We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your...Read more
Hidden5 hours ago
I'm having a Cecostomy/Ace Malone shortly,anyone else had this procedure?
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Colostomy pain when bowel movement
Guidedog13 days ago
Need advice help
I have just recently had a colostomy 4 weeks ago I am in a lot of pain every time the bag fills, the pain is like a fist...
Ileostomy & parastomal hernia complications
Hidden2 months ago
Hi I'm Sparkleyboots, I had an Ileostomy in June, 2 weeks later had emergency open surgery due to a parastomal hernia. Have had many complic...
1 Reply1 Like
kd-672 months ago
Hello....I am new to this and am hoping you could answer a question or two I have. I was diagnosed with Crohn's Nov 2002, emerg surgeries, ...
Mitrofanoff Problems !!!!
I had a Mitofanoff operation tow and a half years ago now.
From day one my belly button hasn't stopped leaking.
I'm on my third superpubic...
Crocus573 months ago
Anyone with parastomal hernias ? Has it been fixed ?
I'm suffering another one , my third the repair lasts about a month last time I'm so si...
Hidden4 months ago
What can be the solution to continuous hernia's near the stoma? I have had mesh and also full reconstructive surgery, options must be runnin...
9 Replies1 Like
I have had several procedures regarding the many hernia's I keep getting near to my Stoma. Any advice would be most welcome, thank you...
8 Replies1 Like
Tired achey feel very low.
Tired454 months ago
Hi just some advice please. I had a iliostomy in April and now am waiting for a total collectomy operation in August. My main problem now is...
Continent Urostomy and pregnancy
lejones934 months ago
I am having fertility problems at the moment but going to see a specialist in the next two weeks. From what I understand I will...
First week home.
TEDDY19545 months ago
Hi all, where do you start with this ...62 year old male I had Crohns diagnosed aged 26 by 27. I just dealt with it myself till 62... I have...
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GOT HERE AT LAST!
paulyvous256 months ago
Hi My name is Paul and Ive had a permanent ileostomy since 2004... Over the last few
Years or so I haven't payed much attention to my own h...
1 Reply3 Likes
Still getting aches and pains
Ktappern6 months ago
Hi everyone, this is my first post on this forum so bare with me.
I had my ileostomy 6 weeks ago and have been home for one month. The first...
Home after emergency ileostomy op
SonjaNye727 months ago
Hi, my name is Sonja, I'm 44 and this is my second day at home after having an emergency ileostomy because my ulcerative colitis went nuts. ...
Iliostomy advice confused and very scared
Tired457 months ago
Hi I am a long sufferer of slow transit constipation marred with pelvic adhesions. I am having a iliostomy next week and am confused and pet...
10 Replies3 Likes
Mother of a son with UC
JSDevon7 months ago
My son is 48 and has had UC for over 20 years, he lives in USA. His latest flare has been severe for an unremitting 2 years, his treatment h...
Recently got results
andyglasgow20167 months ago
Sorry for kind of long story
I was in car crash April 2 years ago .. From the start I was having bladder issues.. Unable to pass urine....
Hi, this is all new to me my mum has just had the major operation and now has a storma.
Lisadavies8 months ago
Any help would be greatly appreciated, we came so close to losing our mum 4weeks ago as the blood supply stopped going to my mums large bowe...
3 years after beating bladder cancer and wearing a bag
Hidden8 months ago
It's been three years now the first year I was okay bearing in mind I wasn't given much information I'm approaching year three and all the ...
Ileostomy and deep depression
TeePop20028 months ago
I try and fight it but I just feel bad, I hurt all over and no energy! I had total colectomy with and an ileostomy, with Sugarbaker procedu...
Sgl413778 months ago
I am 38, soon to be 39, and at the end of my rope. Been on every medicine. Have had two surgeries to remove damaged areas. Second surgery...
DO NOT abandon hope if you have an 'ostomy.
sttickle1a year ago
Ulerative Colitis @ 15y > Ileostomy @ 19y - now aged 73y.
I was advised* that those who still had a rectal stump (& anus) have a much increas...
7 Replies2 Likes
ileostomy i 2009
montelaua year ago
hi i am 59 years old now. had my ileostomy 6 years ago. my husband died way b4 that. i feel great but lonely. i started on a web site to...
7 Replies1 Like
Urostomy-ILEAL CONDUIT CYSTECTOMY
vpl22a year ago
There are many pills and potions that your GP can prescribe for IC/PBS that may be of some relief. Unfortunately I left it for a long time (...
Bit of advice
sam68112a year ago
Have seen consultant today and he has given me 2 options to think about. 1 being appendicostomy and Colectomy. Can anyone give me some feed...
dealing with loud gas
053163a year ago
Ihave alot of very loud and all the time gas. Not able to go out because it is so bad. Does anyone have this problem and how have they han...
Hiddena year ago
Dont panic. There is a lot of info on the internet. Type in bladder and bowel foundation. Ring colostomy assoc. Having a stoma is no big dea...
mez67a year ago
I'm having surgery in 3 days, I'm so scared.
My diagnosis is colovaginal fistula after a hysterectomy 20 years ago, and C sections prior to t...
hi ibd ulcerative colitis
katanxa year ago
hi new to this ibs sufferer for 16 yrs but told its prob ibd now as been having severe pain etc getting scan etc at my wits end
This is all new
It's been four weeks since my surgery, still having pain. I had complications in the hospital so my stay was 13 days. my stomach did not wan...
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