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FND CONFERENCE - anonymous question submission
If anti-
seizure
meds help, why not find out why? 17. Is it acceptable to be told to "Google" to find doctor? 18. How on earth do I reassure my family about FND? 19. Why is there not a better name for this disorder? 20. Is Neurologic Deficit Disorder a possible better name? 21.
If anti-
seizure
meds help, why not find out why? 17. Is it acceptable to be told to "Google" to find doctor? 18. How on earth do I reassure my family about FND? 19. Why is there not a better name for this disorder? 20. Is Neurologic Deficit Disorder a possible better name? 21.
Hidden
in
Functional Neurological Disorder - FND Hope
7 years ago
Advice to stop seizures.
My main
seizure
type is partial seizures. I have had a significant reduction in seizures over the years since increasing meds etc. The ONLY time I have a
seizure
now is mornings when I get up for work. Its bareable and I get on with it and it soon eases off.
My main
seizure
type is partial seizures. I have had a significant reduction in seizures over the years since increasing meds etc. The ONLY time I have a
seizure
now is mornings when I get up for work. Its bareable and I get on with it and it soon eases off.
RR25
in
Epilepsy Research Institute
7 years ago
New to brain tumour
I had a 40 min
seizure
at work rushed to hospital had all scans found tennis ball sized tumour. Long op to remove. I've found getting back to 'normal' so hard and have now been diagnosed with epilepsy. Want some people to connect with.
I had a 40 min
seizure
at work rushed to hospital had all scans found tennis ball sized tumour. Long op to remove. I've found getting back to 'normal' so hard and have now been diagnosed with epilepsy. Want some people to connect with.
Hidden
in
Headway
7 years ago
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My seizures..letting off steam
It was when I met and moved in with my current partner in 2007 I had a
seizure
and he asked why I'd never mentioned it in all this time!!!!
It was when I met and moved in with my current partner in 2007 I had a
seizure
and he asked why I'd never mentioned it in all this time!!!!
Hidden
in
Epilepsy Action
7 years ago
I'm terrified that I might have a seizure
Hi I am so terrified I am going to have a
seizure
I feel very weird i am on penicillin and the side effects of that could result in being a
seizure
I have Googled the symptoms of what happens before having one and I honestly feel like I am going to have one I have never had one before I just feel twitchy
Hi I am so terrified I am going to have a
seizure
I feel very weird i am on penicillin and the side effects of that could result in being a
seizure
I have Googled the symptoms of what happens before having one and I honestly feel like I am going to have one I have never had one before I just feel twitchy
Natalieh1-94
in
Anxiety Support
7 years ago
Im new here ... hello
I'm not on any medication as I've been diagnosed with non-epileptic
seizure
disorder.
I'm not on any medication as I've been diagnosed with non-epileptic
seizure
disorder.
Girlygirl18
in
Epilepsy Research Institute
7 years ago
Still Fighting The Battle of the Booze
I want to go cold turkey, but my consultant refuses to allow it because I'm epileptic, and he's concerned that a sudden withdrawal would send me into a potentially fatal
seizure
.
I want to go cold turkey, but my consultant refuses to allow it because I'm epileptic, and he's concerned that a sudden withdrawal would send me into a potentially fatal
seizure
.
Hidden
in
British Liver Trust
7 years ago
Am I too old to start again?
I've attempted running several times, always aware that I look like I'm having a
seizure
, red face, etc. I won't give up but am conscious of being a 60 year old woman and don't see women of my age running.
I've attempted running several times, always aware that I look like I'm having a
seizure
, red face, etc. I won't give up but am conscious of being a 60 year old woman and don't see women of my age running.
Chrysanthemum
Graduate
in
Couch to 5K
7 years ago
7 years with FND, getting worst..
They include: - Partial-
seizure
-like episodes at night and sleep paralysis. As I am drifting off to sleep my entire body goes stiff and a feeling of paralysis occurs, where I feel compelled to move in order to prevent the paralysis.
They include: - Partial-
seizure
-like episodes at night and sleep paralysis. As I am drifting off to sleep my entire body goes stiff and a feeling of paralysis occurs, where I feel compelled to move in order to prevent the paralysis.
TomDanielPerry88
in
Functional Neurological Disorder - FND Hope
7 years ago
Sleep Anxiety ? πππ
And all my brain keeps thinking is "
seizure
seizure
" Even though I've NEVER had one my 22 years on Earth ππͺπ₯ Am I the only one that's bad anything similar to this ? Being scared before you get to that point of falling asleep after being woken up ?
And all my brain keeps thinking is "
seizure
seizure
" Even though I've NEVER had one my 22 years on Earth ππͺπ₯ Am I the only one that's bad anything similar to this ? Being scared before you get to that point of falling asleep after being woken up ?
masteringmyself
in
Anxiety Support
7 years ago
Anxiety/Panic Disorder Agoraphobia
colorado and am having a hard time finding a primary care doctor and am coming close to my klonopin running out .I've started lowering the dose just a bit to make it last longer but I'm unsure what to do as I have been very ill and cannot take the bus to doctors atm overly anxious as I have history of
seizure
colorado and am having a hard time finding a primary care doctor and am coming close to my klonopin running out .I've started lowering the dose just a bit to make it last longer but I'm unsure what to do as I have been very ill and cannot take the bus to doctors atm overly anxious as I have history of
seizure
GypsyDreams13
in
Anxiety and Depression Support
7 years ago
Anyone have experience or advice with problems caused by vagus nerve issues (rapid and irregular heart rate and blood pressure)
This all started after my anoxic brain injury caused form surviving cardiac arrest (caused by an exaggerated vasovagal response and no automatic lower heart rate limit (now corrected by a pacemaker that kicks on if my heart rate goes below 45 bpm), my vitals all went to zero) and a grand mal
seizure
This all started after my anoxic brain injury caused form surviving cardiac arrest (caused by an exaggerated vasovagal response and no automatic lower heart rate limit (now corrected by a pacemaker that kicks on if my heart rate goes below 45 bpm), my vitals all went to zero) and a grand mal
seizure
sca2013
in
Sudden Cardiac Arrest & Heart Attack
7 years ago
Anyone have experience or advice with problems caused by vagus nerve issues (rapid and irregular heart rate and blood pressure)
This all started after my anoxic brain injury caused form surviving cardiac arrest (caused by an exaggerated vasovagal response and no automatic lower heart rate limit (now corrected by a pacemaker that kicks on if my heart rate goes below 45 bpm), my vitals all went to zero) and a grand mal
seizure
This all started after my anoxic brain injury caused form surviving cardiac arrest (caused by an exaggerated vasovagal response and no automatic lower heart rate limit (now corrected by a pacemaker that kicks on if my heart rate goes below 45 bpm), my vitals all went to zero) and a grand mal
seizure
sca2013
in
Headway
7 years ago
Safely Running with Epilepsy
I don't want to stop running, but also don't want to hurt myself if I do have a
seizure
. Any tips on running safely?
I don't want to stop running, but also don't want to hurt myself if I do have a
seizure
. Any tips on running safely?
Vitty
Graduate
in
Couch to 5K
7 years ago
Applying for group 2 licence after a TBI
It has been 15 months now and like I said I have never had a
seizure
, many thanks
It has been 15 months now and like I said I have never had a
seizure
, many thanks
Reeve77
in
Headway
7 years ago
Xeralto Causing Seizures With APS?
He's been
seizure
free since switching back to warfarin. His hematologist hadn't heard of Xeralto causing seizures but wondering if anyone else has heard of this problem. There was no bleeding- I know there's been lots of lawsuits for Xeralto and excessive bleeding. He's doing well now.
He's been
seizure
free since switching back to warfarin. His hematologist hadn't heard of Xeralto causing seizures but wondering if anyone else has heard of this problem. There was no bleeding- I know there's been lots of lawsuits for Xeralto and excessive bleeding. He's doing well now.
DebbyL
in
Hughes Syndrome APS Forum
7 years ago
The outcast
Hello my name is janiya and I'm 14 and I have a
seizure
condition known as pres and I take meds but they make me have really bad anxiety and it seems no one cares I'm all alone and it hurts π I'm scared I can't have fun my mom gets mad like really pissed if I go to her for support she says I ruin her
Hello my name is janiya and I'm 14 and I have a
seizure
condition known as pres and I take meds but they make me have really bad anxiety and it seems no one cares I'm all alone and it hurts π I'm scared I can't have fun my mom gets mad like really pissed if I go to her for support she says I ruin her
J_Mcm
in
Anxiety Support
7 years ago
Hi
The only
seizure
I've had in the last 5 yrs was due to concussion lowering my threshold further. I originaly swam competitively and spent many years that working for councils as a swimming teacher/coach/lifeguard.
The only
seizure
I've had in the last 5 yrs was due to concussion lowering my threshold further. I originaly swam competitively and spent many years that working for councils as a swimming teacher/coach/lifeguard.
2propylpentanoicacid
in
Epilepsy Research Institute
7 years ago
Seizures and sadness
Just had a
seizure
. In the middle of the grocery store fell and busted my chin open. I had to be taken in an ambulance to the er to get stitches. It was so embarrassing. I'm struggling with my health..I'm really depressed about it.
Just had a
seizure
. In the middle of the grocery store fell and busted my chin open. I had to be taken in an ambulance to the er to get stitches. It was so embarrassing. I'm struggling with my health..I'm really depressed about it.
Brooke1994
in
Anxiety and Depression Support
7 years ago
Changes of thyroid hormonal status in patients receiving ketogenic diet due to intractable epilepsy
Seizure
control, side effects, and compliance with the diet were recorded, and free T3, free T4, and thyroid-stimulating hormone (TSH) levels were measured at baseline and at post-treatment months 1, 3, 6, and 12.
Seizure
control, side effects, and compliance with the diet were recorded, and free T3, free T4, and thyroid-stimulating hormone (TSH) levels were measured at baseline and at post-treatment months 1, 3, 6, and 12.
helvella
Thyroid UK
in
Thyroid UK
7 years ago
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