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9 public communities
Neuro Support
2,024 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
Stanmore Young Spine Group
197 members
The Royal National Orthopaedic Hospital NHS Trust (RNOH) is the largest orthopaedic hospital in the UK, and is regarded as a leader in the field of orthopaedics both in the UK and world-wide. The RNOH provides a comprehensive range of neuro-musculoskeletal health care, ranging from acute spinal injury or complex bone tumour to orthopaedic medicine and specialist rehabilitation for chronic back pain sufferers. This broad range of services is unique within the NHS. As a national centre of excellence, the RNOH treats patients from across the country, many of whom have been referred by other hospital consultants for second opinions or for treatment of complex or rare conditions.
Cavernoma Alliance UK
439 members
We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma. What is a cavernoma? A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body. Frequency 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
Cervical Myelopathy
621 members
Cervical Myelopathy is caused by deterioration in the spine in the neck leading to compression of the spinal cord and symptoms such as “numb” and “clumsy” hands, loss of coordination, imbalance, bladder and bowel problems, and weakness that can progress to severe paralysis. The Cervical Myelopathy community is part of the myelopathy.org network founded in 2015 to raise worldwide awareness of cervical myelopathy to support patients, carers and professionals who live and deal with it. We understand that being diagnosed with Myelopathy is life changing. We also understand that talking about it will help. If you, or someone in your family, has been diagnosed with Myelopathy, We welcome you and We want to support you in your journey
Bone Health and Osteoporosis UK
5,974 members
This community is a welcoming and safe space for you to share your experiences, and we hope you’ll connect and find support with other people in a similar situation. Find our community guidelines here: https://healthunlocked.com/bonehealth/posts/150617024/b-community-guidelines-for-bone-health-and-osteoporosis-uk-b [b]Royal Osteoporosis Society[/b] We’re the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone living with osteoporosis or supporting someone. We equip people with practical information and support to take action on their bone health. • Visit our website https://theros.org.uk/, we have lots of fact sheets and booklets available to download and print, covering everything from general bone health, diagnosing osteoporosis and fragility fractures, osteoporosis drug treatments and living with spinal fractures. • What is Osteoporosis? Find our more through our information film https://youtu.be/DNExgVo8zsc?si=ArZ--vxYx6I_IclG • Join our membership - By becoming a Member of the ROS you can access exclusive benefits including your free book: All About Osteoporosis, Osteoporosis News magazines, a monthly member e-newsletter and so much more! The Royal Osteoporosis Society is a UK based organisation, and all of the content, information and support available here is based on UK treatments and care. If you’re from another country you may wish to look at these organisations: https://www.osteoporosis.foundation/our-network/the-committees#committee-of-national-societies [b]My Story[/b] Interested in telling your story to help us raise awareness of osteoporosis? Your real-life experiences help us engage with people who don't know about the condition. Email mystory@theros.org.uk and a member of the team will be in touch. For more information, visit https://theros.org.uk/how-you-can-help/get-involved/raise-awareness/share-your-story/ [b]Connect with us! [/b] Join our mailing list - https://theros.org.uk/ros-news-sign-up/ You tube - https://www.youtube.com/c/osteoporosissociety Facebook -https://www.facebook.com/RoyalOsteoSoc Instagram - https://www.instagram.com/royalosteosoc/ X - https://twitter.com/royalosteosoc
South West Wales Neurological Alliance
302 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.
deafPLUS
672 members
We are an online community supporting deaf, hard of hearing, visually impaired and older persons. Join us to share your experiences, discuss day-to-day challenges and support one another! This community is run by UK charity DeafPLUS which mission is to enable a better quality of life for people who are deaf, focusing on the person rather than the disability.
Sight Loss Support
253 members
We are a friendly support community for people living with or caring for someone with Sight Loss. Join to connect with others who understand! Why not share your story today: https://healthunlocked.com/sight-loss-support/write/
Macular Society
5,226 members
Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity in the UK determined to beat the fear and isolation of macular disease with world class research, and the best advice and support. Our research programme is focused on finding new treatments and a cure to Beat Macular Disease forever. To support people affected by macular disease now, the Macular Society provides a range of support, information and services. If you see someone with a "Helping Hand" badge by their name, this member has been recognized as someone who regularly contributes to the forum and helps others, this could be through sharing their own experiences with Macular conditions, giving some advice or ideas, or by signposting members to maybe call us directly to get more specific advice.