Just a quick update following my first cycle of Rituximab infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions.
Well it is now 3 weeks since the last one and I am still feeling very, very tired (after 7.30pm I am usually to be found fast asleep on the sofa!) but apart from that no other problems. I am still getting a few aches and pains but nothing I cannot cope with at the moment (I think the steroids are the reason for that). I am still on 10mg of steroids so don't really know if the Rituximab is working yet. My Rheumy told me that I have to start decreasing the steroids by 1mg monthly but only after 6 weeks have passed since my last infusion, so that will be in another 3 weeks.
Will let you know how it goes!