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First experience of Ibrutinin and rituximab
This week I started treatment and so far so good. 100ml on Thursday with no adverse effects then 500ml yesterday again no problems Making sure I hydrate and moisturise. Using coconut oil and frankincense twice a day on hands and feet to ward off cracks and sores. Daily tablets regime needs some getting
This week I started treatment and so far so good. 100ml on Thursday with no adverse effects then 500ml yesterday again no problems Making sure I hydrate and moisturise. Using coconut oil and frankincense twice a day on hands and feet to ward off cracks and sores. Daily tablets regime needs some getting
KAS8
in
CLL Support
7 years ago
Treatment Tradeoffs. Very good Video. Debate: Is it appropriate to treat patients with CLL earlier in the era of novel agents? Dr. Furman
Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the era of novel agents, it is not appropriate to treat CLL patients earlier than before. https://www.youtube.com/watch?v=AN3yUS8ZuKc FCR vs. Ibruvica
Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the era of novel agents, it is not appropriate to treat CLL patients earlier than before. https://www.youtube.com/watch?v=AN3yUS8ZuKc FCR vs. Ibruvica
Hoffy
in
CLL Support
7 years ago
New to all of this....
I was also given
Rituximab
which has been a success so far. I asked to try Azathioprine first as we hope that one day we can have another baby but unfortunately it didn't agree with me on two occasions so I started Methotrexate back in Oct 2016 and all seems well at the moment.
I was also given
Rituximab
which has been a success so far. I asked to try Azathioprine first as we hope that one day we can have another baby but unfortunately it didn't agree with me on two occasions so I started Methotrexate back in Oct 2016 and all seems well at the moment.
staceyfitz88
in
Vasculitis UK
7 years ago
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Question!
Please can you tell me if
Rituximab
(Mabthera) will cause hair fall??? Who tried or have experience with this drug! I read the possible side effects and I was completely scared! I don't know what to do!!!
Please can you tell me if
Rituximab
(Mabthera) will cause hair fall??? Who tried or have experience with this drug! I read the possible side effects and I was completely scared! I don't know what to do!!!
Deniss
in
ITP Support Association
7 years ago
New to this Community
I've had
rituximab
x3 which helped to reduce my steriods. Symptoms for both PAN and GPA were similar, but the only difference being that PAN affected my kidneys and GPA is affecting my lungs and respiratory system.
I've had
rituximab
x3 which helped to reduce my steriods. Symptoms for both PAN and GPA were similar, but the only difference being that PAN affected my kidneys and GPA is affecting my lungs and respiratory system.
philtw
in
Vasculitis UK
7 years ago
CAR-T Clinical Trial
In 3 years she progressed after R-CHOP (6 cycles), bendamustine/
rituximab
(6 cycles), and Ibrutinib (12 months). Then she took Idelalisib/
rituximab
as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again.
In 3 years she progressed after R-CHOP (6 cycles), bendamustine/
rituximab
(6 cycles), and Ibrutinib (12 months). Then she took Idelalisib/
rituximab
as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again.
wmay13241
in
Understanding Clinical Trials
7 years ago
Treatment choices and work or not to work
Hello again. When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we
Hello again. When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we
Eebie1234
in
CLL Support
7 years ago
Flair Trial - FCR first dose
Hi all Arrived hospital Monday morning 8.45am for first infusion of
rituximab
but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday.
Hi all Arrived hospital Monday morning 8.45am for first infusion of
rituximab
but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday.
sallyplest
in
CLL Support
7 years ago
Chronic ITP
They've started treatment with IVIG, Prednisone , Dexamethasone, when rho, Cell Cept, Promacta,
Rituximab
, Prostate . She had good response to dex and
rituximab
the first time then stopped responding. Her platelets are always under 10,000 the most is 4 or 6.
They've started treatment with IVIG, Prednisone , Dexamethasone, when rho, Cell Cept, Promacta,
Rituximab
, Prostate . She had good response to dex and
rituximab
the first time then stopped responding. Her platelets are always under 10,000 the most is 4 or 6.
Kifah90
in
ITP Support Association
7 years ago
Explainer: what is the blood-brain barrier and how can we overcome it?
sso-checked=true There have been a few attempts at trials with
Rituximab
, but slow recruitment challenges the ability to gain adequate data. Neil Photo: Eucalyptus (gum tree) blossom
sso-checked=true There have been a few attempts at trials with
Rituximab
, but slow recruitment challenges the ability to gain adequate data. Neil Photo: Eucalyptus (gum tree) blossom
AussieNeil
Partner
in
CLL Support
7 years ago
Fludarabine, cyclophosphamide, and rituximab as first-line treatment for CLL
Full article at: https://communityview.lls.org/articles/fludarabine-cyclophosphamide-and-
rituximab
-as-first-line-treatment-for-cll
Full article at: https://communityview.lls.org/articles/fludarabine-cyclophosphamide-and-
rituximab
-as-first-line-treatment-for-cll
wmay13241
in
CLL Support
7 years ago
On biological infusions to help my arthritis caused by my Lupus and white blood cells keep dropping..
Have been on this infusion for 5months now. ( Did try
Rituximab
but had a severe reaction and throat started closing off so changed to the new drug) Anyone been through same sort of thing with white cell count with infusions as ive never had this issue really any info you can give me?
Have been on this infusion for 5months now. ( Did try
Rituximab
but had a severe reaction and throat started closing off so changed to the new drug) Anyone been through same sort of thing with white cell count with infusions as ive never had this issue really any info you can give me?
Mellisa1066
in
LUPUS UK
7 years ago
Room spinning- help!
Is this related to sjogrens or could it be due to
rituximab
infusions in January? Also should I just rest or contact out of hours doc ( we have a good service) . Ive no nausea I just feel weird- my husband says this is normal🙁
Is this related to sjogrens or could it be due to
rituximab
infusions in January? Also should I just rest or contact out of hours doc ( we have a good service) . Ive no nausea I just feel weird- my husband says this is normal🙁
weathervane
in
The Australian Sjögren's Syndrome Association
7 years ago
Room spinning- help!
Is this related to sjogrens or could it be due to
rituximab
infusions in January? Also should I just rest or contact out of hours doc ( we have a good service) . Ive no nausea I just feel weird- my husband says this is normal🙁
Is this related to sjogrens or could it be due to
rituximab
infusions in January? Also should I just rest or contact out of hours doc ( we have a good service) . Ive no nausea I just feel weird- my husband says this is normal🙁
weathervane
in
LUPUS UK
7 years ago
Eye infection –Lupus -Rituximab
As I have found when I have a cold, flu or any kind of infection I was floored for the weekend which I expected However, my worry is that I had
Rituximab
infusion in January (Even though it didn’t go to plan) and I am due to restart the treatment on Thursday.
As I have found when I have a cold, flu or any kind of infection I was floored for the weekend which I expected However, my worry is that I had
Rituximab
infusion in January (Even though it didn’t go to plan) and I am due to restart the treatment on Thursday.
wotshernameagain
in
LUPUS UK
7 years ago
Sternum tenderness and neck swelling 🙁
I have primary sjogrens which has caused lymph node enlargement, muscle and joint pain , i have had two lots of
rituximab
. I don't think its costochonditis as ribs are ok . Do you think its the lymph nodes acting up again ? I didn't have sternum involvement before .
I have primary sjogrens which has caused lymph node enlargement, muscle and joint pain , i have had two lots of
rituximab
. I don't think its costochonditis as ribs are ok . Do you think its the lymph nodes acting up again ? I didn't have sternum involvement before .
weathervane
in
LUPUS UK
7 years ago
6 months post FCR and let me introduce Brewster to you all!
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
Bethan49
in
CLL Support
7 years ago
Treatment
Hi, has anyone been given a combination of bendamustadine and
rituximab
as a maintenance treatment? I have read that this can prolong remission further than
rituximab
alone. I don't think this is available yet in UK as a standard treatment. However, I believe it may be under consideration.
Hi, has anyone been given a combination of bendamustadine and
rituximab
as a maintenance treatment? I have read that this can prolong remission further than
rituximab
alone. I don't think this is available yet in UK as a standard treatment. However, I believe it may be under consideration.
Hidden
in
Non Hodgkin's Lymphoma Friends
7 years ago
Rituximab
This drug has been suggested to me today anybody on it ? Thoughts Course I googled it 😳
This drug has been suggested to me today anybody on it ? Thoughts Course I googled it 😳
poodlegal
in
LUPUS UK
7 years ago
High pulse
I am on
rituximab
and prednisilone 7.5mg. I'm worried encase it's lupus causing it. Recently had a chest infection but a lot better now and pulse still high 😔
I am on
rituximab
and prednisilone 7.5mg. I'm worried encase it's lupus causing it. Recently had a chest infection but a lot better now and pulse still high 😔
joannebond360
in
LUPUS UK
7 years ago
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