Hi I was diagnosed with Ulcerative Colitis some 34 years ago. Had all the normal treatments and regular stays in hospital. Then 6 years ago had a emergency total colectomy. Left hospital with a ileostomy . At the time it was the best thing that happened as at last I had some control over my bowels. A year later and I started to pass a lot of blood with pain in what was left of my anus and rectum. I had a endoscope that had to be stopped because of the amount of pain and blood I was loosing. The bed and I was covered in blood. A week later I was diagnosed with Crohns and had to have my Anus and Rectum removed. A year later and the pain never went away but I lost 15 k in weight. Had a referral to St Marks and was admitted on my first appointment a month later and I was on PNT food. Another month passed and I had surgery to reconstruct my stoma and lift my stomach out of my pelvis. Regular follow-ups and then my soma started to stop working. Had tablets to take care of the Crohns but the pain got worse and worse. 18 months later I had a op to remove a hernia, they did not find a hernia but the wound became very infected and I developed fistulas around the stoma. The infection became such that I kept passing out and would wake up a few days later in a hospital. Back home and I passed out, all quite normal, and woke up a few days later in Brighton Hospital who said I had an abscess behind my stoma and put me on antibiotics and sent me home. A week later I had a out-patients appointment at St Marks . I remember waiting in the coffee shop to be served as I was early for my appointment 3 days later I woke up in bed still at St Marks ' I was so lucky to be at St Marks'. I told them I had an abscess behind my stoma and they put a drain in. Unfortunately the drain did not drain the abscess but poo was coming out of the drain. After more investigations it was found that Brighton had got the diagnosis wrong and I had a hole in my small bowel that was filling my stomach up with poo. They could not operate as It had become so infected. A month later and my stoma was moved from one side of my tummy to the other. The infection was cleared up but since I am left with a stoma that works for a while then stops, my stomach swells up until the stoma suddenly clears and the poo erupts out at such a rate it forces the bag off and goes everywhere. And that's where I am at the moment. I am incontinent, live with chronic pain and chronic fatigue, caused by the scar tissue, adhesions and a slight twist in my ileo. So I'm back where I started with no control over my bowels but with a lot more problems. As for the Crohns or Colitis well it has been changed to Crohns/Colitis. If it was not for the fantastic guys and the work at St Marks I would not be here today. I owe them my life.