PRIVATE LIFE: I HAVE HAD MY STOMA FOR... - Living with a Stoma

Living with a Stoma

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PRIVATE LIFE

mrcullen profile image
4 Replies

I HAVE HAD MY STOMA FOR JUST OVER A YEAR NOW. HAPPY BIRTHDAY TO ME. THIS IS MY SECOND STOMA, HAD A REVERSAL AFTER MY FIRST BUT IT ALL WENT PETE TONG AGAIN. MY PROBLEM THIS TIME IS - MY BITS AND BOBS HAVE SHRUNK TO ABOUT 50% OF THEIR NORMAL SIZE. HAS ANYONE ELSE ENCOUNTERED THIS AND IF SO DOES IT RESOLVE ITSELF? I HAVE TOLD MY DOC BUT HE JUST SENDS ME FOR MORE BLOOD TESTS.

REGARDS

PRIVATE PARTS (JUST)

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mrcullen profile image
mrcullen
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Jiggs profile image
Jiggs

I think about those things too , but have no suggestion other than “use it or lose...”. if you can. Find a partner who is accepting and fun and enjoy life. I wish there was a tape or plug available for short duration. Does anyone know?

Howlinwolf999 profile image
Howlinwolf999 in reply toJiggs

I hated my bag flapping about when we first started having sex after my surgery, I have always preferred the clear bag so I can monitor the output and wash it out when emptying at home, but for someone else to see the output could be off putting. Nowadays before we get started I empty and wash out my bag and I also wear my swim wrap which both stops the bag flapping about and also nicely covers it up.

Jaxie64 profile image
Jaxie64 in reply toHowlinwolf999

Hi there

Could you tell me where you got a swim wrap from please. It sounds very useful.

Thank you

Huggs Jacqueline

Howlinwolf999 profile image
Howlinwolf999 in reply toJaxie64

Hi

It depends on which country you are in. I used to get my swim wraps from ostomysecrets.co.uk however, they have ceased supplying in the UK. I originally found the wraps on ostomysecrets.com but unfortunately, they don’t ship to the UK. I have been having a lot of trouble finding an alternative supplier and I have recently found a UK company that provides a unisex Hernia Support Breathable Tube Belt and in fact it is better than the OstomySecrets wrap and gives better support (I have a parastomal hernia) and it is available on prescription in the UK. See suportx.co.uk/products/hern...

I hope this helps, let me know how you get on.

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