First Post: Hi there. Just an introductory post... - Ataxia UK

Ataxia UK

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Lisbon67 profile image
9 Replies

Hi there. Just an introductory post. My name's Connor, I have FA, and I'm 24. I was diagnosed when I was 9, had spinal fusion surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a full-time stay-at-home Dad to a puppy - Henrik!

If anyone would like to chat or ask a question then please don't hesitate to get in touch.

Below is a link to a blog post I wrote at the start of the year about my journey with FA.

ataxiashatterslives.wordpre...

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Lisbon67 profile image
Lisbon67
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9 Replies
Veteran250 profile image
Veteran250

Hi Connor, I’ve been reading your blog since I got up this morning, and I think anyone with Ataxia, or anyone with a family member who has Ataxia should read it, I recommend it.

Having said that, I have only got as far as your photos, and will continue after breakfast. 😀👍

Don😀👍

Lisbon67 profile image
Lisbon67 in reply to Veteran250

Thank you Don. Really appreciate you taking the time to read it.

Connor

Veteran250 profile image
Veteran250 in reply to Lisbon67

Got sidetract but will continue later, about to start chapter five.

I have symptoms for FA, shaking hands since a small boy(I’m 75 now) walking problems, falling over, walk with wide gait indoors, have to use electric powerchair when out and about around town, diabetes, epilepsy......Could never write with joined up writing, always printed in block capitals because of hand shake..... even now only manage about half dozen words before hand starts violent shaking..... 🤨

weegiz12345 profile image
weegiz12345

Welcome Connor Am so pleased you’ve come on here. Hopefully you’ll make lots of new friends. Remember no question is too daft.

Louise xx

Lisbon67 profile image
Lisbon67 in reply to weegiz12345

Thank you for introducing it to me Louise!

Connor xx

february profile image
february

Dear Lisbon67, A HUGE welcome to this site! You'll find many wonderful people on here for support and advice! BTW, love the name for your puppy!!! My best to you..., ;o)

Lisbon67 profile image
Lisbon67 in reply to february

Thank you!!

HarryB profile image
HarryBAdministrator

Hi Connor

Thanks for the mention in the blog and for following me on this site!

I hope all is good with you.

Harriet

Lisbon67 profile image
Lisbon67 in reply to HarryB

Hi Harriet

.

Thanks for giving it a read!😊

Hope you're well.

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