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Rituximab
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Length of FCR treatment
Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now. As far as I can remember it was written by an American female Cll
Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now. As far as I can remember it was written by an American female Cll
Kenn123
in
CLL Support
8 years ago
Simponi
So I've had advice that
Rituximab
is the way to go. I didn't like the look of it and after much consultation we agreed the 2nd best option was Simponi for which I've now had TB/HepB tests and wait result.
So I've had advice that
Rituximab
is the way to go. I didn't like the look of it and after much consultation we agreed the 2nd best option was Simponi for which I've now had TB/HepB tests and wait result.
harryhunt43
in
NRAS
8 years ago
Life after fcr...what can we expect?
Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to do round 6 and me round 5... So at the end of this round what are the best possible outcomes that we can expect. What measures should we be
Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to do round 6 and me round 5... So at the end of this round what are the best possible outcomes that we can expect. What measures should we be
Bethan49
in
CLL Support
8 years ago
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Rituximab infusion due, but no preliminary bloodtests?
I had two
Rituximab
infusions back in February and am due to have another two shortly. I have found my energy and mood have improved considerably.
I had two
Rituximab
infusions back in February and am due to have another two shortly. I have found my energy and mood have improved considerably.
Neriah
in
LUPUS UK
8 years ago
Expert advice please!
How long after
rituximab
do you need to contact gp if have sore throat? I had last infusion 22nd april , i have had a couple of infections that i got sorted, i now have a sore throat again and coughing up green nastiness (not sinus) , glands also enlarged.
How long after
rituximab
do you need to contact gp if have sore throat? I had last infusion 22nd april , i have had a couple of infections that i got sorted, i now have a sore throat again and coughing up green nastiness (not sinus) , glands also enlarged.
weathervane
in
NRAS
8 years ago
FLAIR Trial – Experiences post FCR – Recovery from Red Cell Cytopenia and Neutropenia
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
Ernest2
in
CLL Support
8 years ago
Second treatment looming
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
plett1234
in
CLL Support
8 years ago
About to start FCR
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Kenn123
in
CLL Support
8 years ago
What normally triggers the start of first treatment
Ibrutinib +
rituximab
). He quotes ( I think) white blood cell count, which went up from 9 to 66 in that year. The thing is, i don't feel unwell at all. I have some lumps on my neck and groin, but no weight loss, no night sweats, no fatigue, no fevers, no swollen spleen.
Ibrutinib +
rituximab
). He quotes ( I think) white blood cell count, which went up from 9 to 66 in that year. The thing is, i don't feel unwell at all. I have some lumps on my neck and groin, but no weight loss, no night sweats, no fatigue, no fevers, no swollen spleen.
Graham64
in
Healthy Eating
8 years ago
Repeated infections on Rituximab, Metho.and steroids
Letter states that my infections are associated with
Rituximab
and that I am hypogammaglobulinaemic, i.e.. clinically immunosuppressed after he has reviewed my blood results. These bloods were done April when I had my first of my
Rituximab
infusions (8th. cycle).
Letter states that my infections are associated with
Rituximab
and that I am hypogammaglobulinaemic, i.e.. clinically immunosuppressed after he has reviewed my blood results. These bloods were done April when I had my first of my
Rituximab
infusions (8th. cycle).
Scorer
in
NRAS
8 years ago
Adding additional chemo
If there is still no change in November, my Oncologist will add either .bendamustine and
rituximab
via infusion or an additional oral med called idelalisib. I am told the idelalisib carries many side effects.... Thoughts anyone?
If there is still no change in November, my Oncologist will add either .bendamustine and
rituximab
via infusion or an additional oral med called idelalisib. I am told the idelalisib carries many side effects.... Thoughts anyone?
lyn26041
in
CLL Support
8 years ago
Post Rituximab wipe-out
I had my first cycle of
Rituximab
last November. I felt I needed another around April/May, but it was postponed so that I could have my knee replacement. I also had to stop Mrthotrexate two weeks before the op.
I had my first cycle of
Rituximab
last November. I felt I needed another around April/May, but it was postponed so that I could have my knee replacement. I also had to stop Mrthotrexate two weeks before the op.
Jora
in
NRAS
8 years ago
ACP 196
I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
Kenn123
in
CLL Support
8 years ago
Recovery from strep throat
Any suggestions about the upcoming
rituximab
treatment so soon after? Thanks!!!!
Any suggestions about the upcoming
rituximab
treatment so soon after? Thanks!!!!
Hidden
in
Vasculitis UK
8 years ago
Wegener's spreading its wings.
My next infusion of
Rituximab
will be brought forward, probably within the next fortnight, and I have to have a new round of tests. My steroids have been increased from 10mg to 40mg with a progressive taper after
Rituximab
.
My next infusion of
Rituximab
will be brought forward, probably within the next fortnight, and I have to have a new round of tests. My steroids have been increased from 10mg to 40mg with a progressive taper after
Rituximab
.
lfu2
in
Vasculitis UK
8 years ago
Wegener's spreading its wings.
My next infusion of
Rituximab
will be brought forward, probably within the next fortnight, and I have to have a new round of tests. My steroids have been increased from 10mg to 40mg with a progressive taper after
Rituximab
. All this just when I thought I was getting used it and feeling fairly good.
My next infusion of
Rituximab
will be brought forward, probably within the next fortnight, and I have to have a new round of tests. My steroids have been increased from 10mg to 40mg with a progressive taper after
Rituximab
. All this just when I thought I was getting used it and feeling fairly good.
lfu2
in
NRAS
8 years ago
Rituximab and infections
Hello all, Am seeing my rheumatologist privately next week for a chat as I am becoming increasingly concerned about the number of infections I am experiencing whilst on
rituximab
therapy. I have been on
rituximab
now for ten years and it has proved to be a wonderful treatment for my RD of 43 years.
Hello all, Am seeing my rheumatologist privately next week for a chat as I am becoming increasingly concerned about the number of infections I am experiencing whilst on
rituximab
therapy. I have been on
rituximab
now for ten years and it has proved to be a wonderful treatment for my RD of 43 years.
Scorer
in
NRAS
8 years ago
FCR for IGHV unmutated
Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment. It's only now I've started serious research into FCR and discovered difference between being mutated
Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment. It's only now I've started serious research into FCR and discovered difference between being mutated
Kenn123
in
CLL Support
8 years ago
Rituximab side effects
Hi all had my rtx infusion yesterday when they had to give me double antihistamine due to reaction, last night I had a terrible night I was awake nearly all night with heart beating fast and fuzzy feeling in both arms, has anybody else noticed these side effects, I am due to have 2nd treatment in 2 weeks
Hi all had my rtx infusion yesterday when they had to give me double antihistamine due to reaction, last night I had a terrible night I was awake nearly all night with heart beating fast and fuzzy feeling in both arms, has anybody else noticed these side effects, I am due to have 2nd treatment in 2 weeks
debsy29
in
NRAS
8 years ago
About to start FCR
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
Kenn123
in
CLL Support
8 years ago
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