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Epilepsy Research UK and Epilepsy Action user survey: tonic-clonic seizure alarms
If you have ever used a tonic-clonic
seizure
alarm, or cared for someone who has used one, we would be extremely grateful if you would complete this survey. https://www.epilepsy.org.uk/tonic-clonic-
seizure
-alarm-survey
If you have ever used a tonic-clonic
seizure
alarm, or cared for someone who has used one, we would be extremely grateful if you would complete this survey. https://www.epilepsy.org.uk/tonic-clonic-
seizure
-alarm-survey
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
9 years ago
Going Batty
I'm not sleeping well, which lowers my
seizure
threshold, so I had a small one this afternoon. I'm so very tired of all this stuff. Siiigh. Bats
I'm not sleeping well, which lowers my
seizure
threshold, so I had a small one this afternoon. I'm so very tired of all this stuff. Siiigh. Bats
Azabat
in
NRAS
9 years ago
Epilepsy getting worse
I have not had a
seizure
for at least 5 months then I thought I was getting better then I discharged myself from the hospital as they wasn't treating me much but just on Tuesday my seizures just came back out of no where. I had 3 seizures on Monday and 2 on Tuesday and 1 on Wednesday.
I have not had a
seizure
for at least 5 months then I thought I was getting better then I discharged myself from the hospital as they wasn't treating me much but just on Tuesday my seizures just came back out of no where. I had 3 seizures on Monday and 2 on Tuesday and 1 on Wednesday.
Prabz97
in
Epilepsy Society
9 years ago
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Contraindications with under active thyroid Meds and Statins ?
I should add I'm on Amlodopine and Perindiprol for high BP (which is no longer high btw) 3 anti
seizure
drugs on a now tapering dose (hesitate to say Epliepsy as that hasn't yet been confirmed and "isn't likely") Inhaled steroids and Montelukast for resistant asthma (since age 11) and of course the
I should add I'm on Amlodopine and Perindiprol for high BP (which is no longer high btw) 3 anti
seizure
drugs on a now tapering dose (hesitate to say Epliepsy as that hasn't yet been confirmed and "isn't likely") Inhaled steroids and Montelukast for resistant asthma (since age 11) and of course the
CCSP-27
in
Thyroid UK
9 years ago
My epilepsy surgery
Hello everybody i havent written a post in a long time so here goes i had epilepsy surgery in december 2013 and i have had the best time of my life i have been completely
seizure
free since then and not even a hint that i was ever epileptic and you cant even see the scar even though it had 36 staples
Hello everybody i havent written a post in a long time so here goes i had epilepsy surgery in december 2013 and i have had the best time of my life i have been completely
seizure
free since then and not even a hint that i was ever epileptic and you cant even see the scar even though it had 36 staples
jules1973
in
Epilepsy Research Institute
9 years ago
AMYGO
the
seizure
ended mostly and i also mentally embraced my inner "assailant" that hurls sharp objects and such but i am on a break from symptoms with a little cannabis through the day. i got moved to the new place and i am exposed to different factors but now i am also feeling safer with my friends and
the
seizure
ended mostly and i also mentally embraced my inner "assailant" that hurls sharp objects and such but i am on a break from symptoms with a little cannabis through the day. i got moved to the new place and i am exposed to different factors but now i am also feeling safer with my friends and
bobvanbc
in
Heal My PTSD
9 years ago
It feels so real
And today I convinced myself I was going to have a
seizure
. I've never had a
seizure
before. It's so strange, it feels so real though. Has anyone else been through the same thing? If so, how did you deal with it?
And today I convinced myself I was going to have a
seizure
. I've never had a
seizure
before. It's so strange, it feels so real though. Has anyone else been through the same thing? If so, how did you deal with it?
Elleyfreeman
in
Anxiety Support
9 years ago
Epilepsy drug Fycompa launched on NHS across UK
Will it revolutionise
seizure
control for thousands of people? https://www.epilepsy.org.uk/news/news/epilepsy-drug-fycompa-launched-nhs-across-uk-64849
Will it revolutionise
seizure
control for thousands of people? https://www.epilepsy.org.uk/news/news/epilepsy-drug-fycompa-launched-nhs-across-uk-64849
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
9 years ago
Sleep seizures
Hi I have been having an awful lot of seizures in my sleep I have been waking up through them but I get frightenened because my throat tightens up so tight my body is shaking I feel so frightened most of the time I don't know what's going on but this morning I had a reply bad
seizure
I woke up I could
Hi I have been having an awful lot of seizures in my sleep I have been waking up through them but I get frightenened because my throat tightens up so tight my body is shaking I feel so frightened most of the time I don't know what's going on but this morning I had a reply bad
seizure
I woke up I could
gotmarried2012
in
Epilepsy Research Institute
9 years ago
Ataxia/ chiari malformation
I had a
seizure
and I went down hill from there. I was in the hospital for 9 days. I had several MRI'S done. The doctors think it was damage done to my cerebellum. The whole procedure started from me suffering with pain on my whole right side after a car accident back in August 2014.
I had a
seizure
and I went down hill from there. I was in the hospital for 9 days. I had several MRI'S done. The doctors think it was damage done to my cerebellum. The whole procedure started from me suffering with pain on my whole right side after a car accident back in August 2014.
Mother25
in
Ataxia UK
9 years ago
Anxiety- Heavy Head, Off-Balance
Last night, driving home from a dinner, I felt like I was going to have or was having a
seizure
. I have no history of seizures but the jerking, fullness, foggy feeling and anxiety convinced me I was about to have a
seizure
. It was incredibly unnerving. Please help!
Last night, driving home from a dinner, I felt like I was going to have or was having a
seizure
. I have no history of seizures but the jerking, fullness, foggy feeling and anxiety convinced me I was about to have a
seizure
. It was incredibly unnerving. Please help!
Santana08
in
Anxiety Support
9 years ago
I just thought it was the sea air!
Hiding something
Seizure
.......................................... Roman Emperor Tablet ........................................
Hiding something
Seizure
.......................................... Roman Emperor Tablet ........................................
Nikkers
in
Lung Conditions Community Forum
9 years ago
How did I get here?
Every 5 seconds I have little feelings that make me think I might have a
seizure
, and for a long time I thought they meant my AVM was about to burst again. My vision to the right still hasn't returned, and it's just so difficult to watch my friends fly by into careers and the like.
Every 5 seconds I have little feelings that make me think I might have a
seizure
, and for a long time I thought they meant my AVM was about to burst again. My vision to the right still hasn't returned, and it's just so difficult to watch my friends fly by into careers and the like.
B_S_A
in
Headway
9 years ago
my answers
I suffered a 2 hour grand mal
seizure
in 1999, having my heart stopped for 4 minutes. I was placed on Tegretol to control my epilepsy, it created extreme panic, fear, anxiety and depression.
I suffered a 2 hour grand mal
seizure
in 1999, having my heart stopped for 4 minutes. I was placed on Tegretol to control my epilepsy, it created extreme panic, fear, anxiety and depression.
DarrenC
in
Epilepsy Research Institute
9 years ago
My Step-Dad has lung cancer!
Just 2 months prior to this my Mom was in hospital after suffering from a
seizure
and is in poor health generally. We are all in shock and disbelief! Life can be so cruel! I would appreciate any advice etc. Thanks in Advance
Just 2 months prior to this my Mom was in hospital after suffering from a
seizure
and is in poor health generally. We are all in shock and disbelief! Life can be so cruel! I would appreciate any advice etc. Thanks in Advance
gsh18
in
The Roy Castle Lung Cancer Foundation
9 years ago
Diagnosed with AMN
He had another
seizure
episode in May and had to be in CCU again for 4 days and released in 8. We left the hospital may 18th. That was his last day to walk. When we got home his legs would not work at all.
He had another
seizure
episode in May and had to be in CCU again for 4 days and released in 8. We left the hospital may 18th. That was his last day to walk. When we got home his legs would not work at all.
campbellkristy
in
AMN EASIER
9 years ago
Seizures and encephalitis
What were the symptoms of the
seizure
? Can medication help? Thank you for any advice you can give me.
What were the symptoms of the
seizure
? Can medication help? Thank you for any advice you can give me.
Hidden
in
Epilepsy Action
9 years ago
It just got worse..
I feel like I'm having a
seizure
but awake and don't know what to do! I'm to scared to go to the er, in fear they will treat me like shit. I've had a horrible migraine for 7 days now that gets worse when I stand up and can't breath when I lay flat in bed.
I feel like I'm having a
seizure
but awake and don't know what to do! I'm to scared to go to the er, in fear they will treat me like shit. I've had a horrible migraine for 7 days now that gets worse when I stand up and can't breath when I lay flat in bed.
Ihatedrs40
in
Myalgic Encephalomyelitis Community
9 years ago
My storie: Abuse Survivor 5 years now, Seizures since 2008. Was seizure free Until the Abuse 24 years had Absence attacks as a kid now Temp
Epilepsy stinks all my life How ever was
seizure
Free 24 years From Absence seizures now at 47!
Epilepsy stinks all my life How ever was
seizure
Free 24 years From Absence seizures now at 47!
Rachael1967
in
Sharing patient stories - Picker Institute Europe
9 years ago
Long QT Syndrome worry - seizures for 17 years.
I also had a
seizure
once when I was extremely scared and once when I was extremely upset but now they do occur randomly most of the time - I haven't had a
seizure
for a particular reason in a long time.
I also had a
seizure
once when I was extremely scared and once when I was extremely upset but now they do occur randomly most of the time - I haven't had a
seizure
for a particular reason in a long time.
helpplease20
in
Arrhythmia Alliance
9 years ago
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