GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful. MRI every 3 months. MELD score was high. In Jan 2021 found 2 spots cancer at different place on top of my liver. Five radiation treatments. In Sept. 2020 started testing to get on the National Liver Transplant List . Placed on list Nov 23, 2020. Trying to figure out how I can lie flat to get my MRI on Jun 24 to assure cancer is gone. I have pleural effusion in my right lung—have had 5 thoracentesis done since 4/30/2021. They have removed 1.5 liters of fluid each time. Also…l have to take massive doses of lactose along with my xifaxin to keep the ammonia level in my liver down. I’ve had hepatic encephalopathy 5 times due to high ammonia and ended in in the hospital. That is scary..for 3 days you don’t make sense..can’t answer the doctors and scare your family to death. I don’t mean to scare anyone but my PBC progressed quickly. I’m thankful for the University Hospital (115 miles one way from my home one way) I go to, in addition to specialists I have nearer my home area. My CNP is wonderful and is on top of things. I have very few good days.
Miamomma
PBC OR NOT
How do I get a diagnosis of PBC? 
Newbie to the PBC Foundation 
Fasting and PBC
PBC
