Experiences with

Rituximab

Good day everyone I’m about to get my 1st Rituximab and would really appreciate any thoughts and advice. Many thanks

I’m taking Rituximab for RA and also have myasthenia gravis.The Rituximab has worked well for me for both RA and MG. My question is that I take every 6months with an infusion has anyone asked they RA doctor if you could go longer be fore the next infusion .

Hello ☺️ I’m going to be starting rituximab very soon after I’ve had my second vaccine this week. Anyone that’s been on this how have you been? What’s it like? Any side effects? Thank you 😊

Rituximab and Covid Has anyone had Covid and taking Rituximab ? How did it affect you?

Hi Has anyone had any advice on timings of Rituximab and the covid vaccine? I have been told that Rituximab cannot be given until a month after the second dose and if Rituximab has been given recently there has to be a six month wait til receiving the vaccine.....

Hi Has anyone had any advice on timings of Rituximab and the covid vaccine? I have been told that Rituximab cannot be given until a month after the second dose and if Rituximab has been given recently there has to be a six month wait til receiving the vaccine.....

Rituximab & results

after starting rituximab should I start to feel less fatigued?

I guess it’s a catch 22 really because delaying my Rituximab potentially could increase chances of relapse, especially as it’s my first try on Rituximab. Anybody out there any ideas. I will be talking to my consultant soon so will post any advice I get. Stay safe all.

After all my problems with Methotrexate (which I have talked about previously)I am now quite concerned about my next step which is Rituximab infusions.Has anyone tried this?

I was just wondering if anyone who has been on or is on Rituximab could share their experiences good and bad? I'm wanting to weigh up the potential risks against the potential benefits, so any information would be really helpful. Thanks x

How does it work when Rituximab knocks out the T cells after? How long should one be vaccinated after a Rituximab infusion, or how long should one wait after being vaccinated to have the next infusion ? Many thanks and all the best !

I realise it can take up to 3 months for Rituximab to take effect but would love to hear from anyone onRituximab. Thank you M

Hi my OH was due his second RTX as part of his 2 year schedule. He has developed a throat infection and after contacting the hospital his RTX for tomorrow is delayed. He is well in himself, no temperature and appetite ok. Just more tired than usual. Will this delay cause any problems? He had his last

I read that Rituximab (anti CD20 monoclonal) can take 6-12 months for your immune system to recover after your final infusion and her last infusion of Rituximab was Oct 1, 2020 so she was just shy of 6 months when she got her first Pfizer shot.

I have been advised that Methotrexate makes Rituximab work better ....does anybody take Methotrexate with Rituximab please?

Hi everybody, had last Rituximab infusion 10 weeks ago and had Pfizer Vaccine yesterday. No after effects, no fever, just been out for 5 mile walk all good.

It’s about those of you who are immunosuppressed with Rituximab or something similar that have received a vaccine. Curious if any of you have had your antibodies tested afterward. I am so anxious to get it but just had an infusion last month so I have some time to wait.

I have lupus and am on prednisolone, Rituximab and Mycophenoloate plus hydroxycloriquine. Thank you for the feedback.

Maybe they will answer the topics worrying us about rituximab, etc. Etc