Experiences with

Rituximab

How have people found rituximab, during the infusion and after? Any advice? Will I need to book time off work for recovery or just for the infusion? Am I panicking unduly? How have people found Mycophenolate?

I'm new to this platform and tomorrow I have my first Rituximab infusion. I was diagnosed with Vasculitis GPA last month. I've never had any hospital treatment before so a little nervous. I'm curious about other people's experiences during their first Rituximab infusion?

My dad will likely soon be starting venetoclax and rituximab in the UK after a bone marrow biopsy in a couple of weeks. He previously received ibrutinib (and rituximab) through the FLAIR trial and has been treatment free for four years.

hi rheumatologist recommended rituximab infusion to help reduce symptoms (painful joints, grottons papules, breathlessness, fatigue), but mentioned there are a lot of side effects. Already on Mycophenolate and hydroxychloroquine. Anybody had this pls, any side effects?

I had my 2nd infusion of Rituximab on Feb 20 this yr. The RA Dr said it could take 6 weeks to notice anything. And so far there's been no change in the inflammation and RA flares I'm having. Was hoping to see a slight improvement.

My Consultant has stated that my Rheumatoid Arthritis is active and I should start the Rituximab soon.

Hello, I had my first rituximab infusion 3 weeks ago. I had a couple of reactions which they managed to control with steroids and antihistamines, I seemed to react every time the infusion rate went above 12.5 (the lowest).

Hi, I’ve had 6 Rituximab infusions now and I have to say it a life saver. I think I just felt tired from the first one but after that all good. And I have my life back. I also have GPA Vasculitus. All the best.

Any advice from people on rituximab would be very helpful. Thanks for reading.

I had me last infusion nearly 4 months ago but have been on Rituximab nearly 4 years. But itchy skin blimey it’s driving me mad. Had my bloods done last 4 months ago all was good as they always are. I have had some E45 anti itch on prescription, it eases it a bit but doesent take it away.

he guys so I had my second infusion today as was supposed to have last week but postponed due to a horrible cold I manged to pick up from my grandchildren. It went very well and although I'm now in bed I felt reasonably well afterwards, I start my 5 day iloppast infusions on the 25th November and theyvaound

Will Rituximab control RA more over time and continued use. I was on biological for years until withdrawal after two primary cancers so didn't have this problem. My body and mind are confused from all the highs and lows of out of control RA for the last 2 years.

I have been on steroids, rituximab and mycophenolate at various times. However, when my doses are reduced, the hemolysis comes back quickly. Has anyone any good experiences of a different medication.

hey all just thought I would update all on the Rituximab infusion that I had on Tuesday after lots of fear and apprehension it really wasn’t that bad although my veins kept pushing out the cannula and I did have to stop for 1 hr due to itchy tounge and ears ?

So I had my bloods done 6 weeks ago, my ANCA marker was really low and consistent with previous readings, 5 weeks ago I had my last infusion of Rituximab. Since I have been on Rituximab I havnt had a flare of any kind.

Good morning everyone 😊 I had rituximab last in spring 2020 (my first ever) and this last winter I've had a flare up of my symptoms. Some of my symptoms are quite painful, such as my hands/fingers and knees and a rash on my face, neck, arm, toes.

Two years of prednisone followed, along with 8 infusions of Rituximab. As I was finishing up and going into remission, my dental x-rays showed numerous new cavities, necessitating much dental work. I hesitate to blame the drugs I needed to take care of the MPA.

I’m due to have my first Rituximab infusion in a few weeks, I got diagnosed with anti CCP Rheumatoid Arthritis 3 years ago and have yet to find the right treatment. Does anyone have any experience of this drug and how it made you feel? I’m ever hopeful this will be the one.

I can’t see anything online about needing to stop it ahead of the Rituximab treatment but I am aware it’s a relatively new drug so there may not be many studies done yet.

Can Rituximab cause your blood pressure to go high? At the end of a Rituximab treatment blood pressure had gone up quite high and is still high three days later.