Search
Search
About
Log in
Join
Experiences with
Polycythaemia vera
Posts
Communities
521 public posts
Filter results
Insulin Resistance (POCS) and Adrenal Problems (thyroid too). Need help on advice on how to tackle adrenals.
Hi all See attached saliva test. RBC ALL OK Sodium 139 mmol/ml (range 133-145 mmol/ml) Optimal 142 (a little low but Good)? Potassium 4.1 mmol/ml (range 3.5-5.5) Optimal 4.2 or higher (a little low but Good) Calcium 9.4 mg.DL (range 8.4-10.6) Good Creatinine 0.6 (0.5 - 1.2) BUN 8 (6.22) ALT
Hi all See attached saliva test. RBC ALL OK Sodium 139 mmol/ml (range 133-145 mmol/ml) Optimal 142 (a little low but Good)? Potassium 4.1 mmol/ml (range 3.5-5.5) Optimal 4.2 or higher (a little low but Good) Calcium 9.4 mg.DL (range 8.4-10.6) Good Creatinine 0.6 (0.5 - 1.2) BUN 8 (6.22) ALT
Crunchieeagle
in
Thyroid UK
5 years ago
Results for a close friend. Severe PCOS & Insulin Resistance, and adrenal fatigue. Will tackle thyroid later. Any advice please ?? Thanks
Hello there. I was wondering if anyone can help. Sorry there is alot of lab information here This close friend has had the same issues as me in the past . Chronic side effects from medications. So at first she saw a doctor for the first time in years, that would do some blood testing and said everything
Hello there. I was wondering if anyone can help. Sorry there is alot of lab information here This close friend has had the same issues as me in the past . Chronic side effects from medications. So at first she saw a doctor for the first time in years, that would do some blood testing and said everything
Crunchieeagle
in
Thyroid UK
5 years ago
Survey for the MOSAICC Study - we need your help
Help us with developing a questionnaire for the MOSAICC study which will be the world’s largest study to try to identify the cause(s) of Myeloproliferative neoplasms (MPNs) including
polycythaemia
vera
, essential thrombocythaemia and primary myelofibrosis.
Help us with developing a questionnaire for the MOSAICC study which will be the world’s largest study to try to identify the cause(s) of Myeloproliferative neoplasms (MPNs) including
polycythaemia
vera
, essential thrombocythaemia and primary myelofibrosis.
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
How to reduce cholesterol
Hi, my total cholesterol is 250. LDL is 150? how to reduce this. I eat garlic, onion. started taking aloe vera juice, and arjun tree skin boiled in water.
Hi, my total cholesterol is 250. LDL is 150? how to reduce this. I eat garlic, onion. started taking aloe vera juice, and arjun tree skin boiled in water.
narayan2017
in
Diabetes India
5 years ago
LPR / SILENT REFLUX worries
Hi, my LPR started a month ago. It began with my throat closing up / contracting / spasming at night. I was unable to sleep at all because i simply couldn't breathe. A few days later i got the more classic signs of LPR, a sore throat, burning tongue, lump in the throat, mucus. I went to the GP and he
Hi, my LPR started a month ago. It began with my throat closing up / contracting / spasming at night. I was unable to sleep at all because i simply couldn't breathe. A few days later i got the more classic signs of LPR, a sore throat, burning tongue, lump in the throat, mucus. I went to the GP and he
LPR12
in
Oesophageal & Gastric Cancer
5 years ago
TSW - What helps
Topical Withdrawal Syndrome TWS is one of my most painful experiences . Even though I avoid the use of topical steroids now, some creams I use can bring back a milder form of those painful symptoms. My skin has gotten so sensitive!. I can tell you though, wash your face only with water if you are experiencing
Topical Withdrawal Syndrome TWS is one of my most painful experiences . Even though I avoid the use of topical steroids now, some creams I use can bring back a milder form of those painful symptoms. My skin has gotten so sensitive!. I can tell you though, wash your face only with water if you are experiencing
timosherry
in
MY SKIN
5 years ago
Apple cider vinegar
Hi there, I am wondering if anyone had experienced any benefits of using apple cider vinegar. I have lupus and keen to try natural remedies over anti inflammatory tablets if I can. I also take Aloe Vera drinking gel. Thank you x
Hi there, I am wondering if anyone had experienced any benefits of using apple cider vinegar. I have lupus and keen to try natural remedies over anti inflammatory tablets if I can. I also take Aloe Vera drinking gel. Thank you x
Jmcb123
in
LUPUS UK
5 years ago
I have these red spots on my penis, after intercourse the spots reappear in hours, is this friction burn or yeast infection?
I got a test panel test and was clear of everything but these spots won’t go away. Any clue ? Should I be worried? I have added coocunut oil and aloe Vera and the spots disappear but everytime afer intercourse they come back . Is it rough sex or ?
I got a test panel test and was clear of everything but these spots won’t go away. Any clue ? Should I be worried? I have added coocunut oil and aloe Vera and the spots disappear but everytime afer intercourse they come back . Is it rough sex or ?
Somedude1995
in
Men's Health Forum
5 years ago
Glycation - Atherosclerosis, Cancer, Diabetes, Aging, Alzheimers and Cataracts
Glycation is the process of a sugar molecule such glucose or fructose attaching itself to a protein molecule. This leads to the formation of AGEs (Advanced Glycation End products) in the body which damages cells and tissues - this accelerates the aging process by 7-fold. The HbA1C biomarker is a measure
Glycation is the process of a sugar molecule such glucose or fructose attaching itself to a protein molecule. This leads to the formation of AGEs (Advanced Glycation End products) in the body which damages cells and tissues - this accelerates the aging process by 7-fold. The HbA1C biomarker is a measure
sos007
Ambassador
in
Cholesterol Support
5 years ago
LDL paradox
Hi, last September (2018)I went on a plant/fish diet, dropping milk/meat/eggs to try to reduce my cholesterol, which was at that time: - TC: 209 HDL: 54 TG: 71 LDL: 138 Last week, after four months on PF diet, I was expecting TC to drop to about 180, and here's what I got-- LDL went up 20 pts!
Hi, last September (2018)I went on a plant/fish diet, dropping milk/meat/eggs to try to reduce my cholesterol, which was at that time: - TC: 209 HDL: 54 TG: 71 LDL: 138 Last week, after four months on PF diet, I was expecting TC to drop to about 180, and here's what I got-- LDL went up 20 pts!
timotur
in
Cholesterol Support
5 years ago
Aloe vera
Hi all I’ve been taking aloe Vera for 2 weeks because a friend recommended it trouble is I’m worried as I’m taking thyroxine as well, I noticed I’m losing a bit of hair more than usual can any one help
Hi all I’ve been taking aloe Vera for 2 weeks because a friend recommended it trouble is I’m worried as I’m taking thyroxine as well, I noticed I’m losing a bit of hair more than usual can any one help
Stevenev225
in
Thyroid UK
5 years ago
Aloe vera
I have recently been diagnosed with SLE and take hydroxychloroquine, someone recommended I should try Aloe Vera Gel to drink.... interested to hear if anyone has tried this with any success? Also keen to hear of other more natural remedies to help with the aches and pains x
I have recently been diagnosed with SLE and take hydroxychloroquine, someone recommended I should try Aloe Vera Gel to drink.... interested to hear if anyone has tried this with any success? Also keen to hear of other more natural remedies to help with the aches and pains x
Jmcb123
in
LUPUS UK
5 years ago
Introduction
Hi everyone, I'm 53 live in Gibraltar and have recently been diagnosed with
Polycythaemia
Vera
. My bone marrow biopsy confirmed that I was Jak2+ and ultrasound scan that my spleen was enlarged. I've had 5 venesections thus far and have a 6th scheduled in a couple of weeks.
Hi everyone, I'm 53 live in Gibraltar and have recently been diagnosed with
Polycythaemia
Vera
. My bone marrow biopsy confirmed that I was Jak2+ and ultrasound scan that my spleen was enlarged. I've had 5 venesections thus far and have a 6th scheduled in a couple of weeks.
AndW65
in
MPN Voice
6 years ago
Aloe Vera juice
Is Aloe Vera juice effective in controlling blood sugar? Any body having personal experience?
Is Aloe Vera juice effective in controlling blood sugar? Any body having personal experience?
Hidden
in
Diabetes India
5 years ago
Tired/sleepy all the time. Is it in my head?
Hey ladies, I am so sleepy all the time even though I'm not in pain and i get plenty of sleep. Is it in my head or does everyone else feel like this? I haven't changed anything lifestyle wise and normally i find it difficult to get to sleep but lately i have been falling asleep so quickly, but I'm not
Hey ladies, I am so sleepy all the time even though I'm not in pain and i get plenty of sleep. Is it in my head or does everyone else feel like this? I haven't changed anything lifestyle wise and normally i find it difficult to get to sleep but lately i have been falling asleep so quickly, but I'm not
Jaas1
in
Endometriosis UK
5 years ago
PD & MPN blood disorder
I was diagnosed with PD 4 years ago then 3 years ago
Polycythaemia
Rubra
Vera
. Never know which symptoms to attribute to which condition. Also I’ve heard turmeric is good for PD but may not be good for PV. Anyone else with both?
I was diagnosed with PD 4 years ago then 3 years ago
Polycythaemia
Rubra
Vera
. Never know which symptoms to attribute to which condition. Also I’ve heard turmeric is good for PD but may not be good for PV. Anyone else with both?
Albt4z
in
Cure Parkinson's
6 years ago
Good morning amazing women!!!
Hi, I had my major op done in 2005, had a mirena put in and taken out in 2009. After that was smooth sailing until last year (last year cos I had IVF on NHS and it completely messed my insides up!!!) Anyway, The mirena worked well for me but I changed my diet drastically cos of my bowel movements. Sometimes
Hi, I had my major op done in 2005, had a mirena put in and taken out in 2009. After that was smooth sailing until last year (last year cos I had IVF on NHS and it completely messed my insides up!!!) Anyway, The mirena worked well for me but I changed my diet drastically cos of my bowel movements. Sometimes
LovingVibes
in
Endometriosis UK
6 years ago
Acid reflux
I have Acid reflux and a hiatal hernia. I try to keep off prescription meds as much as possible but sometimes the chest and sternum pain is too great. However, omeprazole and Zantac give me horrendous restless legs and arms. Has anyone who suffers from this condition taken anything that doesn’t give
I have Acid reflux and a hiatal hernia. I try to keep off prescription meds as much as possible but sometimes the chest and sternum pain is too great. However, omeprazole and Zantac give me horrendous restless legs and arms. Has anyone who suffers from this condition taken anything that doesn’t give
Mum007
in
Restless Legs Syndrome
6 years ago
Bimuno
Bimuno on day 8 and pain seems to have gone! IBS often caused by SIBO Small intestine Bacterial overgrowth. This product encourages growth of certain bacterias important to digestive health inc. Bifidobacteria. Believe me I have tried everything! Worth a try. Comes in sachets one a day. Also taking
Bimuno on day 8 and pain seems to have gone! IBS often caused by SIBO Small intestine Bacterial overgrowth. This product encourages growth of certain bacterias important to digestive health inc. Bifidobacteria. Believe me I have tried everything! Worth a try. Comes in sachets one a day. Also taking
ukjacisl
in
IBS Network
6 years ago
has anyone had a hip replacement with polycythaemia
I have
polycythaemia
vera
primary
I have
polycythaemia
vera
primary
leapi
in
MPN Voice
6 years ago
1
...
9
10
11
...
27
Next page
10
20
Filter results
Clear filters
Posted in
All communities
MPN Voice
77 results
Diabetes India
72 results
Thyroid UK
58 results
View top 10 communities
Sort by
Most Relevant
Newest