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So much pain.....
I've been doing so well, one year on from a
rituximab
infusion, but today I can barely move - toes, ankles, knees, hips, fingers, wrists, elbows and shoulders are all hurting so much. I realise I did something that I shouldn't but is this a normal RA reaction?
I've been doing so well, one year on from a
rituximab
infusion, but today I can barely move - toes, ankles, knees, hips, fingers, wrists, elbows and shoulders are all hurting so much. I realise I did something that I shouldn't but is this a normal RA reaction?
Thereseh
in
NRAS
7 years ago
Tongue biting
Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth
Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth
Mosaicgigi
in
CLL Support
7 years ago
Chemo Side Effects FCR
Hi everyone! My dad is on his 4th round of what they call “aggressive chemo” for NHL. He is taking FCR with monthly infusions of antibodies,antibirala, antibiotics (to prevent shingles and pneumonia, as well as oral chemo and 7 days monthly of immune boosting injections. This round was particularly
Hi everyone! My dad is on his 4th round of what they call “aggressive chemo” for NHL. He is taking FCR with monthly infusions of antibodies,antibirala, antibiotics (to prevent shingles and pneumonia, as well as oral chemo and 7 days monthly of immune boosting injections. This round was particularly
Whitehouse_77
in
CLL Support
7 years ago
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Fungus
Hello again, on Monday our 2nd session will begin (
Rituximab
, Bendamustine therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin
Hello again, on Monday our 2nd session will begin (
Rituximab
, Bendamustine therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin
aylinozel
in
CLL Support
7 years ago
ITP and hair loss (alopecia)
I've had lots of immune suppresant drugs over the last year including
rituximab
, prednisilone, azathioprine and MMF. I'm not taking them now but I wonder whther withdrawing from them could have had an impact. I'm worried this will spread and I'll become completely bald !
I've had lots of immune suppresant drugs over the last year including
rituximab
, prednisilone, azathioprine and MMF. I'm not taking them now but I wonder whther withdrawing from them could have had an impact. I'm worried this will spread and I'll become completely bald !
prudencepayes
in
ITP Support Association
7 years ago
Rejection of claim for daycare rituximab cancer treatment by United India Insurance Co
They paid for my 3
rituximab
daycare tratment but now refusing saying that
rituximab
is a monoclonal antibody hence cannot be given. Though nothing mentioned in their policy terms . Their grievence cell has rejected to pay furtther. Need help & guidance to go further
They paid for my 3
rituximab
daycare tratment but now refusing saying that
rituximab
is a monoclonal antibody hence cannot be given. Though nothing mentioned in their policy terms . Their grievence cell has rejected to pay furtther. Need help & guidance to go further
munjalbom8
in
Breast Cancer India
7 years ago
Can anyone with SLE do intense exercise?
He is on mycophenolate and IV
rituximab
. His haemoglobin will definitely affect his aerobic ability and it is creeping upbeat at 10g at the moment. But it could normalise eventually?? He is 18 and incredibly optimistic about his future. That's just the way he is!
He is on mycophenolate and IV
rituximab
. His haemoglobin will definitely affect his aerobic ability and it is creeping upbeat at 10g at the moment. But it could normalise eventually?? He is 18 and incredibly optimistic about his future. That's just the way he is!
Deegraham
in
LUPUS UK
7 years ago
Dark Urine with Imbruvica ?
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
emarine
in
CLL Support
7 years ago
2017 - Bright and Dark
Greeting All, Always lurking and reading posts. After 6 x FCR in March '14 I'm still plodding on and even though my Consultant appointments have narrowed to 6 Weeks apart, there's been many bright spells during 2017 - in particular, 1. Free Car Parking at the hospital. (Once paid £22 during FCR Treatment
Greeting All, Always lurking and reading posts. After 6 x FCR in March '14 I'm still plodding on and even though my Consultant appointments have narrowed to 6 Weeks apart, there's been many bright spells during 2017 - in particular, 1. Free Car Parking at the hospital. (Once paid £22 during FCR Treatment
Bribin
in
CLL Support
7 years ago
Antibiotics and rituximab
Just started on
Rituximab
3 days ago and am due for my second treatment in two weeks. I have a UTI and have just started antibiotics for 7 days. Will this defer my next
rituximab
or will it be ok to have?
Just started on
Rituximab
3 days ago and am due for my second treatment in two weeks. I have a UTI and have just started antibiotics for 7 days. Will this defer my next
rituximab
or will it be ok to have?
gpaman
in
NRAS
7 years ago
Happy 2018... Choose your Pooh Bear Character!
Happy New year to you and all here! This forum becomes our sounding board, our counselling session, our font of knowledge, our diary to log and share our darkest thoughts, our laughter but most importantly our support. It's a while since I wrote on here but I still dip in constantly. I'm now just over
Happy New year to you and all here! This forum becomes our sounding board, our counselling session, our font of knowledge, our diary to log and share our darkest thoughts, our laughter but most importantly our support. It's a while since I wrote on here but I still dip in constantly. I'm now just over
Bethan49
in
CLL Support
7 years ago
Watch and wait is over
Hi all, I was diagnosed 3 years ago with CLL, I am now 53 yo and with wbc up and platelets down as well as swollen lymph nodes and enlarged spleen my Doctor has started me on treatments. I am going to Dana Farber and taking part of a study that combines Ibrutinib with standard FCR treatment. I will take
Hi all, I was diagnosed 3 years ago with CLL, I am now 53 yo and with wbc up and platelets down as well as swollen lymph nodes and enlarged spleen my Doctor has started me on treatments. I am going to Dana Farber and taking part of a study that combines Ibrutinib with standard FCR treatment. I will take
Mosaicgigi
in
CLL Support
7 years ago
ANA used to be 1:1320 but is now negative. Thoughts?
I was initially treated with prednisone, and, since it proved to be insufficient at regular doses, I was later introduced to 3000mg solumedrol and 4 infusions of
rituximab
. Platelets returned to normal and have stayed high for 3 years (absent any further meds).
I was initially treated with prednisone, and, since it proved to be insufficient at regular doses, I was later introduced to 3000mg solumedrol and 4 infusions of
rituximab
. Platelets returned to normal and have stayed high for 3 years (absent any further meds).
Newla
in
LUPUS UK
7 years ago
stopped imbruvica
I was on imbruvica (3 pills 420) for about 3 months and CBC test came back better, however I got so sick my doctor stopped me that was about 10 weeks ago and my CBC tests looked almost normal. he wants me to try one pill a day but there is no way I am taking imbruvica again. I had chemo FCR in 2009
I was on imbruvica (3 pills 420) for about 3 months and CBC test came back better, however I got so sick my doctor stopped me that was about 10 weeks ago and my CBC tests looked almost normal. he wants me to try one pill a day but there is no way I am taking imbruvica again. I had chemo FCR in 2009
The_Eagle
in
CLL Support
7 years ago
Change of diagnosis
Started
rituximab
March this year. Thanks in advance.
Started
rituximab
March this year. Thanks in advance.
maisie5
in
Vasculitis UK
7 years ago
Update on wbc
I will be interesting to see how i feel off the plaquenil, i just hope all of this will not mean that i have to stop the
rituximab
due in the new year . Best wishes to all and keep warm xx
I will be interesting to see how i feel off the plaquenil, i just hope all of this will not mean that i have to stop the
rituximab
due in the new year . Best wishes to all and keep warm xx
weathervane
in
LUPUS UK
7 years ago
immunoglobulin replacement therapy
My low immunoglobulin levels are caused by
rituximab
. Has anyone had this treatment? did it work? are there any questions I should be asking the doctor at my appointment? Many thanks
My low immunoglobulin levels are caused by
rituximab
. Has anyone had this treatment? did it work? are there any questions I should be asking the doctor at my appointment? Many thanks
Mooka
in
Vasculitis UK
7 years ago
Stress and anxiety
I have hospital appointment on Thursday for my first
rituximab
infusion. I have been looking forward to having this done because my health has been so bad this last 2 years. I am on the verge of panic attack sometimes. Does anyone else feel like this and how do you cope.
I have hospital appointment on Thursday for my first
rituximab
infusion. I have been looking forward to having this done because my health has been so bad this last 2 years. I am on the verge of panic attack sometimes. Does anyone else feel like this and how do you cope.
Maverick77
in
LUPUS UK
7 years ago
Three weeks and bruising...
There is confusion around the second
Rituximab
drip session - apparently they got authorisation and supply of
Rituximab
for both sessions but now they say they are only giving her one. Why? Trying to find out.
There is confusion around the second
Rituximab
drip session - apparently they got authorisation and supply of
Rituximab
for both sessions but now they say they are only giving her one. Why? Trying to find out.
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
7 years ago
Rituximab for skin condition -- plus caretaker needs mental health check
My husband has been told he may need to start
rituximab
to combat the immune-related skin lesions he's had for the past two months.
My husband has been told he may need to start
rituximab
to combat the immune-related skin lesions he's had for the past two months.
Akapiratequeen
in
CLL Support
7 years ago
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