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Stem cell and bone marrow transplants
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Kidney Transplant Waitlist
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
Jumbo1
in
Kidney Disease
3 years ago
Pleased to report the lump has left the building...đź‘Ťđź‘Ť
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Research- Transplant Protection Clothing- Feedback Welcome
Hi Everyone, hope you're all keeping well. I wanted to ask of your opinions to see if this idea I have is worth pursuing as a product. It is essentially seeing if this is something to investigate further. My backstory is that I had a kidney transplant at 17. Upon recovery I was interested in playing
Hi Everyone, hope you're all keeping well. I wanted to ask of your opinions to see if this idea I have is worth pursuing as a product. It is essentially seeing if this is something to investigate further. My backstory is that I had a kidney transplant at 17. Upon recovery I was interested in playing
Leggy1927
in
Kidney Transplant
3 years ago
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Re: WARWICK's ASCT Journey Begins Today...
He's not feeling terribly himself Eight (8) days into his
Stem
Cell
Transplant
, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again for Warwick... Here's the LINK, if you want to go say hello: https://www.mpn-mate.com/forum/viewtopic.php?
He's not feeling terribly himself Eight (8) days into his
Stem
Cell
Transplant
, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again for Warwick... Here's the LINK, if you want to go say hello: https://www.mpn-mate.com/forum/viewtopic.php?
socrates_8
in
MPN Voice
3 years ago
Kidney Disease Solution
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
ishymal
in
Kidney Disease
3 years ago
Fatigue and very hot flushes
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
AnniesRyder5
in
PMRGCAuk
3 years ago
NHS Organ Donation - Erin’s story
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
Richard-Allen
in
British Liver Trust
3 years ago
Let’s compare notes re: Covid vaccine
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
SOct91
in
Kidney Transplant
3 years ago
waiting list for Liver Transplant
Hello I am in waiting list for Liver Transplant anyone have idea how long take my turn for transplant. Thanks any please pray for my health.
Hello I am in waiting list for Liver Transplant anyone have idea how long take my turn for transplant. Thanks any please pray for my health.
MuzMuz
in
British Liver Trust
3 years ago
WARWICK's ASCT Journey Begins Today...
:D As the subject of this Post is about Warwick's Allogenic
Stem
Cell
Transplant
journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest...
:D As the subject of this Post is about Warwick's Allogenic
Stem
Cell
Transplant
journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest...
socrates_8
in
MPN Voice
4 years ago
Medicare is being terminated after having kidney transplant 3 years ago
I received a letter from SSA terminating my Medicare benefits. I am not able to work. What do I need to do to get help to pay for my medications?
I received a letter from SSA terminating my Medicare benefits. I am not able to work. What do I need to do to get help to pay for my medications?
Deneace68
in
Kidney Transplant
3 years ago
Altruistic donor starting my journey
I’m a 58 year old man. I’ve worked as a surgeon most of my adult life. I’m interested in donating one of my kidneys and the small lobe of my liver. I’d like to find someone deserving (any child) who may benefit from this. I’m not a transplant surgeon so I’m a bit new to this. My understanding is
I’m a 58 year old man. I’ve worked as a surgeon most of my adult life. I’m interested in donating one of my kidneys and the small lobe of my liver. I’d like to find someone deserving (any child) who may benefit from this. I’m not a transplant surgeon so I’m a bit new to this. My understanding is
drcuisine
in
Parents of Children with Kidney Disease
3 years ago
Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Rocky213
in
Pernicious Anaemia Society
3 years ago
Calling all liver transplant recipients
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Liver transplant anniversary
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Hbi1c
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Treeclimber62
in
Diabetes & Hypertension Help Society
3 years ago
Liver Transplant Support and Representation in day to day life. Can you help?
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
What a. To. Do. The past. Year. I. Not a clue.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Tricity125
in
Lung Conditions Community Forum
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
Reflux cholangitis
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
Passion123456
in
Children's Liver Disease Foundation
3 years ago
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