side effects of the immunosuppressants have significantly decreased my quality of life. I felt better in kidney failure before dialysis started than I do now at five months post kidney transplant. I am 49, and I have a healthy diet and I have been pushing myself to get 30-40 minutes of cardiovascular
Tallyn
in
Kidney Transplant
3 years ago
Heart and double lung transplant
My name is Andy. I had a heart and double lung transplant 22 years ago. Still going strong. I’ve just joined this forum today. If you have any questions please feel free to contact me through this forum and I’ll be happy to answer questions about my experience
My name is Andy. I had a heart and double lung transplant 22 years ago. Still going strong. I’ve just joined this forum today. If you have any questions please feel free to contact me through this forum and I’ll be happy to answer questions about my experience
NinjaAndy
in
Lung Conditions Community Forum
3 years ago
New study yields insights into chronic rejection after lung transplantation
A study of lung tissue from patients with end-stage bronchiolitis obliterans syndrome (BOS) as a complication of lung transplantation yielded molecular and morphologic insights into the development of chronic rejection. These insights may help develop therapies to optimize long-term outcomes for lung
A study of lung tissue from patients with end-stage bronchiolitis obliterans syndrome (BOS) as a complication of lung transplantation yielded molecular and morphologic insights into the development of chronic rejection. These insights may help develop therapies to optimize long-term outcomes for lung
2greys
in
Lung Conditions Community Forum
3 years ago
Cirrhosis compensated/on opiods and other pain killers
Hi there, i suffer with a good amount of pain in right upper quadrant area. Consultants ALL tell me it cant have pain. I have compensated cirrhosis. I suffer from gall stones too, they were gonna remove but decided surgery not an option and decided to painmanagement. Despite i hving cirrhosis, they hv
Hi there, i suffer with a good amount of pain in right upper quadrant area. Consultants ALL tell me it cant have pain. I have compensated cirrhosis. I suffer from gall stones too, they were gonna remove but decided surgery not an option and decided to painmanagement. Despite i hving cirrhosis, they hv
lighthouse123
in
British Liver Trust
3 years ago
Kidney issues post liver transplant
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
TBSW
in
British Liver Trust
3 years ago
More on Covid vaccines and the inmunocompromised.
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Just saw this in the news and felt it was worth sharing. Lots of peopleScientists seek Covid protection boost for people with weakened immunity AFP, Jul 06, 2021, How effective are Covid vaccines if your immune system is compromised by HIV, cancer or a recent organ transplant? Faced with very little
Iupiter
in
CLL Support
3 years ago
Tocilizumab and coming off prednisolone
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Stkeyna
in
PMRGCAuk
3 years ago
Sodium / potassium
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Ballywilliam
in
PMRGCAuk
3 years ago
'Healthy' supplements are causing a rise in liver injuries - what to avoid
(I have taken this information from a Daily Express article – This is for information only) ACCORDING to new research, cases of severe liver injury linked to products claiming to promote muscle growth or weight loss are rising, with some severe cases leading to patients requiring liver transplants.
(I have taken this information from a Daily Express article – This is for information only) ACCORDING to new research, cases of severe liver injury linked to products claiming to promote muscle growth or weight loss are rising, with some severe cases leading to patients requiring liver transplants.
Richard-Allen
in
British Liver Trust
3 years ago
Third COVID-19 vaccine dose may prompt response in transplant recipients.
A third dose of the mRNA-1273 vaccine induces a serologic response in 49 percent of kidney transplant recipients who did not respond after receiving two doses, according to a research letter published online July 23 in the Journal of the American Medical Association. Ilies Benotmane, M.D., from Strasbourg
A third dose of the mRNA-1273 vaccine induces a serologic response in 49 percent of kidney transplant recipients who did not respond after receiving two doses, according to a research letter published online July 23 in the Journal of the American Medical Association. Ilies Benotmane, M.D., from Strasbourg
2greys
in
Lung Conditions Community Forum
3 years ago
If any one gives valuable suggestions.. I'm happy to hear
My father is a CKD patient with type 2 diabetes.. Recently he suffered with gangrene due to which his creatine levels are increasing..Now he is under dialysis whenever required.. We are planning kidney transplant.. We are in need of kidney.. So I want the details of websites in which we have to register
My father is a CKD patient with type 2 diabetes.. Recently he suffered with gangrene due to which his creatine levels are increasing..Now he is under dialysis whenever required.. We are planning kidney transplant.. We are in need of kidney.. So I want the details of websites in which we have to register
Pu_jitha
in
Kidney Transplant
3 years ago
Tocilizumab treatment?
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
Ozark
in
PMRGCAuk
3 years ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
713 results
Lung Conditions Community Forum
459 results
Kidney Transplant
447 results
View top 10 communities
Sort by
Most Relevant
Newest