Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,507 public posts
Filter results
Working diagnosis Vasculitis responsible for Neuropathy secondary to R/A. Previous PMR diagnosis
For working diagnosis
Rituximab
intrusion (8 hours) spared with 250mlg of steroid intrusion (New dug to us, any comments welcome)?
For working diagnosis
Rituximab
intrusion (8 hours) spared with 250mlg of steroid intrusion (New dug to us, any comments welcome)?
Sonofjimmy
in
PMRGCAuk
6 years ago
Low white cell count - raising it with smoothies ?😳
Hello all , recap of probelm , wbc fluctuating between low and very low since August due to
rituximab
treatment for Sjögrens , slipped disc in December and need disc surgery .
Hello all , recap of probelm , wbc fluctuating between low and very low since August due to
rituximab
treatment for Sjögrens , slipped disc in December and need disc surgery .
weathervane
in
LUPUS UK
6 years ago
Big pharma and cancer
Go to ft.com/pharmaceuticals There was also an article: « Drugmakers take an unorthodox route to cancer biosimilars » about the NHS buying Chinese biosimilar version, which they call « copycat » of
Rituximab
, Trastuzumab marketed as Herceptin, Bevacizumab marketed as Avastin.
Go to ft.com/pharmaceuticals There was also an article: « Drugmakers take an unorthodox route to cancer biosimilars » about the NHS buying Chinese biosimilar version, which they call « copycat » of
Rituximab
, Trastuzumab marketed as Herceptin, Bevacizumab marketed as Avastin.
Hidden
in
Lung Conditions Community Forum
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Second day of first FCR
So second dose of FCR with the long dose of
Rituximab
. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now!
So second dose of FCR with the long dose of
Rituximab
. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now!
Mandy56
in
CLL Support
6 years ago
Burning Pins & Needles!
I also had my first 2 cycles of
Rituximab
in December and touch wood since then have felt better than I have for a long, long time. I think, fingers crossed, that it seems to be working. My problem is for the last 6 months I have had this burning pain (like pins & needles on steroids!)
I also had my first 2 cycles of
Rituximab
in December and touch wood since then have felt better than I have for a long, long time. I think, fingers crossed, that it seems to be working. My problem is for the last 6 months I have had this burning pain (like pins & needles on steroids!)
Bakbre
in
LUPUS UK
6 years ago
Starting Rituximab infusions for EGPA/Churg-Strauss
Help! I'm starting Rituxan infusions next Monday and I'm apprehensive. My EGPA-ChurgStrauss was being controlled (sorta) by prednisone (up and down a lot but was tapered to 8mg) + 150mg Azathioprine, plus a host of others meds for related... seemed ok for about a year. Recently, after a difficult winter
Help! I'm starting Rituxan infusions next Monday and I'm apprehensive. My EGPA-ChurgStrauss was being controlled (sorta) by prednisone (up and down a lot but was tapered to 8mg) + 150mg Azathioprine, plus a host of others meds for related... seemed ok for about a year. Recently, after a difficult winter
grindhaus
in
Vasculitis UK
6 years ago
Thoughts on CLL treatment and watch and wait
Speaking of FCR another option might be to combine ibrutinib with the R of FCR,
rituximab
. Or who knows maybe use all three together. If we combine all the main weapons in our arsenal together do we get a better, deeper,longer response? Or possibly even a cure?
Speaking of FCR another option might be to combine ibrutinib with the R of FCR,
rituximab
. Or who knows maybe use all three together. If we combine all the main weapons in our arsenal together do we get a better, deeper,longer response? Or possibly even a cure?
AdrianUK
in
CLL Support
6 years ago
Rituximab
Hi- has anyone received the
Rituximab
drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore swollen glands?
Hi- has anyone received the
Rituximab
drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore swollen glands?
yasmine
in
LUPUS UK
6 years ago
First time post!
She talked to us about 2 types of treatment Ibrutinib or a combo of
Rituximab
/Bendamustine. Waiting on results from the BM test. Trying to read up on them, what are some of the markers from his tests that I need to look for? I know she said he was unmutated IGVH.
She talked to us about 2 types of treatment Ibrutinib or a combo of
Rituximab
/Bendamustine. Waiting on results from the BM test. Trying to read up on them, what are some of the markers from his tests that I need to look for? I know she said he was unmutated IGVH.
brees
in
CLL Support
6 years ago
Query re Rituximab and being licensed treatment for lupus?
Why tell her what they did and do for the bloods for
Rituximab
if they didn’t intend to follow it through? Is
Rituximab
licensed for the treatment of lupus? Has anyone else faced these issues? I’ll be on again soon as I have another query. Thank you! Wendy
Why tell her what they did and do for the bloods for
Rituximab
if they didn’t intend to follow it through? Is
Rituximab
licensed for the treatment of lupus? Has anyone else faced these issues? I’ll be on again soon as I have another query. Thank you! Wendy
Wendy39
in
LUPUS UK
6 years ago
FCR-12 months on.
Hi All, Hope you are all doing well. Finished 6 cycles of FCR June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
Hi All, Hope you are all doing well. Finished 6 cycles of FCR June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
rsw147
in
CLL Support
6 years ago
Race for life - for all of you
Hi guys! I did the 5k race for life today in Scotland. For all of you. You are all in my heart. My hematologist told me last Thursday I’m getting treatment soon. And that I may only have 20 years if I’m lucky. And that I could die during my soon to come FCR! I choose not to let this drag me down
Hi guys! I did the 5k race for life today in Scotland. For all of you. You are all in my heart. My hematologist told me last Thursday I’m getting treatment soon. And that I may only have 20 years if I’m lucky. And that I could die during my soon to come FCR! I choose not to let this drag me down
Flabal
in
CLL Support
6 years ago
Rituximab pins and needles
Anybody else experienced this ? I had my infusion last Monday , Wednesday had pins and needles in my leg so much so that I had a numb foot .i stood up and my ankle buckled crashed to the floor and have broken my ankle .Ouch Currently off work and won’t be back for at least 2 months as my job involves
Anybody else experienced this ? I had my infusion last Monday , Wednesday had pins and needles in my leg so much so that I had a numb foot .i stood up and my ankle buckled crashed to the floor and have broken my ankle .Ouch Currently off work and won’t be back for at least 2 months as my job involves
Fifi2
in
NRAS
6 years ago
Are these symptoms part of your RD?
I’ve been diagnosed with RD for about 5 years now and am on MTX and
Rituximab
. But during the last few months these periods of feeling ill have all joined up and now I’m unable to anything other than lie on the sofa.
I’ve been diagnosed with RD for about 5 years now and am on MTX and
Rituximab
. But during the last few months these periods of feeling ill have all joined up and now I’m unable to anything other than lie on the sofa.
StormySeas
in
NRAS
6 years ago
Neutrophils level
Hi guys my husbands FCR treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Hi guys my husbands FCR treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Sailormoon11
in
CLL Support
6 years ago
Medical update
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE guidelines. I'm currently being reviewed on a 3 weekly basis. I was put on sreriods antivirals and antibiotics to treat the symptoms not the cause. The steroids
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE guidelines. I'm currently being reviewed on a 3 weekly basis. I was put on sreriods antivirals and antibiotics to treat the symptoms not the cause. The steroids
Mick491
in
CLL Support
6 years ago
Just getting through the day. Do you find this a supportive site/ informative site?
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the
RItuximab
dose its magic! One weary lass.
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the
RItuximab
dose its magic! One weary lass.
Mougette
in
Vasculitis UK
6 years ago
Just learning
Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had
rituximab
drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of
Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had
rituximab
drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of
HelenL75
in
LUPUS UK
6 years ago
Lessons from five years of ibrutinib experience
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either
rituximab
or venetoclax so it’s completely wiped our and doesn’t have the chance to evolve and come back.
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either
rituximab
or venetoclax so it’s completely wiped our and doesn’t have the chance to evolve and come back.
AdrianUK
in
CLL Support
6 years ago
Just Finished my First Round FCR!
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
GMa27
in
CLL Support
6 years ago
1
...
59
60
61
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1009 results
NRAS
560 results
Vasculitis UK
326 results
View top 10 communities
Sort by
Most Relevant
Newest