Dementia symptoms : Hi all. I was wondering... - PSP Association

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Dementia symptoms

Spiralsparkle profile image
14 Replies

Hi all.

I was wondering how many of sufferers have bad cognition symptoms? I know each person is different with the symptoms that they suffer with and how bad each one is.

Following Mum's seizure it appears it has had a lasting worsening impact on her cognition symptoms. Which is just total pants 😢

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Spiralsparkle profile image
Spiralsparkle
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14 Replies
Satt2015 profile image
Satt2015

Hi Spiral I'm really sorry to hear this!! My dads cognitive skills are shot to bits!! Absolutely bloody awful, when I think what a clever man he really is! Psp and cbd are both total shit!! They just both eat away at the person inside, simply spiteful! ❤

abirke profile image
abirke

Did they say why she had this seizure...was it a stroke or tumor etc?

a part of Alzheimers?

Spiralsparkle profile image
Spiralsparkle in reply toabirke

They don't know if was down to a fever or just part of the CBD. Wasnt a stroke or acute change in her brain as did new scans.

abirke profile image
abirke in reply toSpiralsparkle

Bruce had PSP, and not much dementia...infact could remember how to get to his moms house in Arizona on our trip last summer....I would ask ~him~ details of a story up until last week! Not easy to decipher mind you , but he had the facts!

Maybe this seizure exacerbated what was going on with your mom anyway....and as I read dementia sounds not totally uncommon....sorry

AVB

Spiralsparkle profile image
Spiralsparkle in reply toabirke

Yes the seizure has exacerbated everything and progressed her along the journey.

Sending love to you. How are you doing over there?

abirke profile image
abirke in reply toSpiralsparkle

A song "AT Last" once sung by Etta James (a beautiful jazz blues singer), was being sung by and Beyonce I crumbled....Bruce doesn't really care for this music, but I love it and I could not get through the song whith family all around; had to click out of it....So how am I doing? well Im keepin a stiff upper....

How bout you....it's so not easy to see your daddy, your hero, in this way....My kids are doing well but they are so leaning on each other... I don't think they'd have it as together if they didn't have each other!

AVB

Heady profile image
Heady in reply toabirke

Thinking of you and still sending that strength and love to you.

Lots of love

Anne

abirke profile image
abirke in reply toHeady

Thank you Heady , Anne . I think of you often as well. How are you doing ?

I had to get out of the house today.....went to a restaurant after I did xome chores....I realized this was what it would be like the next time I want to go out...course Its not the first time I've taken me out even when Bruce was able , going out was not top on his priority list.....So I did solos it' was ok....

am2015 profile image
am2015

My mum has dementia symptoms. It is absolutely awful for us to see her this way, but a blessing for her as she no longer knows what is happening to her. We sometimes see a glimmer of her former self, but even this is rare now. Xx

Spiralsparkle profile image
Spiralsparkle in reply toam2015

Bless you all. It is so hard. My Nan suffered with dementia which in itself is evil but these illnesses take it to another level.

I was looking at photos of my Nan last night as was 20 years ago this month she left us and seeing the similarities in facial expressions with Mum now.

Like you say a blessing in a way for your Mum if she is no longer fully aware of what is happening

Xx

Crystabella profile image
Crystabella

My first symptoms were cognitive and after a death in the family, my symptoms became far far worse. I agree with you. It stinks. My daughter helps me write things and does alot of 'checking' so that I can continue to make sense for as long as possible. But truly, its horrid for both of us and both Mikaela and I can truly understand where you are at.

Spiralsparkle profile image
Spiralsparkle in reply toCrystabella

Thank you for replying. It is a comfort to be able to share and dicuss on here x

LynnO profile image
LynnO

My husband cognitive abilities are bad also. He still has clear moments throughout the day, but a lot if the time he has a lot of trouble. Doesn't understand simple conversations, will ask the same question over several times, and says he is wants to go home, when he already is. he knows something isn't right, which frustrates him and seems to make things worse. Stress or anxiety makes things worse for him.

Spiralsparkle profile image
Spiralsparkle in reply toLynnO

Oh gosh yes anxiety is a biggie too and like you say makes the cognition even worse.

It is horrible when there is an awareness that something isn't right and frustration builds for the person. Must be frightening indeed.

X

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