Experiences with Rituximab | HealthUnlocked

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Rituximab infusion Feb. 9/26. Not feeling like it is working. Still have arthritis pain, in fact, it seems worse. How long until it works?

How Long Until Rituximab works? Or, is there a way to know that rituximab is not working for me?How Long Until Rituximab works? Or, is there a way to know that rituximab is not working for me?

lucky2stillBalivein NRAS

Rituximab

Thanks everyone for responding and sharing your experience of taking rituximab. How long did it take for you to notice the rituximab working after the first infusion?Thanks everyone for responding and sharing your experience of taking rituximab. How long did it take for you to notice the rituximab working after the first infusion?

Flowers2020in NRAS

Rituximab

Just wondering if anyone has had any rituximab treatment whilst all the lockdown has been in place. I’m due for my next infusion end of May and am wondering if it will go ahead. Guess it’s a toss up between the risks of a flare or catching Covid. Neither option appeals much!Just wondering if anyone has had any rituximab treatment whilst all the lockdown has been in place. I’m due for my next infusion end of May and am wondering if it will go ahead. Guess it’s a toss up between the risks of a flare or catching Covid. Neither option appeals much!

lismacbin Vasculitis UK

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Still ANCA positive

Hi everyone, regarding GPA, if I’m still ANCA positive after Rituximab and consultants now thinking about Azathioprine, does that mean rituximab hasn’t worked well enough? Didn’t ask at last appointment and there’s so much online it’s confusing. Thankyou!Hi everyone, regarding GPA, if I’m still ANCA positive after Rituximab and consultants now thinking about Azathioprine, does that mean rituximab hasn’t worked well enough? Didn’t ask at last appointment and there’s so much online it’s confusing. Thankyou!

kitkatmumin Vasculitis UK

Rituximab infusion

I am worried about which medication to try next whether I should try methotrexate again or start on rituximab infusion. Any suggestions or advice will be very much appreciated.I am worried about which medication to try next whether I should try methotrexate again or start on rituximab infusion. Any suggestions or advice will be very much appreciated.

Flowers2020in NRAS

Feeling shivery cold after rituximab - had infusion four weeks ago and am feeling very cold and shivery - anyone else feel like this ?

Feeling cold shivery and very tired after having rituximab infusion - anyone else feel like this ?Feeling cold shivery and very tired after having rituximab infusion - anyone else feel like this ?

beachbabein NRAS

FDA approves ibrutinib plus rituximab for chronic lymphocytic leukemia

https://www.fda.gov/drugs/drug-approvals-and-databases/fda-approves-ibrutinib-plus-rituximab-chronic-lymphocytic-leukemia?fbclid=IwAR02tCtziW0mkgktq3Pg_o5drjFaH1xYBYArkn4ZlVicIo7pVzStrrFKWs4https://www.fda.gov/drugs/drug-approvals-and-databases/fda-approves-ibrutinib-plus-rituximab-chronic-lymphocytic-leukemia?fbclid=IwAR02tCtziW0mkgktq3Pg_o5drjFaH1xYBYArkn4ZlVicIo7pVzStrrFKWs4

chickenandwafflesin CLL Support

Rituximab/anxiety

Rituximab Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in lateRituximab Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late

Vonnie10in NRAS

Coronavirus - very worried

Suffer from Rituximab induced Hypogammaglobulinaemia which means than my immune system has been compromised by 12 years treatment with Rituximab. I now require immunoglobulin infusions weekly to maintain my immune system.Suffer from Rituximab induced Hypogammaglobulinaemia which means than my immune system has been compromised by 12 years treatment with Rituximab. I now require immunoglobulin infusions weekly to maintain my immune system.

What is your experience of Rituximab infusions for Wegeners?

The doctor wants me to change the medication to Rituximab infusions. Has anyone had a similar experience? I am a bit concerned . It seems quite early for a relapse and I feel it is back to square one. How is your experience of Rituximab ?The doctor wants me to change the medication to Rituximab infusions. Has anyone had a similar experience? I am a bit concerned . It seems quite early for a relapse and I feel it is back to square one. How is your experience of Rituximab ?

Condensationin Vasculitis UK

Rituximab

Feel a but let down by health system. I have had UCTD diagnosed 40 years ago and take hydroxychloriquine, I am milk and egg intolerant; so been on strict exclusion for 8 months. I’ve lost weight and don’t smoke. My sister had had diagnosis for 3 years and has just been offered biological treatment. IFeel a but let down by health system. I have had UCTD diagnosed 40 years ago and take hydroxychloriquine, I am milk and egg intolerant; so been on strict exclusion for 8 months. I’ve lost weight and don’t smoke. My sister had had diagnosis for 3 years and has just been offered biological treatment. I

awrigoin LUPUS UK

Difficulty concentrating???

I had a hemorrhagic stroke in 2017 followed by my NHL diagnosis in 2018 & treatment with Rituximab. Ever since I've noticed a shift in my cognitive abilities especially with concentrating and comprehension. Anyone else had that experience? What did you do about it?I had a hemorrhagic stroke in 2017 followed by my NHL diagnosis in 2018 & treatment with Rituximab. Ever since I've noticed a shift in my cognitive abilities especially with concentrating and comprehension. Anyone else had that experience? What did you do about it?

TigerMin Non Hodgkin's Lymphoma Friends

What to try next? Big flare after having baby and having problems finding a new medication.

Been for a Rituximab infusion today and had a reaction to it so it was stopped. (Apparently This is quite rare apparently - don’t want to put anyone off) I’m wondering what’s left for me to try? I have only tried one TNF And then this Rituximab. Will there be other things for me to try?Been for a Rituximab infusion today and had a reaction to it so it was stopped. (Apparently This is quite rare apparently - don’t want to put anyone off) I’m wondering what’s left for me to try? I have only tried one TNF And then this Rituximab. Will there be other things for me to try?

Claire32in NRAS

Rituximab subsequent courses

As Rituximab takes a while to kick in, why do they leave it so long between courses? It feels like being on a rollercoaster . It took 14 weeks for my husband to feel the benefits of his first course. After 6 months the effects tailed off.As Rituximab takes a while to kick in, why do they leave it so long between courses? It feels like being on a rollercoaster . It took 14 weeks for my husband to feel the benefits of his first course. After 6 months the effects tailed off.

Pop007in LUPUS UK

Advice on blood tests at the moment

Hi All I would really like your thoughts, I am soon due for for my 12 week post rituximab blood test and in all honesty am not at all keen to go. Would you say it was vital or in the circumstances would it be ok to give it a miss or delay for a while? Thanks JennyHi All I would really like your thoughts, I am soon due for for my 12 week post rituximab blood test and in all honesty am not at all keen to go. Would you say it was vital or in the circumstances would it be ok to give it a miss or delay for a while? Thanks Jenny

Jenny14in Vasculitis UK

Rituximab risk from Covid19 coronavirus

Im on rituximab for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to workIm on rituximab for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work

jeanette60in LUPUS UK

High platelets and poor consult

I am on rituximab had my 2 infusions January. I expressed concerns to previous out of retirement consultant that it was no longer working. She then asked me if I wanted to continue with rituximab I replied that I was aware it was in my system until July.I am on rituximab had my 2 infusions January. I expressed concerns to previous out of retirement consultant that it was no longer working. She then asked me if I wanted to continue with rituximab I replied that I was aware it was in my system until July.

28maggie11in NRAS

Vasculitis chest probs

Hi had my first infusion of rituximab days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,Hi had my first infusion of rituximab days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,

Cookyboy1in Vasculitis UK

How effective is venetoclax for 17p tp53?

His hemalotogist said that maybe he will add Rituximab. My questions are: How effective is the monotherapy with venetoclax for 17p to53? And if it’s better to add Rituximab? He could be on remission a long time? Does the neutropenia dessapear? When he recover all of the energy? He feel a tired.His hemalotogist said that maybe he will add Rituximab. My questions are: How effective is the monotherapy with venetoclax for 17p to53? And if it’s better to add Rituximab? He could be on remission a long time? Does the neutropenia dessapear? When he recover all of the energy? He feel a tired.

Cgr2018in CLL Support

Getting a letter?

Having SLE, on steroids, had rituximab in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really really unsure. Very worrying times just now.Having SLE, on steroids, had rituximab in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really really unsure. Very worrying times just now.

Kitman1in LUPUS UK

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