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Sialic acid storage disorders
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Nannynoo02
Was told I have FM yesterday,at last!and was wondering if any one uses the CBD PATCHES to help with the pain etc? I am worried as I am already on heart meds, blood thinners and Duloxetine,can I still use the Cbd patches?
Was told I have FM yesterday,at last!and was wondering if any one uses the CBD PATCHES to help with the pain etc? I am worried as I am already on heart meds, blood thinners and Duloxetine,can I still use the Cbd patches?
Nannynoo02
in
Fibromyalgia Action UK
6 months ago
Would like some suggestions for a B complex product with low dose B12 and folate please
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Noelnoel
in
Thyroid UK
4 months ago
Elevated Diastolic Blood Pressure & Thyroid?
I’ve read that thyroid issues can increase diastolic blood pressure while systolic remains normal. I’ve been seeing a slight increase / trend with this. Has anyone else seen this and it meant levothyroxine increase needed?
I’ve read that thyroid issues can increase diastolic blood pressure while systolic remains normal. I’ve been seeing a slight increase / trend with this. Has anyone else seen this and it meant levothyroxine increase needed?
THoa2022
in
Thyroid UK
4 months ago
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R-alpha Lipoic Acid
I read in the Autumn 2023 ME Association magazine that R-Alpha Lipoic Acid could be helpful for someone with ME. I use Methotrexate for my RA. Has anyone used this supplement with Methotrexate?
I read in the Autumn 2023 ME Association magazine that R-Alpha Lipoic Acid could be helpful for someone with ME. I use Methotrexate for my RA. Has anyone used this supplement with Methotrexate?
64notout
in
NRAS
9 months ago
Swapping Rasagiline for Safinamide - Hobson’s Choice or out of the frying pan and into the fire?
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
Lyricist
in
Cure Parkinson's
6 months ago
Ablation question
Hi I’ had my 3rd CV last Thursday . It was reverted after 1st go, and everything was great first time in over 3 years in sinus ryrhmn, I was elated and loved checking my Kardia seeing HR in sinus rythmn! However today I’ve gone back to AF mode , whilst I’m pleased it lasted almost 6 days last two previous
Hi I’ had my 3rd CV last Thursday . It was reverted after 1st go, and everything was great first time in over 3 years in sinus ryrhmn, I was elated and loved checking my Kardia seeing HR in sinus rythmn! However today I’ve gone back to AF mode , whilst I’m pleased it lasted almost 6 days last two previous
Janelr
in
Atrial Fibrillation Support
6 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
6 months ago
Phenelzine
it worked for me incredibly well. No restless legs going on2 years. Phenelzine is a maoMao inhibitor with the differencethaydifference that it only raises dopamine in the central nervous central system. LIfe changer for me, but make you talk to a drDr, so many medicines can interact.
it worked for me incredibly well. No restless legs going on2 years. Phenelzine is a maoMao inhibitor with the differencethaydifference that it only raises dopamine in the central nervous central system. LIfe changer for me, but make you talk to a drDr, so many medicines can interact.
toobs1234
in
Restless Legs Syndrome
6 months ago
Epilepsy Action launches TV first aid campaign
https://www.epilepsy.org.uk/epilepsy-action-launches-tv-first-aid-campaign
https://www.epilepsy.org.uk/epilepsy-action-launches-tv-first-aid-campaign
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
14 days ago
Devil's Claw alternative medication
Hi all, I've been on Pregabalin and Duloxetine for a while. This has some impact but still suffer daily pain. I use Turmeric massage oil which does offer some relief for a while. We have a local health care shop who has prescribed Devil's Claw which I have been taking for two weeks. I do believe it
Hi all, I've been on Pregabalin and Duloxetine for a while. This has some impact but still suffer daily pain. I use Turmeric massage oil which does offer some relief for a while. We have a local health care shop who has prescribed Devil's Claw which I have been taking for two weeks. I do believe it
squarah40
in
Fibromyalgia Action UK
6 months ago
Feel good post/Psychological first aid kit
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
Against_the_current
in
Anxiety and Depression Support
25 days ago
PME/PMDD with depression
I have severe depression and I am starting to think that I might have PME on top of it…every time my period comes the suicidal thoughts and depression get infinitely worse (despite being on meds). If you have something similar, how do you cope with this for that 1.5 week period in time? I can’t even
I have severe depression and I am starting to think that I might have PME on top of it…every time my period comes the suicidal thoughts and depression get infinitely worse (despite being on meds). If you have something similar, how do you cope with this for that 1.5 week period in time? I can’t even
wompwomp
in
Anxiety and Depression Support
4 months ago
Duloxetine - restless legs
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Chamie
in
Restless Legs Syndrome
6 months ago
Help! Raised serum organic phosphate levels
Hello everyone... A month ago I posted after being concerned about a raised organic serum level. 1.89. After a change of diet and a retest there is no significant difference it’s now 1.84. The normal range is 1.40. All other bone profile and renal rests are fine as is the parathyroid level. I know
Hello everyone... A month ago I posted after being concerned about a raised organic serum level. 1.89. After a change of diet and a retest there is no significant difference it’s now 1.84. The normal range is 1.40. All other bone profile and renal rests are fine as is the parathyroid level. I know
Pangolin43
in
PMRGCAuk
9 months ago
Information
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
paul456
in
Ataxia UK
1 month ago
Anyone else on Disability for mental health?
Hello All. I'm Shannon! Mother of one 26 year old son and a former Registered Nurse. Diagnosed back in my 20's with bipolar disorder, generalized anxiety disorder and depression. Its been almost 3 years since I've been employed /as a nurse due to my illnesses. So here I am, 46 years old and not currently
Hello All. I'm Shannon! Mother of one 26 year old son and a former Registered Nurse. Diagnosed back in my 20's with bipolar disorder, generalized anxiety disorder and depression. Its been almost 3 years since I've been employed /as a nurse due to my illnesses. So here I am, 46 years old and not currently
Shannyshan78
in
Anxiety and Depression Support
4 months ago
Lithium induced Hypercalcemia
I have Hypercalcemia after taking Lithium for 36 years, I have been off Lithium for seven months now but my Calcium level is being controlled by Cinacalcet x 4 90mg tablets a day while waiting to have my Parathyroid glands removed and am in a constant agitated state.
I have Hypercalcemia after taking Lithium for 36 years, I have been off Lithium for seven months now but my Calcium level is being controlled by Cinacalcet x 4 90mg tablets a day while waiting to have my Parathyroid glands removed and am in a constant agitated state.
dammers
in
Anxiety and Depression Support
4 months ago
Thank you to all who helped ref Alendronic Acid
I am pleased to tell you, following my email to my Rheumatology Team, I had a telephone call from my Consultant who was very understanding relating to my unwillingness to take Alendronic Acid as prescribed and issued. Your repsonses gave me the courage I needed to continue objecting to it. He is
I am pleased to tell you, following my email to my Rheumatology Team, I had a telephone call from my Consultant who was very understanding relating to my unwillingness to take Alendronic Acid as prescribed and issued. Your repsonses gave me the courage I needed to continue objecting to it. He is
Knip
in
Bone Health and Osteoporosis UK
9 months ago
Controversial query re causality of PLMD
Most of you are RLS sufferers, but my question is more about PLMD, which is treated with similar medications in Western medicine protocols but is not the same condition (Eastern medicines treats them differently). Anyway, to the degree anyone knows, it is obvious that PLMD can cause depression and anxiety
Most of you are RLS sufferers, but my question is more about PLMD, which is treated with similar medications in Western medicine protocols but is not the same condition (Eastern medicines treats them differently). Anyway, to the degree anyone knows, it is obvious that PLMD can cause depression and anxiety
wantokporo
in
Restless Legs Syndrome
7 months ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
11 months ago
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