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Polycythaemia vera
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Christmas message 2019 from the team at MPN Voice
vera
, will be launching in 2020.
vera
, will be launching in 2020.
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Itchy rash more
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Daffodilia
in
PMRGCAuk
5 years ago
Can I ask my hairdresser to dye my hair if I take Hydroxycarbamide? I have had Polycythaemia Vera for 2 years.
I’m not sure if it’s ok to get my hair dyed. Does anyone do this whilst taking Hydroxycarbamide and have you had side effects please?
I’m not sure if it’s ok to get my hair dyed. Does anyone do this whilst taking Hydroxycarbamide and have you had side effects please?
SusiePlums
in
MPN Voice
5 years ago
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Aloe vera and vasculitis
Is Aloe vera helpful for skin conditions affected by Vasculitis?
Is Aloe vera helpful for skin conditions affected by Vasculitis?
GoldenOriel
in
Vasculitis UK
5 years ago
My Latest Blood Test Results
Friends, I've done my blood test today. These are the results.
FBS = 111 mg/dL
Fasting serum Insulin = 9.9 mu-IU/mL
Insulin Resistance:
Current HOMA-IR = (Glucose x Insulin) / 405 = 111 X 9.9/405= 2.713 Historical values: a) Aug 2019: 114 X 11.9/405 = 3.34 b) Feb 2019: 111
Friends, I've done my blood test today. These are the results.
FBS = 111 mg/dL
Fasting serum Insulin = 9.9 mu-IU/mL
Insulin Resistance:
Current HOMA-IR = (Glucose x Insulin) / 405 = 111 X 9.9/405= 2.713 Historical values: a) Aug 2019: 114 X 11.9/405 = 3.34 b) Feb 2019: 111
barani19
Administrator
in
Diabetes India
5 years ago
High HbA1c Updates after 2 weeks test results
Further to my last last post where i had asked for diet, exercise and other changes for reducing high level of HbA1c (16.1) , FBS (266 mg/dL) & PPBS (333 mg/dL) at that time. These are further test results which i have undergone. I have posted queries at the bottom of my post. Please give your valuable
Further to my last last post where i had asked for diet, exercise and other changes for reducing high level of HbA1c (16.1) , FBS (266 mg/dL) & PPBS (333 mg/dL) at that time. These are further test results which i have undergone. I have posted queries at the bottom of my post. Please give your valuable
prashantr
in
Diabetes India
5 years ago
Itchy Scalp
My head gets a burning itch but only at night. I get severe night sweats and I thought maybe it was the sweating causing it but now I’m finding I’m waking up with an itchy head even if I’m not sweating. I have changed laundry detergent, tried two different anti itch shampoos but nothing is working.
My head gets a burning itch but only at night. I get severe night sweats and I thought maybe it was the sweating causing it but now I’m finding I’m waking up with an itchy head even if I’m not sweating. I have changed laundry detergent, tried two different anti itch shampoos but nothing is working.
Hidden
in
SHARE Metastatic Breast Cancer
5 years ago
Help
so I had my coil removed on 27th September and went straight on the evra patch after removal. I had a period for about 2 weeks after it was removed and then I've had old brown bleeding ever since. However 2 days ago I have started bleeding more and its now bright red blood (basically a period) with clots.This
so I had my coil removed on 27th September and went straight on the evra patch after removal. I had a period for about 2 weeks after it was removed and then I've had old brown bleeding ever since. However 2 days ago I have started bleeding more and its now bright red blood (basically a period) with clots.This
tinkerbell971
in
Pelvic Pain Support Network
5 years ago
after coil removal
so I had my coil removed on 27th September and went straight on the evra patch after removal. I had a period for about 2 weeks after it was removed and then I've had old brown bleeding ever since. However yesterday, I have started bleeding more and its now bright red blood but only of a nighttime, I'm
so I had my coil removed on 27th September and went straight on the evra patch after removal. I had a period for about 2 weeks after it was removed and then I've had old brown bleeding ever since. However yesterday, I have started bleeding more and its now bright red blood but only of a nighttime, I'm
tinkerbell971
in
Endometriosis UK
5 years ago
'ello vera
Such a sweetie hubby got some amzon vouchers for his birthday and he got me a gift with some if it. An aloe vera plant so I can snip bits of the leaves off and rub frsh aloe vera on my super dry and sore hands. Feels lovely I have to say.
Such a sweetie hubby got some amzon vouchers for his birthday and he got me a gift with some if it. An aloe vera plant so I can snip bits of the leaves off and rub frsh aloe vera on my super dry and sore hands. Feels lovely I have to say.
Hidden
in
NRAS
5 years ago
Does anybody else have Polycythaemia Vera with CAL R and TET2 mutations? My doctors seem to be very confused..
Hey everyone, My name is Erik I’m new here and if anybody has any info they could share with me about this, as I was just diagnosed in December 2018, but haven’t been feeling good for a very long time I would appreciate it!Thank you in advance.
Hey everyone, My name is Erik I’m new here and if anybody has any info they could share with me about this, as I was just diagnosed in December 2018, but haven’t been feeling good for a very long time I would appreciate it!Thank you in advance.
Emurr
in
MPN Voice
5 years ago
Aloe vera juice
Has anyone had experience with aloe vera juice 20% aloe effective or no. My ex girlfriend has given me some to try Izab
Has anyone had experience with aloe vera juice 20% aloe effective or no. My ex girlfriend has given me some to try Izab
Izab
in
Advanced Prostate Cancer
5 years ago
Allergy to razor blade?
Hy guys, Maybe i can find here an opinion. I used on tuesday evening a blade razor, and i got next day little red bumps and they were itchy. I wear only pants and they are kinda stretching around my belly. Yesterday i saw that i got swallow there. First picture is before i put alcohol, insect bites
Hy guys, Maybe i can find here an opinion. I used on tuesday evening a blade razor, and i got next day little red bumps and they were itchy. I wear only pants and they are kinda stretching around my belly. Yesterday i saw that i got swallow there. First picture is before i put alcohol, insect bites
Oanav
in
MY SKIN
5 years ago
Allergy to razor blade?
Hy guys, Maybe i can find here an opinion. I used on tuesday evening a blade razor, and i got next day little red bumps and they were itchy. I wear only pants and they are kinda stretching around my belly. Yesterday i saw that i got swallow there. First picture is before i put alcohol, insect bites
Hy guys, Maybe i can find here an opinion. I used on tuesday evening a blade razor, and i got next day little red bumps and they were itchy. I wear only pants and they are kinda stretching around my belly. Yesterday i saw that i got swallow there. First picture is before i put alcohol, insect bites
Oanav
in
Anxiety Support
5 years ago
Cusack Protocol
I've been self-injecting 1mg hydroxocobalamin frequently for the past year, which has gradually reduced my tingling and fatigue by about 90%. I started with every other day shots, have been able to gradually stretch the time to every 3 or 4 days. I usually feel tired before a shot, and more energetic
I've been self-injecting 1mg hydroxocobalamin frequently for the past year, which has gradually reduced my tingling and fatigue by about 90%. I started with every other day shots, have been able to gradually stretch the time to every 3 or 4 days. I usually feel tired before a shot, and more energetic
genesurf
in
Pernicious Anaemia Society
5 years ago
Contraception
After having my first child I started taking cerazette pop pill for 7 months until end of July 2019 suddenly started to bleed by dots following 3 days proper period like. When I saw this I made an appointment with nurse then she changed to Evra patch to stop bleeding but no change in it. After taking
After having my first child I started taking cerazette pop pill for 7 months until end of July 2019 suddenly started to bleed by dots following 3 days proper period like. When I saw this I made an appointment with nurse then she changed to Evra patch to stop bleeding but no change in it. After taking
Ruhina30
in
BASHH
5 years ago
Found constipation help
Dr. Kenny Bastien, MD, Altimonte Springs (Orlando) FL has a history of greatly diminishing tremors, etc. He says, Easy fix. Treat the gut. Protocol for first 21 days: Mix Papaya (4 slices), 1/2 Pineapple, Celery (4 stalks). 10am and bedtime Mix Green vibrance with 16 oz. Lilly of the Valley Aloe
Dr. Kenny Bastien, MD, Altimonte Springs (Orlando) FL has a history of greatly diminishing tremors, etc. He says, Easy fix. Treat the gut. Protocol for first 21 days: Mix Papaya (4 slices), 1/2 Pineapple, Celery (4 stalks). 10am and bedtime Mix Green vibrance with 16 oz. Lilly of the Valley Aloe
twss
in
Cure Parkinson's
5 years ago
Anxiety/Acid Reflux
Hi guys, just seeing if anyone has any tips on settling acid down please? I take 20mg omoperazole but it seems to have flared up at the moment. Went on holiday beginning of June but was rather stressful due to a member of the party. Came back and flare up started, since then Father in law passed away
Hi guys, just seeing if anyone has any tips on settling acid down please? I take 20mg omoperazole but it seems to have flared up at the moment. Went on holiday beginning of June but was rather stressful due to a member of the party. Came back and flare up started, since then Father in law passed away
marmaris234
in
IBS Network
5 years ago
Can anybody relate to stomach and bowel issues ?
I have various auto-immune conditions such as Sjogren's, Lupus, Antiphospholipid syndrome ( sticky blood ) and thyroid and parathyroid issues. I have a very swollen painful abdomen - I look a good nine months pregnant. I have non-erosive gastritis, diverticular disease and a sliding hiatus hernia. I
I have various auto-immune conditions such as Sjogren's, Lupus, Antiphospholipid syndrome ( sticky blood ) and thyroid and parathyroid issues. I have a very swollen painful abdomen - I look a good nine months pregnant. I have non-erosive gastritis, diverticular disease and a sliding hiatus hernia. I
Jillymo
in
The Australian Sjögren's Syndrome Association
5 years ago
My latest blood test
Hello All, I just completed yet another blood test. These are the numbers. Fasting Blood Sugar:
114 mg/dL ( 122 mg/dL as of June 03 2019)
HbA1c:
6.7 ( its the same value as of June 03 2019)
Lipid Profile: Total Cholesterol :
217 mg/dL (232 mg/dL as of June 03 2019)
Triglycerides:
Hello All, I just completed yet another blood test. These are the numbers. Fasting Blood Sugar:
114 mg/dL ( 122 mg/dL as of June 03 2019)
HbA1c:
6.7 ( its the same value as of June 03 2019)
Lipid Profile: Total Cholesterol :
217 mg/dL (232 mg/dL as of June 03 2019)
Triglycerides:
barani19
Administrator
in
Diabetes India
5 years ago
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