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Endometriosis
Hi everyone, I have been diagnose with endometriosis since last year and has had a laparoscopy done in sept 2017,as i was trying to get pregnant and i was unable,but unfortunately during the surgery they found out is has affect my bowel and my tube was sluggish and basically kissing ovaries,they managed
Hi everyone, I have been diagnose with endometriosis since last year and has had a laparoscopy done in sept 2017,as i was trying to get pregnant and i was unable,but unfortunately during the surgery they found out is has affect my bowel and my tube was sluggish and basically kissing ovaries,they managed
Wen09
in
Endometriosis UK
6 years ago
Second surgery in london
Hello everyone x Just thought I would share my experiences of second surgery because I know there are a couple of ladies ready for the same xx I was told in early December I had a 8-10cm recurrence on my bowel very close to the rectum and that I might be eligible for second surgery as the new data (although
Hello everyone x Just thought I would share my experiences of second surgery because I know there are a couple of ladies ready for the same xx I was told in early December I had a 8-10cm recurrence on my bowel very close to the rectum and that I might be eligible for second surgery as the new data (although
Bettyxxx
in
My Ovacome
7 years ago
Sore stoma site
I have been experiencing a very sore stomach site, does anyone have any advice ?
I have been experiencing a very sore stomach site, does anyone have any advice ?
Viclee14
in
Living with a Stoma
7 years ago
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Stoma worries
Hi all, Wondered if anyone could provide any reassurance? I am due to have my second lap on Friday to excise my recto vaginal endo. I’ve had a MRI and sigmoidoscopy and been told it hasn’t perforated my bowel and colorectal surgeon told me (quite dismissively) that I definitely won’t need a stoma as
Hi all, Wondered if anyone could provide any reassurance? I am due to have my second lap on Friday to excise my recto vaginal endo. I’ve had a MRI and sigmoidoscopy and been told it hasn’t perforated my bowel and colorectal surgeon told me (quite dismissively) that I definitely won’t need a stoma as
Cleo1986
in
Endometriosis UK
7 years ago
NHS winter pressures!
Had CT scan from top to toe on 27th December with follow up appt. at end of January which seemed ages since I first saw consultant and now outpatient appts.have been rescheduled for end of February.I don’t think problems are a recurrence of the cancer for the sixth time,more likely adhesions or strictures
Had CT scan from top to toe on 27th December with follow up appt. at end of January which seemed ages since I first saw consultant and now outpatient appts.have been rescheduled for end of February.I don’t think problems are a recurrence of the cancer for the sixth time,more likely adhesions or strictures
tutti
in
My Ovacome
7 years ago
Week 8 run 1
Soma
quick question and advice I’ve been reading run fat bitch run and the writer talks about running for 5 days per week with two rest days. So far I have stuck to advice if run one day rest the next but I am really keen to get my speed up cos I’m so slow 🐢 do we think this may help?
Soma
quick question and advice I’ve been reading run fat bitch run and the writer talks about running for 5 days per week with two rest days. So far I have stuck to advice if run one day rest the next but I am really keen to get my speed up cos I’m so slow 🐢 do we think this may help?
Angie7367
Graduate
in
Couch to 5K
7 years ago
Battle lost
Christmas Day 2015 my husband complained of food and then drink getting ‘stuck’ After a visit to doctor and sent for endoscopy, biopsy, he was diagnosed with oesphogasus cancer. After 8 rounds of chemo had Ivor Lewis op with a view to a cure. The op didn’t go according to plan, complications and 4 ops
Christmas Day 2015 my husband complained of food and then drink getting ‘stuck’ After a visit to doctor and sent for endoscopy, biopsy, he was diagnosed with oesphogasus cancer. After 8 rounds of chemo had Ivor Lewis op with a view to a cure. The op didn’t go according to plan, complications and 4 ops
Hidden
in
Oesophageal & Gastric Cancer
7 years ago
Living with bowel endo!
I just wanted to find out how others deal with the day to day management of bowel endo. I have stage 4 endo which affects my sigmoid colon. I have had a sigmoidoscopy and biopsy done which confirm this (and thankfully rules out any other causes) and two laparoscopies one in 2014 and one in October this
I just wanted to find out how others deal with the day to day management of bowel endo. I have stage 4 endo which affects my sigmoid colon. I have had a sigmoidoscopy and biopsy done which confirm this (and thankfully rules out any other causes) and two laparoscopies one in 2014 and one in October this
Jaffacake3719
in
Endometriosis UK
7 years ago
Stable
Was at oncologist on Wed after 3 weeks in hospital for bowel surgery now have a stoma she got the report from bowel that was taking out it was all dead cancer and scar tissue that caused blockage I ask if I was stable she said better than stable what does this mean I have to get a scan in 3 weeks and
Was at oncologist on Wed after 3 weeks in hospital for bowel surgery now have a stoma she got the report from bowel that was taking out it was all dead cancer and scar tissue that caused blockage I ask if I was stable she said better than stable what does this mean I have to get a scan in 3 weeks and
Friscok12
in
My Ovacome
7 years ago
Where’s my period?
So I had a laparotomy end of july. Prior to this On 2nd of may I had a prostap injection (3 month dose) Laparotomy was quite extensive, removed from almost everywhere from bowel to lungs! Came out of surgery with uretal bi lateral stents and a stoma after having to do a vowel resection. Have had
So I had a laparotomy end of july. Prior to this On 2nd of may I had a prostap injection (3 month dose) Laparotomy was quite extensive, removed from almost everywhere from bowel to lungs! Came out of surgery with uretal bi lateral stents and a stoma after having to do a vowel resection. Have had
katie26
in
Endometriosis UK
7 years ago
Mandatory pip
Just received a letter today and wasn't successful again no points awarded really don't know what else I can say they have the cheek to say that I know when to respond to my name getting called and that my antidepressants are controlling my depression even although I have a stoma as a result of bowel
Just received a letter today and wasn't successful again no points awarded really don't know what else I can say they have the cheek to say that I know when to respond to my name getting called and that my antidepressants are controlling my depression even although I have a stoma as a result of bowel
Sharon-68
in
Fibromyalgia Action UK
7 years ago
BLOOD TRANSFUSIONS DUE TO LOW RED BLOOD COUNT
hi everyone hope someone can help me, my mum is 77 years old and for the last 20 months things havnt been going well for her, firstly she had been on steroids for polymyalgia for 2 years and this made her bones brittle so in december 2015 she had back pain so severe she had to go to hospital and she
hi everyone hope someone can help me, my mum is 77 years old and for the last 20 months things havnt been going well for her, firstly she had been on steroids for polymyalgia for 2 years and this made her bones brittle so in december 2015 she had back pain so severe she had to go to hospital and she
lindylou1964
in
Pain Concern
7 years ago
No its not Ok!
Hi, I have Crohn's/Colitis as diagnosed and I have a twisted small bowel, adhesions, incontinence , osteoporosis, crumbling at the base of my spine, Crohns, chronic pain, chronic fatigue and permanent nerve damage in the area where my anus and rectum used to be' I have had them removed' all due to many
Hi, I have Crohn's/Colitis as diagnosed and I have a twisted small bowel, adhesions, incontinence , osteoporosis, crumbling at the base of my spine, Crohns, chronic pain, chronic fatigue and permanent nerve damage in the area where my anus and rectum used to be' I have had them removed' all due to many
silverbadger
in
Crohn's and Colitis Support
7 years ago
I never in the world imagined this would happen to me!
I'm not sure if I am aloud to post this here so feel free to remove it. Hi, I have a twisted small bowel, adhesions, incontinence , osteoporosis, crumbling at the base of my spine, Crohns, chronic pain, chronic fatigue and permanent nerve damage in the area where my anus and rectum used to be' I have
I'm not sure if I am aloud to post this here so feel free to remove it. Hi, I have a twisted small bowel, adhesions, incontinence , osteoporosis, crumbling at the base of my spine, Crohns, chronic pain, chronic fatigue and permanent nerve damage in the area where my anus and rectum used to be' I have
silverbadger
in
Pain Concern
7 years ago
Back where I started!
Regular follow-ups and then my
soma
started to stop working. Had tablets to take care of the Crohns but the pain got worse and worse. 18 months later I had a op to remove a hernia, they did not find a hernia but the wound became very infected and I developed fistulas around the stoma.
Regular follow-ups and then my
soma
started to stop working. Had tablets to take care of the Crohns but the pain got worse and worse. 18 months later I had a op to remove a hernia, they did not find a hernia but the wound became very infected and I developed fistulas around the stoma.
silverbadger
in
Crohn's and Colitis Support
7 years ago
Enjoy the good times
Hello lovelies I’m writing this from my wonderful holiday in Florida with all the family. While I’m laying on my sun lounger at Typhoon Lagoon listening to the Beach Boys (all theme parked out lol) I’m thinking how lucky and privileged I am to be here, 6 months post first line NED. When we booked it
Hello lovelies I’m writing this from my wonderful holiday in Florida with all the family. While I’m laying on my sun lounger at Typhoon Lagoon listening to the Beach Boys (all theme parked out lol) I’m thinking how lucky and privileged I am to be here, 6 months post first line NED. When we booked it
Hidden
in
My Ovacome
7 years ago
PRIVATE LIFE
I HAVE HAD MY STOMA FOR JUST OVER A YEAR NOW. HAPPY BIRTHDAY TO ME. THIS IS MY SECOND STOMA, HAD A REVERSAL AFTER MY FIRST BUT IT ALL WENT PETE TONG AGAIN. MY PROBLEM THIS TIME IS - MY BITS AND BOBS HAVE SHRUNK TO ABOUT 50% OF THEIR NORMAL SIZE. HAS ANYONE ELSE ENCOUNTERED THIS AND IF SO DOES IT
I HAVE HAD MY STOMA FOR JUST OVER A YEAR NOW. HAPPY BIRTHDAY TO ME. THIS IS MY SECOND STOMA, HAD A REVERSAL AFTER MY FIRST BUT IT ALL WENT PETE TONG AGAIN. MY PROBLEM THIS TIME IS - MY BITS AND BOBS HAVE SHRUNK TO ABOUT 50% OF THEIR NORMAL SIZE. HAS ANYONE ELSE ENCOUNTERED THIS AND IF SO DOES IT
mrcullen
in
Living with a Stoma
7 years ago
I might be heading for a bowel resection for endometriosis. Has anyone else had one? How was it?
I am quite scared of waking up with a stoma and hopefully won't be permanent as they have warned I may need one. It could only be for 3 months. I have 2 large nodules on bowel one is 5cm. Trying not to lose the plot as I also want to have a baby through ivf and I'm nearly 39. How long do I wait to try
I am quite scared of waking up with a stoma and hopefully won't be permanent as they have warned I may need one. It could only be for 3 months. I have 2 large nodules on bowel one is 5cm. Trying not to lose the plot as I also want to have a baby through ivf and I'm nearly 39. How long do I wait to try
EK20
in
Endometriosis UK
7 years ago
Debulking surgery
I had my debulking surgery 2 weeks ago today. Initially I did very well after the long op and also had acbowel resection at the same time in preparation for a stoma reversal. I am having real problems eating as I feel constantly full. Did anyone else have this problem and when did it start to resolve
I had my debulking surgery 2 weeks ago today. Initially I did very well after the long op and also had acbowel resection at the same time in preparation for a stoma reversal. I am having real problems eating as I feel constantly full. Did anyone else have this problem and when did it start to resolve
Eriksendi
in
My Ovacome
7 years ago
Sleeping position
I’m curious to know if any of my fellow ostomates manage to sleep on their sides? If so, any top tips? I generally struggle with leakage due to a retracted Stoma & pancreatic insufficiency which means o find it difficult to break food down when I digest it. I manage this with convex rings & Sensure Mio
I’m curious to know if any of my fellow ostomates manage to sleep on their sides? If so, any top tips? I generally struggle with leakage due to a retracted Stoma & pancreatic insufficiency which means o find it difficult to break food down when I digest it. I manage this with convex rings & Sensure Mio
MrsD-unit
in
Living with a Stoma
7 years ago
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