Experiences with

Polycythaemia vera

Hello, I appreciate there is probably not a definitive answer to my question but I was wondering if there could be a link between platelet donation and subsequent PV diagnosis. I gave platelets some years ago and on one occasion when I gave blood, I was told there was an anomaly and to get a blood

My query is how can the iron deficiency be treated with a diagnosis of Vera when iron supplements are contra indicated.

He has Polycythaemia Vera He has coped really well with Rux but has had to come off owing to large amount of skin cancers over past 12months. Pruritus has been a big issue but Rux really was the answer.

Hello everyong, I'm in the 5th month of treatment inj everyday with cofactor's but my stomach is still very weak. I have better days like yesterday but the day before wow bad. then bowels as well cramping so bad on Tuesday then yesterday was better. today it's trying to cramp up again. I've tried the

I'm new here but would like to know if anyone has similar symptoms... I have been diagnosed with probable IBS (D but sometimes C) by my GP (exclusion diagnosis after various tests). My main symptom is discomfort in the upper right abdomen which is just about always present. Occasionally it is more painful

Hi Guys, New to this forum but have 7 years tackling & experimenting with nutrition for Hashimotos. With a keen background in nutrition I was determined to address it with this and avoid any thyroid drug interaction if possible. My antibodies were as high as 3500 at worst and are now 528 and dropping

Thank you for the previous tips. I tried them but still had an angry (larger!) reaction this week, but it went down much rapidly and hasn’t itched or bruised much. Progress! Sorry for so many questions for a relatively trivial thing but please may I ask - do you put the needle in part way or right

It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for PEGASYS, based on published data of clinical studies conducted in support of the efficacy and safety of Pegasys for the treatment

I started getting these about 6 months ago and read something about them coming from cats and soil or dirt but anyway I figured I would try aloe Vera straight from the plant and it healed it in 3 days I hope this helps a lot of people going through these skin plugs that wont heal

Hi fellow suffers. I was diagnoised with IC 3 years ago and have chronic pelvic pain. I also have vulvodynia and IBS. I have tried numerous medications and bladder instillations which have not worked. I have recently started Elmiron but too early to say if it's helping yet. I follow a strict IC diet

While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope

Hi all way back in 1997 i suffered with severe IBS D i tried antispasmodics from my gp aloe vera juice but it was when i started eating bananas it vanished fast forward 2017 i developed diverticulitis and severe constipation and pain my abdomen was huge luckily it was uncomplicated i started eating wholemeal

someone forwarded me information on the above subject. Pegasys is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information

I did I applied two times coconut and aloe Vera gel In a day , but wrinkles are there but it did improve a bit but my concern is where it is not a serious problem , I had rough masturbation that time it was fully wrinkled and shinny white cracks and skin not so easy but I am not sure still what time

Polycythaemia Vera can be an extremely debilitating illness that has a significant impact on patients’ lives in terms of day-to-day symptoms and affects not only patients but also their families and carers.

Hi, My main symptoms are an itch on my neck, face, one shoulder and recently between my shoulder blades. I have puffy fingers and suffer with Raynauds Syndrome. Bouts of Fatigue too. I reduced my working hours to part-time as advised by my consultant. I had a number of tests and I was diagnosed with

With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with polycythaemia vera.

I'm having terrible pelvis, hip, leg and back pain and have done for most of the last year. I'm 39 and was only diagnosed last year, but have had symptoms since I was 10. I feel like my symptoms have got worse since my laparoscopy and excision last April, but have been trying progesterone only contraception

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seeing im not alone as im shitting bricks for my upcoming appointment following an abdominal mri months ago to rule anything out before possible surgery, and i have ptsd (which is heavily related to my fears about this appointment

It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which