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Polycythaemia vera
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I am new here was diagnosed yesterday with Polycythaemia vera KAK2 positive I am still in shock.
Would like to hear from others with my condition.
Would like to hear from others with my condition.
Chez1947
in
MPN Voice
5 years ago
Are My Numbers Horrible?
I was on statins 9 years ago and they caused debilitating muscle pains. When I switched doctors, my new doctor ordered a nuclear stress test, cardiac calcium test, c-reactive protein & NMR LipoProfile. Stress test was normal, cardiac calcium score was zero, c-reactive protein normal, but my NMR showed
I was on statins 9 years ago and they caused debilitating muscle pains. When I switched doctors, my new doctor ordered a nuclear stress test, cardiac calcium test, c-reactive protein & NMR LipoProfile. Stress test was normal, cardiac calcium score was zero, c-reactive protein normal, but my NMR showed
DRGPS51
in
Cholesterol Support
5 years ago
difference in glucose levels
I had a blood test on 26/4/2019. the results are hba1c 6.8 glucose fasting 128 pp 200. uric acid 9.4. urea 28 creatinine 1.07 cholesterol 1.25 triglycerides 115 hdl 43.Ldl 63 vldl 23 Tch hdl ratio 2.9. I am 83 years old. is my parameters o.k my doubt is when my hba1c is 6.8 why glucose levels are high.is
I had a blood test on 26/4/2019. the results are hba1c 6.8 glucose fasting 128 pp 200. uric acid 9.4. urea 28 creatinine 1.07 cholesterol 1.25 triglycerides 115 hdl 43.Ldl 63 vldl 23 Tch hdl ratio 2.9. I am 83 years old. is my parameters o.k my doubt is when my hba1c is 6.8 why glucose levels are high.is
medico76
in
Diabetes India
5 years ago
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Hydrea
I am 76,
Polycythaemia
Vera
for 9 years, taking Hydrea 3 capsules daily now. This controls white blood cells well, but not red blood corpuscles, so I will have to have another bleed. I tolerate these well but find they make me tired and breathless.
I am 76,
Polycythaemia
Vera
for 9 years, taking Hydrea 3 capsules daily now. This controls white blood cells well, but not red blood corpuscles, so I will have to have another bleed. I tolerate these well but find they make me tired and breathless.
lucieboo
in
MPN Voice
6 years ago
Tamarin study update and a new study now recruiting
Vera
Myelofibrosis, or post-Essential Thrombocythaemia Myelofibrosis who have failed previous treatment with a JAK inhibitor; and in patients with phlebotomy-dependent
Polycythaemia
Vera
.
Vera
Myelofibrosis, or post-Essential Thrombocythaemia Myelofibrosis who have failed previous treatment with a JAK inhibitor; and in patients with phlebotomy-dependent
Polycythaemia
Vera
.
Mazcd
MPNVoice
in
MPN Voice
6 years ago
Help for itchy, dry skin.
My skin has always been very dry, but has changed over previous months, feeling much more dry and uncomfortable with patches of eczema developing. (Am hypothyroid). On friend's recommendation have been using Equimins Udder Cream - 1 kg Tub - Eqs0367. It's actually for horses but is a non-greasy
My skin has always been very dry, but has changed over previous months, feeling much more dry and uncomfortable with patches of eczema developing. (Am hypothyroid). On friend's recommendation have been using Equimins Udder Cream - 1 kg Tub - Eqs0367. It's actually for horses but is a non-greasy
notpink
in
Thyroid UK
6 years ago
"Devotions upon Emergent Occasions" - BMB results are in - PV confirmed not MF
Polycythaemia
Vera
confirmed, not Myleofibrosis for those tracking the technical stuff. I love my work as a coach and facilitator so much, and one of my greatest fears was that I wouldn't be able to complete what I feel I'm here to co-create.
Polycythaemia
Vera
confirmed, not Myleofibrosis for those tracking the technical stuff. I love my work as a coach and facilitator so much, and one of my greatest fears was that I wouldn't be able to complete what I feel I'm here to co-create.
ilovetoastwithbutter
in
MPN Voice
6 years ago
The worst migranes ever after coming off the evra patch..
Hi all I was wondering if anyone could share some experiences/advice. I came off my evera patch last saturday (so it's been 8 days today) and since I've come off it I've been experiencing the WORST migranes ever. I can barely keep my eyes open and this has been happening for the last 5 days to date.
Hi all I was wondering if anyone could share some experiences/advice. I came off my evera patch last saturday (so it's been 8 days today) and since I've come off it I've been experiencing the WORST migranes ever. I can barely keep my eyes open and this has been happening for the last 5 days to date.
Jaas1
in
Endometriosis UK
6 years ago
Insulin Resistance (POCS) and Adrenal Problems (thyroid too). Need help on advice on how to tackle adrenals.
Hi all See attached saliva test. RBC ALL OK Sodium 139 mmol/ml (range 133-145 mmol/ml) Optimal 142 (a little low but Good)? Potassium 4.1 mmol/ml (range 3.5-5.5) Optimal 4.2 or higher (a little low but Good) Calcium 9.4 mg.DL (range 8.4-10.6) Good Creatinine 0.6 (0.5 - 1.2) BUN 8 (6.22) ALT
Hi all See attached saliva test. RBC ALL OK Sodium 139 mmol/ml (range 133-145 mmol/ml) Optimal 142 (a little low but Good)? Potassium 4.1 mmol/ml (range 3.5-5.5) Optimal 4.2 or higher (a little low but Good) Calcium 9.4 mg.DL (range 8.4-10.6) Good Creatinine 0.6 (0.5 - 1.2) BUN 8 (6.22) ALT
Crunchieeagle
in
Thyroid UK
6 years ago
Results for a close friend. Severe PCOS & Insulin Resistance, and adrenal fatigue. Will tackle thyroid later. Any advice please ?? Thanks
Hello there. I was wondering if anyone can help. Sorry there is alot of lab information here This close friend has had the same issues as me in the past . Chronic side effects from medications. So at first she saw a doctor for the first time in years, that would do some blood testing and said everything
Hello there. I was wondering if anyone can help. Sorry there is alot of lab information here This close friend has had the same issues as me in the past . Chronic side effects from medications. So at first she saw a doctor for the first time in years, that would do some blood testing and said everything
Crunchieeagle
in
Thyroid UK
6 years ago
Survey for the MOSAICC Study - we need your help
Help us with developing a questionnaire for the MOSAICC study which will be the world’s largest study to try to identify the cause(s) of Myeloproliferative neoplasms (MPNs) including
polycythaemia
vera
, essential thrombocythaemia and primary myelofibrosis.
Help us with developing a questionnaire for the MOSAICC study which will be the world’s largest study to try to identify the cause(s) of Myeloproliferative neoplasms (MPNs) including
polycythaemia
vera
, essential thrombocythaemia and primary myelofibrosis.
Mazcd
MPNVoice
in
MPN Voice
6 years ago
How to reduce cholesterol
Hi, my total cholesterol is 250. LDL is 150? how to reduce this. I eat garlic, onion. started taking aloe vera juice, and arjun tree skin boiled in water.
Hi, my total cholesterol is 250. LDL is 150? how to reduce this. I eat garlic, onion. started taking aloe vera juice, and arjun tree skin boiled in water.
narayan2017
in
Diabetes India
6 years ago
LPR / SILENT REFLUX worries
Hi, my LPR started a month ago. It began with my throat closing up / contracting / spasming at night. I was unable to sleep at all because i simply couldn't breathe. A few days later i got the more classic signs of LPR, a sore throat, burning tongue, lump in the throat, mucus. I went to the GP and he
Hi, my LPR started a month ago. It began with my throat closing up / contracting / spasming at night. I was unable to sleep at all because i simply couldn't breathe. A few days later i got the more classic signs of LPR, a sore throat, burning tongue, lump in the throat, mucus. I went to the GP and he
LPR12
in
Oesophageal & Gastric Cancer
6 years ago
TSW - What helps
Topical Withdrawal Syndrome TWS is one of my most painful experiences . Even though I avoid the use of topical steroids now, some creams I use can bring back a milder form of those painful symptoms. My skin has gotten so sensitive!. I can tell you though, wash your face only with water if you are experiencing
Topical Withdrawal Syndrome TWS is one of my most painful experiences . Even though I avoid the use of topical steroids now, some creams I use can bring back a milder form of those painful symptoms. My skin has gotten so sensitive!. I can tell you though, wash your face only with water if you are experiencing
timosherry
in
MY SKIN
6 years ago
Apple cider vinegar
Hi there, I am wondering if anyone had experienced any benefits of using apple cider vinegar. I have lupus and keen to try natural remedies over anti inflammatory tablets if I can. I also take Aloe Vera drinking gel. Thank you x
Hi there, I am wondering if anyone had experienced any benefits of using apple cider vinegar. I have lupus and keen to try natural remedies over anti inflammatory tablets if I can. I also take Aloe Vera drinking gel. Thank you x
Jmcb123
in
LUPUS UK
6 years ago
I have these red spots on my penis, after intercourse the spots reappear in hours, is this friction burn or yeast infection?
I got a test panel test and was clear of everything but these spots won’t go away. Any clue ? Should I be worried? I have added coocunut oil and aloe Vera and the spots disappear but everytime afer intercourse they come back . Is it rough sex or ?
I got a test panel test and was clear of everything but these spots won’t go away. Any clue ? Should I be worried? I have added coocunut oil and aloe Vera and the spots disappear but everytime afer intercourse they come back . Is it rough sex or ?
Somedude1995
in
Men's Health Forum
6 years ago
Glycation - Atherosclerosis, Cancer, Diabetes, Aging, Alzheimers and Cataracts
Glycation is the process of a sugar molecule such glucose or fructose attaching itself to a protein molecule. This leads to the formation of AGEs (Advanced Glycation End products) in the body which damages cells and tissues - this accelerates the aging process by 7-fold. The HbA1C biomarker is a measure
Glycation is the process of a sugar molecule such glucose or fructose attaching itself to a protein molecule. This leads to the formation of AGEs (Advanced Glycation End products) in the body which damages cells and tissues - this accelerates the aging process by 7-fold. The HbA1C biomarker is a measure
sos007
Ambassador
in
Cholesterol Support
6 years ago
LDL paradox
Hi, last September (2018)I went on a plant/fish diet, dropping milk/meat/eggs to try to reduce my cholesterol, which was at that time: - TC: 209 HDL: 54 TG: 71 LDL: 138 Last week, after four months on PF diet, I was expecting TC to drop to about 180, and here's what I got-- LDL went up 20 pts!
Hi, last September (2018)I went on a plant/fish diet, dropping milk/meat/eggs to try to reduce my cholesterol, which was at that time: - TC: 209 HDL: 54 TG: 71 LDL: 138 Last week, after four months on PF diet, I was expecting TC to drop to about 180, and here's what I got-- LDL went up 20 pts!
timotur
in
Cholesterol Support
6 years ago
Aloe vera
Hi all I’ve been taking aloe Vera for 2 weeks because a friend recommended it trouble is I’m worried as I’m taking thyroxine as well, I noticed I’m losing a bit of hair more than usual can any one help
Hi all I’ve been taking aloe Vera for 2 weeks because a friend recommended it trouble is I’m worried as I’m taking thyroxine as well, I noticed I’m losing a bit of hair more than usual can any one help
Stevenev225
in
Thyroid UK
6 years ago
Aloe vera
I have recently been diagnosed with SLE and take hydroxychloroquine, someone recommended I should try Aloe Vera Gel to drink.... interested to hear if anyone has tried this with any success? Also keen to hear of other more natural remedies to help with the aches and pains x
I have recently been diagnosed with SLE and take hydroxychloroquine, someone recommended I should try Aloe Vera Gel to drink.... interested to hear if anyone has tried this with any success? Also keen to hear of other more natural remedies to help with the aches and pains x
Jmcb123
in
LUPUS UK
6 years ago
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