Experiences with

Rituximab

he guys so I had my second infusion today as was supposed to have last week but postponed due to a horrible cold I manged to pick up from my grandchildren. It went very well and although I'm now in bed I felt reasonably well afterwards, I start my 5 day iloppast infusions on the 25th November and theyvaound

hey all just thought I would update all on the Rituximab infusion that I had on Tuesday after lots of fear and apprehension it really wasn’t that bad although my veins kept pushing out the cannula and I did have to stop for 1 hr due to itchy tounge and ears ?

I’m due to have my first Rituximab infusion in a few weeks, I got diagnosed with anti CCP Rheumatoid Arthritis 3 years ago and have yet to find the right treatment. Does anyone have any experience of this drug and how it made you feel? I’m ever hopeful this will be the one.

Can Rituximab cause your blood pressure to go high? At the end of a Rituximab treatment blood pressure had gone up quite high and is still high three days later.

I'm about to have my first RTX infusion and am apprehensive. Could anyone tell me what to expect please?

Good morning, Had my second Rituximab on Thursday , had rituximab for quite a few years and never had a problem before but after this last session, it’s knocked the stuffing out of me . my joints are quite bad especially my hands , never had this before , feel quite rubbish today .

Can anyone who has had Rituximab please share your experience of the infusion and whether your medication has changed much since. I need to make a decision by the end of the day and just have no idea what to do. I’m trying not to stress but it’s stressing me out.

My question is has anyone gone into remission without ever having Rituximab? Thanks for any replies 😊

I can’t see anything online about needing to stop it ahead of the Rituximab treatment but I am aware it’s a relatively new drug so there may not be many studies done yet.

my mum did 3 yrs on ibrutinib but was stopped due to cardio toxicity. She has been treatment free for 2 years but is now about to start V and R …. Originally it was Venetoclax plus obinutuzumab. What is the difference, we have an appointment on the 18th to discuss but I just want to be clear. Mum

I recently had my 4th Rituximab infusion & afterwards was devastated to be advised by my Rhuematoid Nurse that because of it, I cannot have ANY vaccinations for 6 months from now! and I’m overdue my Flu & Covid jabs for the coming winter … does anyone else know this ???

any of you has personal or otherwise experiences with rituximab use in combination with prednison. Like many of us, I keep on “ flaring” when I diminish my dose of prednison. There might be better out ome with a combination. But not widespread a aila le, and expensive. Thanks.

I had my first Rituximab at the beginning of July, the second a couple of weeks later and a couple of Iloprosts since then. I did not enjoy the infusions or the after effects but they aren’t meant to be fun! I have my follow up in the middle of next month. Progress so far?

Does everyone keep taking a maintenance dose after Rituximab. So many questions 🙄 happy days everyone xx

About to have my second round of Rituximab. I had the first in November last year, it didn’t work until about late March/April (I thought it wasn’t going to work by then), can I hope that there will be some of the Rituximab left in my body and that this new round will start working more quickly?

Is it normal for platelets to drop a few weeks after Rituximab treatment? Is this concerning? Immediately after last Rituximab treatment platelets were 216 and 6 weeks later they are 115. Most other blood levels have improved.

Had first Rituximab infusion yesterday and all good. Blood pressure high on arrival but came down OK. No allergic reactions. This morning I have woken to greatly reduced swelling, no aches, pains or sore joints . Completely on a high. Hope it lasts. Next infusion 8th July.

Hi, I suffer from arthritis and on Rituximab and methotrexate, so you’d think that I would be pain free all of the time 😬 but I’ve started to go for 30 minute walks but my back starts to seize up and hurt when I walk. Any tips on what to do to prevent this?

My Rheumatologist advised to stop the adalimumab injections because of my hair loss and has recommended a six monthly Rituximab infusion. Has anyone experienced this treatment - for better, or, worse?

I have Rheumatoid arthritis and myasenthia gravis and have been Rituximab for about 5 years. That had work good me. Now they are doing a new Bio similar drug Ruxience by Pfizer. Has anyone taken the Ruxience ? If so did you have side effects? Did it help?