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Ongoing post re Rituximab infusions
Hi everyone Just a quick update following my first cycle of
Rituximab
infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions.
Hi everyone Just a quick update following my first cycle of
Rituximab
infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions.
Bakbre
in
LUPUS UK
7 years ago
Second Rituximab Infusion
Hi, after my last post I was seen by my consultant last Thursday and the second MRI results were pretty much identical to the first MRI. So it was decided I have a neck ultrasound to have a closer look at my carotid artery. I had the ultrasound done yesterday morning and the sonologist said there was
Hi, after my last post I was seen by my consultant last Thursday and the second MRI results were pretty much identical to the first MRI. So it was decided I have a neck ultrasound to have a closer look at my carotid artery. I had the ultrasound done yesterday morning and the sonologist said there was
Vo321
in
Vasculitis UK
7 years ago
Time to share
This is my first actual post, so apologies for its length, but have responded to other post’s on here. I am one of those silent types you see mentioned, my wife , London girl on here finally got me to join and so glad I did. About my CLL , diagnosed back in 01/15 , FCR on flair trial 11/16 for 6 rounds
This is my first actual post, so apologies for its length, but have responded to other post’s on here. I am one of those silent types you see mentioned, my wife , London girl on here finally got me to join and so glad I did. About my CLL , diagnosed back in 01/15 , FCR on flair trial 11/16 for 6 rounds
Dell49
in
CLL Support
6 years ago
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Newbie with questions
Had chemo (
rituximab
/floudarabine) in 2010. Now on Acalabrutinib at an NIH protocol. I'm into my fourth month (200 mg every morning since November 5, 2017).
Had chemo (
rituximab
/floudarabine) in 2010. Now on Acalabrutinib at an NIH protocol. I'm into my fourth month (200 mg every morning since November 5, 2017).
sundancing
in
CLL Support
6 years ago
First-Line Rituximab Bests Other MS Drugs in Sweden
First-Line
Rituximab
Bests Other MS Drugs in Sweden Click https://www.medpagetoday.com/neurology/multiplesclerosis/70393 for the full story:
First-Line
Rituximab
Bests Other MS Drugs in Sweden Click https://www.medpagetoday.com/neurology/multiplesclerosis/70393 for the full story:
erash
in
My MSAA Community
7 years ago
Concern
I have ANCA Vasculitis but in remission at the moment and having
Rituximab
every 6 months.I also have Stage3/4 CKD but this last day am now passing blood and wondered if anybody has experienced the same.
I have ANCA Vasculitis but in remission at the moment and having
Rituximab
every 6 months.I also have Stage3/4 CKD but this last day am now passing blood and wondered if anybody has experienced the same.
Keithtim10
in
Vasculitis UK
7 years ago
Revolade is going ineffective in ITP
Should i go for
Rituximab
OR wait ? Her spleen is not removed yet.
Should i go for
Rituximab
OR wait ? Her spleen is not removed yet.
salman2030
in
ITP Support Association
7 years ago
Treatment for unmutated ighv
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has the unmutated gene? Thank you!
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has the unmutated gene? Thank you!
Hidden
in
CLL America Support
6 years ago
48 months after last FCR Treatment!
For almost four years I finished my 6th cycle of FCR. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment. Doing much gym and walking in fresh
For almost four years I finished my 6th cycle of FCR. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment. Doing much gym and walking in fresh
seoul
in
CLL Support
6 years ago
EMA Accepts Conditional Application for ANCA Treatment Avacopan
I suffer from MPA and am currently on my third year of 6 monthly infusions of
Rituximab
+ Prednisolone after an unsuccessful year of Cyclophosphamide. This keeps the worst of my symptoms largely at bay though they still grumble away in the background.
I suffer from MPA and am currently on my third year of 6 monthly infusions of
Rituximab
+ Prednisolone after an unsuccessful year of Cyclophosphamide. This keeps the worst of my symptoms largely at bay though they still grumble away in the background.
amms43
in
Vasculitis UK
7 years ago
Pregnancy And ITP
Any body Taken Eltrombopag or
Rituximab
during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
Any body Taken Eltrombopag or
Rituximab
during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
jangirdinesh
in
ITP Support Association
7 years ago
Pregnancy And ITP
Any body Taken Eltrombopag or
Rituximab
during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
Any body Taken Eltrombopag or
Rituximab
during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
jangirdinesh
in
ITP Support Association
7 years ago
Gone Neutropenic before Final FCR - ARGHHHH
Had my bloodwork done today in preparation for my final FCR treatments starting Monday. Drat - my neuts went to 0.4 (normal is 2.0 to 7.5) and WBC went down to 1.5 (Normal is 3.5 to 10.85). I have been postponed for at least a week. They do not see a need for injections at this time if I do not come
Had my bloodwork done today in preparation for my final FCR treatments starting Monday. Drat - my neuts went to 0.4 (normal is 2.0 to 7.5) and WBC went down to 1.5 (Normal is 3.5 to 10.85). I have been postponed for at least a week. They do not see a need for injections at this time if I do not come
Marie-54
in
CLL Support
6 years ago
If Rituximab Does Not Work
My boyfriend has lupus and since mycofenolat did not work, he got
Rituximab
in last September. Today, we found out that also
Rituximab
does not work properly and his doctor is adding mycofenolat again. But it was just one session (4 weeks) and he looks and feels so much better.
My boyfriend has lupus and since mycofenolat did not work, he got
Rituximab
in last September. Today, we found out that also
Rituximab
does not work properly and his doctor is adding mycofenolat again. But it was just one session (4 weeks) and he looks and feels so much better.
DankaCi
in
LUPUS UK
7 years ago
7 months post FCR and I’m back at A&E
Great. Raging temperature sees me back at A&E this morning. Lengthy wait ahead in all likelihood.... wish me luck
Great. Raging temperature sees me back at A&E this morning. Lengthy wait ahead in all likelihood.... wish me luck
MattGGibson
in
CLL Support
6 years ago
18months after FLAIR trial and hip arthritis looms....
18 months since abandoning FLAIR trial of Ibrutinib and
Rituximab
have been pretty well but the blood results are worsening and more treatment suggested soon- though I see two consultants and one wants to "nip it in the bud" (I thought it didn't make any difference) and the other thinks I am fine for
18 months since abandoning FLAIR trial of Ibrutinib and
Rituximab
have been pretty well but the blood results are worsening and more treatment suggested soon- though I see two consultants and one wants to "nip it in the bud" (I thought it didn't make any difference) and the other thinks I am fine for
romarin
in
CLL Support
7 years ago
First Cycle of Rituximab
Please bear with me as this is a long post! Finally got my 1st infusion on the 4th December after 2 previous dates being cancelled because of shingles (my husband) and a tooth infection (mine). I need not have worried so much beforehand because everything went well, apart from my temperature which went
Please bear with me as this is a long post! Finally got my 1st infusion on the 4th December after 2 previous dates being cancelled because of shingles (my husband) and a tooth infection (mine). I need not have worried so much beforehand because everything went well, apart from my temperature which went
Bakbre
in
LUPUS UK
7 years ago
First Rituximab Infusion
On the 28th December, I had my first
Rituximab
infusion. My consultant began by telling me my lumbar puncture came back clear and my flexible sigmoidoscopy showed mild Colitis, which he hopes the
Rituximab
will also treat.
On the 28th December, I had my first
Rituximab
infusion. My consultant began by telling me my lumbar puncture came back clear and my flexible sigmoidoscopy showed mild Colitis, which he hopes the
Rituximab
will also treat.
Vo321
in
Vasculitis UK
7 years ago
Rigor after 2 x Rituximab infusions
I need my prednisolone but it’s downstairs and I’m Worried I will start the shaking off by going Thanks in advance & sorry for the poor writing #
rituximab
#paracetamol #prednisolone #tramadol B
I need my prednisolone but it’s downstairs and I’m Worried I will start the shaking off by going Thanks in advance & sorry for the poor writing #
rituximab
#paracetamol #prednisolone #tramadol B
Balderick
in
Vasculitis UK
7 years ago
Methotrexate, good or bad?
It didn't suit and I went onto
rituximab
infusions which, so far, are working well. A few weeks ago I was hospitalised with severe breathing difficulties and the question was asked as to whether or not the Methotrexate has contributed to the reduction in lung function.
It didn't suit and I went onto
rituximab
infusions which, so far, are working well. A few weeks ago I was hospitalised with severe breathing difficulties and the question was asked as to whether or not the Methotrexate has contributed to the reduction in lung function.
Brenda1952
in
NRAS
7 years ago
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