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Spinal Fusion
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New to CMT
After two years bouncing from 1doctor/specialist my primary care doctor sent me to the University of Florida. There a wonderful neurologist quickly diagnosed me with CMT. That was my beginning of knowing what I was dealing with. I have been bed-ridden for over 2 years using a walker or wheel chair. A
After two years bouncing from 1doctor/specialist my primary care doctor sent me to the University of Florida. There a wonderful neurologist quickly diagnosed me with CMT. That was my beginning of knowing what I was dealing with. I have been bed-ridden for over 2 years using a walker or wheel chair. A
beachwine
in
Charcot-Marie-Tooth UK
7 years ago
1st Rituxan Infusion
Hi Everyone, I finally received funding for those Rituxan infusions. My first infusion is scheduled for 9am in the morning. Im having a pretty severe RA flare and I’m hoping this works PDQ. Im a little anxious after reading the different reactions people have had to this medicine. Most I have read say
Hi Everyone, I finally received funding for those Rituxan infusions. My first infusion is scheduled for 9am in the morning. Im having a pretty severe RA flare and I’m hoping this works PDQ. Im a little anxious after reading the different reactions people have had to this medicine. Most I have read say
Maat2002
in
NRAS
7 years ago
new
Hello. I'm new to the group. I'm a middle-aged male and I'm here to find out everything I can about Anxiety-related conditions, Selective Mutism in particular. My niece has been diagnosed with it. My sister and I suspect that we might have had it as kids.
Hello. I'm new to the group. I'm a middle-aged male and I'm here to find out everything I can about Anxiety-related conditions, Selective Mutism in particular. My niece has been diagnosed with it. My sister and I suspect that we might have had it as kids.
baryco
in
Anxiety Support
7 years ago
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Eye test
I was diagnosed with PMR in May this year and then with possible GCA, after seeing a rheumatologist, in August. I developed double vision but my eye tests showed no other problems and the double vision was corrected with prisms in the lenses of my glasses. I'm now finding that my vision is blurred -
I was diagnosed with PMR in May this year and then with possible GCA, after seeing a rheumatologist, in August. I developed double vision but my eye tests showed no other problems and the double vision was corrected with prisms in the lenses of my glasses. I'm now finding that my vision is blurred -
Janann25
in
PMRGCAuk
7 years ago
Confused with all these benefits
So as far as they are concerned after a l5-s1
spinal
fusion
in July , fibromyalgia and a history of depress I can work !!
So as far as they are concerned after a l5-s1
spinal
fusion
in July , fibromyalgia and a history of depress I can work !!
Bellydot
in
Fibromyalgia Action UK
7 years ago
Post Lung Surgery
In 2010 I had a bi-Lobectomy lung operation. Initially I had limited physiothrapy but apart from seeing the consultant every few months any form of rehabilitation was only available by application. I gave up and bought a indoor exercise bike, brilliant but lost motivation. Next walking the dog, still
In 2010 I had a bi-Lobectomy lung operation. Initially I had limited physiothrapy but apart from seeing the consultant every few months any form of rehabilitation was only available by application. I gave up and bought a indoor exercise bike, brilliant but lost motivation. Next walking the dog, still
lungho
in
Lung Conditions Community Forum
7 years ago
Christmas poem to friends, family & PSPers 2017
What’s happening with us? Firstly, Charlie was struck by a stroke I’m sure you’ll agree, it was no joke. But he didn’t get better, he began to fall down, He walked like a drunk and tripped like a clown. Aha! Said the medics ‘Parkinsonian you see” Then gave the diagnosis of P.S.P. What’s that
What’s happening with us? Firstly, Charlie was struck by a stroke I’m sure you’ll agree, it was no joke. But he didn’t get better, he began to fall down, He walked like a drunk and tripped like a clown. Aha! Said the medics ‘Parkinsonian you see” Then gave the diagnosis of P.S.P. What’s that
crab2093
in
PSP Association
7 years ago
Interaction between supplements and selegiline
I'm on selegiline. Noticed worsening of symptoms when started taking 5-HTP. When checked from WebMD , it was confirmed that it is a result of interaction between the two. Wondering if there are supplements also that interact with PD medications. I guess that there may be some excel sheet or table available
I'm on selegiline. Noticed worsening of symptoms when started taking 5-HTP. When checked from WebMD , it was confirmed that it is a result of interaction between the two. Wondering if there are supplements also that interact with PD medications. I guess that there may be some excel sheet or table available
Farooqji
in
Cure Parkinson's
7 years ago
Future triple arthrodesis
Greetings, It was suggested to me by my foot and ankle orthopedic doctor that I undergo a triple arthodesis to my Rt foot. I have a severe flatfoot that greatly overpronates (turns in) and my foot is off to the side. I do have difficulty walking and get numbness, burning and tingling with weight bearing
Greetings, It was suggested to me by my foot and ankle orthopedic doctor that I undergo a triple arthodesis to my Rt foot. I have a severe flatfoot that greatly overpronates (turns in) and my foot is off to the side. I do have difficulty walking and get numbness, burning and tingling with weight bearing
123foot
in
NRAS
7 years ago
Another update on my Double vision suspected MG?
Well here I am back on after being referred on to neurologist who i saw this week.after spending 18months under hospital optomology where I feel I've wasted so much time my double vision is at its worst with the puffy lids and can't open eyelids only in the mornings after sleep. Neurologist thinks
Well here I am back on after being referred on to neurologist who i saw this week.after spending 18months under hospital optomology where I feel I've wasted so much time my double vision is at its worst with the puffy lids and can't open eyelids only in the mornings after sleep. Neurologist thinks
Hidden
in
Thyroid UK
7 years ago
Drugs to Avoid with CMT
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy in Charcot Marie Tooth Disease link http://cmt.org.uk/wp-content/uploads/2015/04/NeuroMeds.pdf Proposed list of medications of concern to patients with CMT Definite
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy in Charcot Marie Tooth Disease link http://cmt.org.uk/wp-content/uploads/2015/04/NeuroMeds.pdf Proposed list of medications of concern to patients with CMT Definite
Hidden
in
Charcot-Marie-Tooth UK
7 years ago
Recent SCS Implant
Good morning to everyone. I've recently had a spinal cord stimulator implanted and whilst the spinal site is healing really well and I am getting pain relief, the battery unit implanted on my left side on my lower ribs is driving me mad!. It is extremely painful, sticks out quite considerably and precludes
Good morning to everyone. I've recently had a spinal cord stimulator implanted and whilst the spinal site is healing really well and I am getting pain relief, the battery unit implanted on my left side on my lower ribs is driving me mad!. It is extremely painful, sticks out quite considerably and precludes
StaticNomad
in
Pain Concern
7 years ago
Rituxan
Hi all, I have a question for everyone. I have had RA for many years now and have tried almost every medicine known without any benefit. My Rhuemetologist thinks this may be B-cell related autoimmune problems and is wanting to start Rituxan infusions asap but my co-pay is $1739.03. I cant afford this
Hi all, I have a question for everyone. I have had RA for many years now and have tried almost every medicine known without any benefit. My Rhuemetologist thinks this may be B-cell related autoimmune problems and is wanting to start Rituxan infusions asap but my co-pay is $1739.03. I cant afford this
Maat2002
in
NRAS
7 years ago
Dismissed from work for capability issues
Hi to you all, I have had lower back problems & nerve problems in my legs. I have had operations an also have a spinal cord stimulator fitted. Unfortunately nothing has worked so i am in pain 24/7. I am on a cocktail of pills every day. I have had periods of absence from work due to my condition & keep
Hi to you all, I have had lower back problems & nerve problems in my legs. I have had operations an also have a spinal cord stimulator fitted. Unfortunately nothing has worked so i am in pain 24/7. I am on a cocktail of pills every day. I have had periods of absence from work due to my condition & keep
gailoharvest
in
LSN
7 years ago
May or May Not have PC
I've gone through this rodeo several times before: Three years ago with t a ruptured disc, "The only choice for you is
spinal
fusion
." -pass, and have been healed by working out, stretching and chiro. High Cholesterol - for 25 years: "You MUST take statins!" - Nope, still here and hearty at 70.
I've gone through this rodeo several times before: Three years ago with t a ruptured disc, "The only choice for you is
spinal
fusion
." -pass, and have been healed by working out, stretching and chiro. High Cholesterol - for 25 years: "You MUST take statins!" - Nope, still here and hearty at 70.
13thwarrior
in
Advanced Prostate Cancer
7 years ago
Spinal cord stimulator: one year later
I have Complex regional pain syndrome in my left arm which occur due to a fracture to my ulnar styloid. In 2016 I had a spinal cord stimulator implanted to help control the pain and allow me to have use of my arm. I was lucky enough for it to work well for me. In feb 2017 I started training as a chef
I have Complex regional pain syndrome in my left arm which occur due to a fracture to my ulnar styloid. In 2016 I had a spinal cord stimulator implanted to help control the pain and allow me to have use of my arm. I was lucky enough for it to work well for me. In feb 2017 I started training as a chef
Haylou
in
Pain Concern
7 years ago
wrist arthrodesis- anyone had one
Hi, I have a date for a left wrist arthrodesis. I'm a bit scared. It seems like a successful operation and good for pain relief. My left wrist is pretty damaged from the RA and in constant pain. Often It's bearable and other times excruciating. I was told it would eventually fuse naturally but it could
Hi, I have a date for a left wrist arthrodesis. I'm a bit scared. It seems like a successful operation and good for pain relief. My left wrist is pretty damaged from the RA and in constant pain. Often It's bearable and other times excruciating. I was told it would eventually fuse naturally but it could
Melly68
in
NRAS
7 years ago
I’m new here
I was diagnosed in April of 2011 with metastatic Breast Cancer. I am being treated at Sloan Kettering in NYC. My metastasis had spread to lymph nodes, spine, and bone. I was treated with hormonal anti estrogen meds and participated in three clinical trials. No drama until spring of 2016 when I began
I was diagnosed in April of 2011 with metastatic Breast Cancer. I am being treated at Sloan Kettering in NYC. My metastasis had spread to lymph nodes, spine, and bone. I was treated with hormonal anti estrogen meds and participated in three clinical trials. No drama until spring of 2016 when I began
HarrietTheSpy
in
SHARE Breast Cancer Support
7 years ago
No concrete diagnosis yet
When I was 15 I had a major
spinal
fusion
and shortly after my surgery I began having severe joint pain. My surgeon suggested I had arthritis in my hips and knees from my conformation.
When I was 15 I had a major
spinal
fusion
and shortly after my surgery I began having severe joint pain. My surgeon suggested I had arthritis in my hips and knees from my conformation.
Dressagequeen
in
LUPUS UK
7 years ago
Anyone with spinal cord stimulator?
I'm considering one for neuropathy in my feet. Not diagnosed with MS yet (going to MS clinic on Thursday, yay!). My pain doc said it might be hard to get insurance to cover it for MS related pain. Curious if anyone else has one?
I'm considering one for neuropathy in my feet. Not diagnosed with MS yet (going to MS clinic on Thursday, yay!). My pain doc said it might be hard to get insurance to cover it for MS related pain. Curious if anyone else has one?
Qt314grl
in
My MSAA Community
7 years ago
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