After two years bouncing from 1doctor/specialist my primary care doctor sent me to the University of Florida. There a wonderful neurologist quickly diagnosed me with CMT. That was my beginning of knowing what I was dealing with. I have been bed-ridden for over 2 years using a walker or wheel chair. A weekend staying in bed with a good book & hot cocoa is a vacation. Two years of it is hell. I must admit pain meds and a loving supportive husband were the only way I survived. I haven't driven in over 2 years. Hubby does all shopping, cooking & cleaning I can't do. Shortness of breath led me to a pulmonologist. Only thing he discovered is that I have sleep apnea which is now taken care of with CPAP. my lung capacity is 84% which doctor said is ok for my 69 years of life. But let me walk to another room in house and I am gasping for air. Scary. As a child I was always described as weak, poor child...I felt different when I didn't want to be. Just a few years ago I tripped on a speed bump in parking lot & tore my Achilles tendon which took 2 surgeries, months of casts and getting married in a wheel chair (decorated in satin ribbons). lol. About 9 months afo I had a spinal cord stimulator implanted to "interfere with" peripheral neuropathy pain in my feet. It has not been a miracle, but does help some and I am taking less pain meds each day. I also have rheumatoid arthritris. Iwas an avid crocheter but had to quit. I couldn' feel the tension of the yarn in my hands. So now I read, watch TV, and can get lost in Pinterest for hours. Ask me why I don't get out of bed and sit with my hubby watching TV or eating at the table. That's where fatigue comes to call. I hate "him". Then shortness of breath follows, hate "her" too. I had had a good adult life, great career and hubby for 35 years. Now after being widowed, retired and moving to sunny Florida I never thought I would go downhill like this. My wheelchair wedding was a 2nd chance for love & happiness, which until these last couple of years have been wonderful (even rode on his Harley). Tomorrow is my 1st appointment to be fitted for AFOs. So hoping they will help with my lack of mobility. First goal, not having to sit to brush my teeth! Happy to have found all of you. I am learning from each of you. Number one. I am not alone.