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Rate of Progression.
I know we are all unique and no two of us will have the same experience with Parkinson's disease. Still, I would appreciate any wisdom which more experienced people (5-10+ years post diagnosis) can provide. Did your disease progress in a fairly consistent manner or did it progress slowly at first and
I know we are all unique and no two of us will have the same experience with Parkinson's disease. Still, I would appreciate any wisdom which more experienced people (5-10+ years post diagnosis) can provide. Did your disease progress in a fairly consistent manner or did it progress slowly at first and
jimcaster
in
Cure Parkinson's
4 years ago
B12 deficiency not treated
(taking into account I have a failed
spinal
fusion
back syndrome and Fibromyalgia). First time I had B12 checked and it showed 79 - told I would need 6 injections over 2 weeks and had to wait a month for this. My Gp cannot diagnose as to why this is low and my intristic factor was normal.
(taking into account I have a failed
spinal
fusion
back syndrome and Fibromyalgia). First time I had B12 checked and it showed 79 - told I would need 6 injections over 2 weeks and had to wait a month for this. My Gp cannot diagnose as to why this is low and my intristic factor was normal.
djtw
in
Pernicious Anaemia Society
5 years ago
First Post
I was diagnosed when I was 9, had
spinal
fusion
surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a full-time stay-at-home Dad to a puppy - Henrik!
I was diagnosed when I was 9, had
spinal
fusion
surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a full-time stay-at-home Dad to a puppy - Henrik!
Lisbon67
in
Ataxia UK
5 years ago
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Going into Hospital Sunday😢
OK, so they are experimenting on me by changing from Dia-Morphine which I've had in my Medtronic Pump for the last 15 years which the body has become immune too! They are going to drain out the dia-morphine over a period of 2/3 days (that's going to be fun, not) and then once empty fill up with 50% Hydromorphone
OK, so they are experimenting on me by changing from Dia-Morphine which I've had in my Medtronic Pump for the last 15 years which the body has become immune too! They are going to drain out the dia-morphine over a period of 2/3 days (that's going to be fun, not) and then once empty fill up with 50% Hydromorphone
Del123
in
Pain Concern
5 years ago
Inulin - may help sleep and constipation
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
Ruby1
in
Thyroid UK
5 years ago
Artane anyone?
Hi Everyone, My husband's worst symptom is dystonia in his toes - we are really trying to alleviate this so he can run once again. Botox (well actually it was Dysport that was given to use due to insurance) has not helped. Movement Specialist recommened Artane. I was wondering if I could have some
Hi Everyone, My husband's worst symptom is dystonia in his toes - we are really trying to alleviate this so he can run once again. Botox (well actually it was Dysport that was given to use due to insurance) has not helped. Movement Specialist recommened Artane. I was wondering if I could have some
LearningAllICan
in
Cure Parkinson's
5 years ago
Double Vision
Has anyone experienced or has information about double vision or partial blurred vision in Parkinson’s patients?
Has anyone experienced or has information about double vision or partial blurred vision in Parkinson’s patients?
ramsey1717
in
Cure Parkinson's
5 years ago
Suspected PMR
I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid arthritis 18 months ago but only inflammation came up and liver abnormalities..I was recently referred to see a vascular specialist who has
I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid arthritis 18 months ago but only inflammation came up and liver abnormalities..I was recently referred to see a vascular specialist who has
pold68
in
PMRGCAuk
5 years ago
CDC Find Possable Cause For Vaping Deaths Lung Injury
Recent CDC laboratory testing of bronchoalveolar lavage (BAL) fluid samples (or samples of fluid collected from the lungs) from 29 patients with EVALI submitted to CDC from 10 states found vitamin E acetate in all of the BAL fluid samples. Vitamin E acetate is used as an additive in the production of
Recent CDC laboratory testing of bronchoalveolar lavage (BAL) fluid samples (or samples of fluid collected from the lungs) from 29 patients with EVALI submitted to CDC from 10 states found vitamin E acetate in all of the BAL fluid samples. Vitamin E acetate is used as an additive in the production of
Hidden
in
Lung Conditions Community Forum
5 years ago
Had my dressing changed on my back after spinal surgery
Doesn't look as bad as I thought it would and healing well 😀
Doesn't look as bad as I thought it would and healing well 😀
Kels1974
in
Pain Concern
5 years ago
A Win with the Endo! Also any Experience with ERFA here?
The last time I saw my Endo six months ago he told me that if my symptoms and labs didn’t improve he would let me try NDT. Since then I have felt worse, weight gain, hair loss, constantly cold, developed eczema for the first time in my life, muscle aches, etc. My most recent results from September
The last time I saw my Endo six months ago he told me that if my symptoms and labs didn’t improve he would let me try NDT. Since then I have felt worse, weight gain, hair loss, constantly cold, developed eczema for the first time in my life, muscle aches, etc. My most recent results from September
MrsBeasley
in
Thyroid UK
5 years ago
Eye Tests before and after GCA
Hello all. I developed PMR nearly two years ago and then GCA in February 2018, treated with Pred by infusion. Now down to 7mg / day. I've been reviewed by the eye hospital every 3-4 months and they've never been concerned about what they saw. My last eye test prior to GCA was about 5 years ago, since
Hello all. I developed PMR nearly two years ago and then GCA in February 2018, treated with Pred by infusion. Now down to 7mg / day. I've been reviewed by the eye hospital every 3-4 months and they've never been concerned about what they saw. My last eye test prior to GCA was about 5 years ago, since
Brizzleben
in
PMRGCAuk
5 years ago
Well
Well I have a vestibular disorder as since my last vertigo attack I have had high anxiety like I won't get up a won't do nothing. I'm convinced I'm dying slowly I have nothing left in me
Well I have a vestibular disorder as since my last vertigo attack I have had high anxiety like I won't get up a won't do nothing. I'm convinced I'm dying slowly I have nothing left in me
Sodown
in
Anxiety Support
5 years ago
Lupus and Fibromalgyia
I have had many surgeries inc
spinal
fusion
, hernia repair (x2). Ileo cystoplasty and many other smaller procedures. In a way I'm hoping they find something because my fibromalgyia is uncontrollable right now. I can't seem to find the right medication for me.
I have had many surgeries inc
spinal
fusion
, hernia repair (x2). Ileo cystoplasty and many other smaller procedures. In a way I'm hoping they find something because my fibromalgyia is uncontrollable right now. I can't seem to find the right medication for me.
Soniaarora
in
Fibromyalgia Action UK
5 years ago
Spinal cord issues including arachnoiditis
I have a spinal cord stimulator but still very much pain in my back. I also have have knee and ankle pain. I to take quite a number of pain meds daily. I’m wondering how long we will be able to continue on the meds. My daughter has spinal arachnoiditis and has just had to quit working. So very sad for
I have a spinal cord stimulator but still very much pain in my back. I also have have knee and ankle pain. I to take quite a number of pain meds daily. I’m wondering how long we will be able to continue on the meds. My daughter has spinal arachnoiditis and has just had to quit working. So very sad for
obriants
in
Pain Concern
5 years ago
Pain 10 years after a spinal fusion L5/S1
Hi All, Has anyone suffered an overwhelming increase in back pain following a
spinal
fusion
? I had mine 10 years ago now and although not 100%....had been doing alright in my retirement.
Hi All, Has anyone suffered an overwhelming increase in back pain following a
spinal
fusion
? I had mine 10 years ago now and although not 100%....had been doing alright in my retirement.
RedfoxMorse
in
Pain Concern
5 years ago
Fructooligosaccharide (FOS) and Galactooligosaccharide (GOS) Increase Bifidobacterium but Reduce Butyrate Producing Bacteria with Adverse ..
Fructooligosaccharide (FOS) and Galactooligosaccharide (GOS) Increase Bifidobacterium but Reduce Butyrate Producing Bacteria with Adverse Glycemic Metabolism in healthy young population https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5603605/#!po=22.0588 “With all the results together, we inferred that
Fructooligosaccharide (FOS) and Galactooligosaccharide (GOS) Increase Bifidobacterium but Reduce Butyrate Producing Bacteria with Adverse Glycemic Metabolism in healthy young population https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5603605/#!po=22.0588 “With all the results together, we inferred that
LAJ12345
in
Cure Parkinson's
5 years ago
High 5HT blood labs
Hi. Has anyone ever had high levels of serotonin in their blood work? I am aware it is linked to carcinoid syndrome. However my 5HIAA urine came back negative so this is a bit precarious. Please weigh in, if you know anything about this. TIA.
Hi. Has anyone ever had high levels of serotonin in their blood work? I am aware it is linked to carcinoid syndrome. However my 5HIAA urine came back negative so this is a bit precarious. Please weigh in, if you know anything about this. TIA.
Stm252
in
Behçet's UK
5 years ago
Lumbar spinal stenosis with PSP?
My husband also was diagnosed with severe lumbar
spinal
stenosis and it was recommended he have
spinal
fusion
. We are not going to do that at this point. Can't imagine adding that on top of everything else. The rehab would be nearly impossible.
My husband also was diagnosed with severe lumbar
spinal
stenosis and it was recommended he have
spinal
fusion
. We are not going to do that at this point. Can't imagine adding that on top of everything else. The rehab would be nearly impossible.
journeyofjoy
in
PSP Association
5 years ago
Hospice-ask your doctor and look into it.
Our neurologist recommended hospice for my husband in dec 2018. My father was dying and put off until now. We met, he was approved and I can’t tell you how helpful after one visit -all within an hour and a half. His lift recliner had broken, we got a new one this afternoon. He will get a hospital bed
Our neurologist recommended hospice for my husband in dec 2018. My father was dying and put off until now. We met, he was approved and I can’t tell you how helpful after one visit -all within an hour and a half. His lift recliner had broken, we got a new one this afternoon. He will get a hospital bed
susantigner
in
PSP Association
5 years ago
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