Hello everyone x
Just thought I would share my experiences of second surgery because I know there are a couple of ladies ready for the same xx
I was told in early December I had a 8-10cm recurrence on my bowel very close to the rectum and that I might be eligible for second surgery as the new data (although not published yet) suggests second surgery can help. I would have been 4 years clear in February. The place of the cancer meant it was likely I would be given a stoma, the closer to the end the higher the risk apparently xx.
As we live in yorkshire there was a limited skill set and after following advice I read on here I saw a lady in London I know some of you have also seen. She was amazing so reassuring and keen to operate. I am normally very well walk the dog every day etc.
She felt that you rarely find just the one spot but lots of smaller ones as well and she wanted to open the whole abdomen again for a good look around 🤢
I think I was more terrified before hand this time as a little knowledge and all that 😂
I went into hospital on the 9 th for lovely bowel prep and I had my op exactly a week ago as now. I came round and fully expected her to have found lots of lesions but no she found just the one and she said it was smaller and less concerning than the scan suggested (how often do we hear that). Most importantly no stoma amazing!
It seems to me that I am recovering quicker this time, less pain although the scar is bigger. But I guess no hysterectomy etc like last time must make it easier to recover. I know it's only a week and I have 37 staples and as the bladder is being stubborn I still have a catheter in (any advice here would be useful) grr. But I just wanted to post and say if you are considering second surgery maybes it's not so bad?
I know I have a long way to go with chemo etc but I feel very privileged to have access to a forum like this and be able to discuss 'other options' and see how well, or not others are doing xx it's real life it's our real life and difficult to explain to others, living with the fear of recurrence, daring to hope, the ups and downs we face all the time. Well my pain killers are calling so I am off just wanted to say what a good morning everyone ...... we are still here 😀
Lots of love Diane