Lupus and Fibromalgyia

[Soniaarora]

Hi all I'm super new to this site. I was diagnosed 3 years ago and it's been downhill ever since. I'm now seeing a psychiatrist for my mental health and he suggested I go back to my rheumatologist and ask to be rechecked. He thinks I may have something else either Lupus or something else. I do contract work 3 days and sleep the others, but working is getting harder and harder. I was also hla 27b positive. I would love some support. I'm so down and feel guilty all the time. I'm 48 and have always had a huge career. I have had many surgeries inc spinal fusion, hernia repair (x2). Ileo cystoplasty and many other smaller procedures.

In a way I'm hoping they find something because my fibromalgyia is uncontrollable right now. I can't seem to find the right medication for me. I'm on Morphgesic and duloxetine coming off venlafaxine which did help initially.

Thank you in advance.

[stephen111]

Hi What has helped me was tramadol I can lead a normal life have been on it for about 8 years. You must also look at diet. also take probiotics and magnesium which I believe helps. Tramadol takes pain and fatigue away and can feel normal again

[Soniaarora in reply to stephen111]

Thank you, actually it's been so long since I took my magnisium, I'll restart that immediately. Unfortunately with duloxetine I can't take tramadol. Thank you so much for response. Xxx

[rosewine]

Sorry that your health seems to be going backwards. The main thing that has helped me with fibro is Pregablin (lyrica) but I know it doesn't suit everyone. Unfortunately, I had to accept that I would have to give up work which was a big wrench as I loved my job but a least know it enables me to rest on the bad days and pace my life more so it has made the fibro easier to cope with. I do hope that you find something that helps you.x

[Soniaarora in reply to rosewine]

Thank you for your response. 🙏🏼I am struggling to come to terms with the changes. I'm working through that.

[VintageMustard]

Look into Palexia/tapentadol. It helps me considerably.

[Soniaarora in reply to VintageMustard]

OK I will for sure, thank you x

[klr31]

Have you checked your thyroid function?

[Soniaarora in reply to klr31]

Last time they did the test it was fine. But good idea to repeat it. Thank you xx

[klr31 in reply to Soniaarora]

Yes, it's good to repeat it and check yourself too.

Karen

[Suin in reply to Soniaarora]

Ask for a printout of the results and post them in the thyroid community