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Scuba Diving
Life after my surgery. I can report that I had no problems with my ile stoma or appliances when I had my first dive in Lanzarote yesterday. I did have a problem with the first Dive Adventure business though who said because I had ileostomy I would not be able to dive. Full stop. Sorry. Like there was
Life after my surgery. I can report that I had no problems with my ile stoma or appliances when I had my first dive in Lanzarote yesterday. I did have a problem with the first Dive Adventure business though who said because I had ileostomy I would not be able to dive. Full stop. Sorry. Like there was
bern65
in
Living with a Stoma
6 years ago
Stoma babies
Hi Everyone, This is my first post. I wanted to ask if anyone has had a baby with a stoma/anorectal malformation? Our 4 month old baby boy is coming up to his second operation, having had the first at 1 day old, and I'd love to talk to other families who have been/are going through a similar journey
Hi Everyone, This is my first post. I wanted to ask if anyone has had a baby with a stoma/anorectal malformation? Our 4 month old baby boy is coming up to his second operation, having had the first at 1 day old, and I'd love to talk to other families who have been/are going through a similar journey
JBullivant
in
ERIC
6 years ago
Things have not been great ....
I have spent the last week in Whipps X , my local in East London , fighting a very nasty fever . Investigated every bit of my body and liased admirably with team at UCH . Fever under control , bowels only just , so probably infection / inflamation coming from bowel and pelvis area .... In the process
I have spent the last week in Whipps X , my local in East London , fighting a very nasty fever . Investigated every bit of my body and liased admirably with team at UCH . Fever under control , bowels only just , so probably infection / inflamation coming from bowel and pelvis area .... In the process
angeladale
in
My Ovacome
6 years ago
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Stomach pains with caelyx
Hello ladies Im new here but have been taking your advise. I'm on day 10 of second line Caelyx (recurrence after after 3 months) the first week was pretty much the same as carbo/taxol but yesterday developed really bad stomach pains although I have got a stoma as well and so the Diareah has been worse
Hello ladies Im new here but have been taking your advise. I'm on day 10 of second line Caelyx (recurrence after after 3 months) the first week was pretty much the same as carbo/taxol but yesterday developed really bad stomach pains although I have got a stoma as well and so the Diareah has been worse
Mrsf49
in
My Ovacome
6 years ago
Well , it's all been a bit of a winder !
Quick call CH up . Six lots of chemo since 2011 , one trial on pembrolizumab ....and since November , funny bowels ! Just needed to keep going to the loo and couldn't leave the house for fear I would get caught short ! Ct scan two weeks ago showed stable disease , some on the march , and one large ,
Quick call CH up . Six lots of chemo since 2011 , one trial on pembrolizumab ....and since November , funny bowels ! Just needed to keep going to the loo and couldn't leave the house for fear I would get caught short ! Ct scan two weeks ago showed stable disease , some on the march , and one large ,
angeladale
in
My Ovacome
6 years ago
Good morning all, I have endrometerosis stage 4. I have had three operations already. I am now due my forth as my left ovary and bowel ar
Me Good morning all, I have endrometerosis stage 4. I have had three operations already. I am now due my forth as my left ovary and bowel are all joined together. Ihave am edrometeroma on my left ovary, they said they probably not be able to save the left ovary that it will need to be removed and I need
Me Good morning all, I have endrometerosis stage 4. I have had three operations already. I am now due my forth as my left ovary and bowel are all joined together. Ihave am edrometeroma on my left ovary, they said they probably not be able to save the left ovary that it will need to be removed and I need
Leannef
in
Endometriosis UK
6 years ago
Confused about food
Can you eat coconut with a Stoma am confused even though I’m a chef?
Can you eat coconut with a Stoma am confused even though I’m a chef?
Kiowa1955
in
Living with a Stoma
6 years ago
Compression garment with a stoma?
I've developed Lymphedema after bladder and 28 lymphnodes removed recently. My certified lymphedema therapist had me get a capri type compression garment that goes from the waist to below the knees. I don't feel good about covering my stoma and pouch with the tight garment, fearing it could slow or stop
I've developed Lymphedema after bladder and 28 lymphnodes removed recently. My certified lymphedema therapist had me get a capri type compression garment that goes from the waist to below the knees. I don't feel good about covering my stoma and pouch with the tight garment, fearing it could slow or stop
2198224
in
LSN
6 years ago
Hello questions
Have been dealing with anxiety for to years
soma
days are worse so I'm told that owls mean something like something will happen death don't know if true so I heard one acouple days ago and has me freaked out besides that I'm super scared to go out and try to avoid going out :(
Have been dealing with anxiety for to years
soma
days are worse so I'm told that owls mean something like something will happen death don't know if true so I heard one acouple days ago and has me freaked out besides that I'm super scared to go out and try to avoid going out :(
Luz-
in
Anxiety Support
7 years ago
Swimming ........
I was diagnosed in June 2017 with stage 3 PPC. I've had two surgeries plus chemo and have a stoma. Today for the first time since my diagnosis, I went swimming to our local pool. Managed 10 very slow lengths.......
I was diagnosed in June 2017 with stage 3 PPC. I've had two surgeries plus chemo and have a stoma. Today for the first time since my diagnosis, I went swimming to our local pool. Managed 10 very slow lengths.......
Eriksendi
in
My Ovacome
6 years ago
Time for a much needed giggle..
Hi lovely people I thought I’d give you a bit of a giggle and tell you about my morning... I finally plucked up the courage to go to a shopping centre by myself.. I’ve been finding it tough after major surgery resulting in a stoma... I decided to wear one of my wigs for a change. Well as I left my house
Hi lovely people I thought I’d give you a bit of a giggle and tell you about my morning... I finally plucked up the courage to go to a shopping centre by myself.. I’ve been finding it tough after major surgery resulting in a stoma... I decided to wear one of my wigs for a change. Well as I left my house
Jonich
in
My Ovacome
6 years ago
Worried about the colour
Hi I had my Stoma done 14 months ago and occasionally my output is green even though I drink plenty! I do get plenty of tummy ache! I’m in control of what I eat so can’t understand it? Any answers please?
Hi I had my Stoma done 14 months ago and occasionally my output is green even though I drink plenty! I do get plenty of tummy ache! I’m in control of what I eat so can’t understand it? Any answers please?
Kiowa1955
in
Living with a Stoma
6 years ago
Protruding Partial external biliary drain stoma due to excessive coughing
My daughter has a PEBD (stoma) and it seems to be very protruded due to excessive coughing. I'm just wondering if it is normal. It has happened before but not as much as this. Thanks Stacey
My daughter has a PEBD (stoma) and it seems to be very protruded due to excessive coughing. I'm just wondering if it is normal. It has happened before but not as much as this. Thanks Stacey
Stacian
in
Children's Liver Disease Foundation
6 years ago
Concerned mum
Hi, I'm probably not a usual user but I am fraught with worry. My daughter is 28 and has stage 4 endometriosis. She recently had perforated bowel due to investigations which resulted in sepsis. The endometriosis has grown through to her bowel and she now has a stoma. The plan is to remove as much endometriosis
Hi, I'm probably not a usual user but I am fraught with worry. My daughter is 28 and has stage 4 endometriosis. She recently had perforated bowel due to investigations which resulted in sepsis. The endometriosis has grown through to her bowel and she now has a stoma. The plan is to remove as much endometriosis
Jo15
in
Endometriosis UK
6 years ago
Overthinking
Hello lovelies Hope you are all doing ok I have just returned from a wonderful holiday to Miami and the Bahamas with my fantastic husband Kevin, it was to celebrate his 60th which is today. We flew back overnight and I managed to embarrass him on the plane by getting an announcement to the whole plane
Hello lovelies Hope you are all doing ok I have just returned from a wonderful holiday to Miami and the Bahamas with my fantastic husband Kevin, it was to celebrate his 60th which is today. We flew back overnight and I managed to embarrass him on the plane by getting an announcement to the whole plane
Hidden
in
My Ovacome
6 years ago
Iliostomy
Developed from bowel obstruction from ov ca. Need tips about any low fibre safe food like any type of salad ? Going on vacation and worried about meals and swimming with ostomy bag.
Developed from bowel obstruction from ov ca. Need tips about any low fibre safe food like any type of salad ? Going on vacation and worried about meals and swimming with ostomy bag.
sandyhopes
in
My Ovacome
6 years ago
Never give up!
Three and a half years now and still all clear. Diagnosed with stage 3c, had debulking surgery and a stoma, 3 months chemotherapy and never looked back. I lost my gorgeous red curls, my husband of 38 years left me and my family home was sold. I live my life very differently now at 60 and am happier
Three and a half years now and still all clear. Diagnosed with stage 3c, had debulking surgery and a stoma, 3 months chemotherapy and never looked back. I lost my gorgeous red curls, my husband of 38 years left me and my family home was sold. I live my life very differently now at 60 and am happier
Lockygill
in
My Ovacome
6 years ago
Talking about blood...
Hi everybody, I must say this site is certainly a godsend when it comes to giving encouragement and inspiration. So thanks everybody who replies to worries, anxiety and concerns,especially those not fully addressed by GPs because of time restraints. The latest posts on blood are of particular interest
Hi everybody, I must say this site is certainly a godsend when it comes to giving encouragement and inspiration. So thanks everybody who replies to worries, anxiety and concerns,especially those not fully addressed by GPs because of time restraints. The latest posts on blood are of particular interest
Frustrated12
in
Lung Conditions Community Forum
6 years ago
Jellybaby
Jelly baby here well I have had all the special scan of my sphincter which they didn’t tell me the results on that then I saw a medical scientist who did all the muscle tests and nerves when he finished he explained the reason I have no muscle control is the muscles are know good and the nerves aren’
Jelly baby here well I have had all the special scan of my sphincter which they didn’t tell me the results on that then I saw a medical scientist who did all the muscle tests and nerves when he finished he explained the reason I have no muscle control is the muscles are know good and the nerves aren’
Jellybaby12
in
LUpus Patients Understanding and Support
6 years ago
Help! Previous abdominal surgery causing issues with Hydrosalpinx removal options. Anyone else have a similar experience?
Hi, I'm new here, so let me share my story. This time last year I was diagnosed with a Hydrosalpinx after experiencing really bad pain during ovulation (often a week at a time), accompanied by what can only be described as "flooding" - fluid as thin as water (colourless, odourless) gushing out of me.
Hi, I'm new here, so let me share my story. This time last year I was diagnosed with a Hydrosalpinx after experiencing really bad pain during ovulation (often a week at a time), accompanied by what can only be described as "flooding" - fluid as thin as water (colourless, odourless) gushing out of me.
MrsBobsy
in
Fertility Network UK
6 years ago
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